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A year after the Paralympics, are things now getting worse for disabled people?

While we talk of "legacy", it’s starting to feel like what happened exactly a year ago this month not only hasn’t elevated disabled people, but is being used to trap.

Are you still patronised? I ask Sophie Christiansen, triple Gold medallist at London’s 2012 Paralympics, as we discuss how things are for disabled people in the country a year on. “All the time,” she says. “It’s a minority but yeah, that either talking really condescendingly or patronisingly.”

The last time was a couple of weeks ago, she says, when she gave a talk and in getting out of her wheelchair to move closer to the microphone, an audience member cried out “well done!” “You’ll laugh,” she smiles, “But it was at a [disability] conference.”

The pitying enthusiasm of the ignorant hasn’t noticeably lessened in the past year. The stares don’t go. The desire to avoid, as eyes switch to a nearby body – any nearby body – deemed normal, hasn’t gone either.

I don’t suppose anyone thought it would. Humans are difficult things and difference is terrifying. It takes more than two weeks of patriotism to chip at that.

It takes more than a few sound bites of ‘inspiration’ and desire for ‘change’ too. It requires not taking multiple deep, sweeping policy measures that actively makes things worse. And in doing so securing a sense that certain people – alien, needing, taking – deserve to have things no better. Perhaps that’s the problem. Perhaps, if there are crumbs out there of something close to progress, amidst the rising poverty and separation, it all just looks like regression.

I talk to Dame Anne Begg MP, the first full-time wheelchair user in the House of Commons, about the burst of positivity that came with the Games, and she immediately points to the way disabled people were spoken about. It’s funny how things change.

“The positive thing that came out the Paralympics was the use of language and just being around disabled people,” Anne says. “But the bad thing is that afterwards came a huge amount of negative language used, particularly when it came to benefits. There was a huge contrast.”  

In the end, the Paralympics actually helped build “a false impression of disability”, Anne fears – one where if certain disabled people can do great things, any disabled person can, and judgment of why they’re not soon follows. It’s fed by a Government that has taken to blurring the lines, be it between disability and sickness, or need and laziness.

“The Government equates disability and ill health. The two words are used as if they’re interchangeable, when of course they’re not,” Anne, also Chair of the Work and Pensions Select Committee, says. “A lot of disabled people are able to work. [But then you’ve got] the ‘scrounger’ agenda. It’s created a backlash against disabled people.”

London’s Paralympics was that rare event that’s both symbolic and real, something tangible and brief that contains within it almost an emotion that lasts. It seems predictable that the political class would pull on that, when it suits. The word that triggers a memory of equality and honesty, if we were being cynical, seems the perfect vehicle to mask the spread of inequality and myths.  

Dressed up in the bow of legacy, it’s starting to feel like what happened exactly a year ago this month not only hasn’t elevated disabled people, but is being used to trap.

“Esther McVey, the Minister for Disabled People, gushes at every opportunity that we must all build on the Paralympian legacy. But what does this mean?” Linda Burnip of the campaign group Disabled People Against Cuts, says. If it was about celebrating the rights and opportunities that enabled those Paralympians to shine, that would be one thing, she tells me. “But if it’s about the new corporatism of the welfare state and disability – the removal of equality, rights and opportunities from disabled people – we need to fight it with all our strength. Based on the evidence so far, fighting is our only option.”

‘The “evidence” is everywhere, if you want to see it. Most people, with at least a passing interest, will be aware of the list by now: abolishing Disability Living Allowance, time-limiting Employment and Support Allowance, closing the Independent Living Fund at the national level and slashing social care at the local level… And the ‘bedroom tax’, of course, much like the council tax changes; one of those cuts that doesn’t have disability in the title but happens to disproportionately hit the disabled. As if being disabled and being in poverty were somehow linked.

Disabled people have always been more likely to live in poverty than non-disabled people. More likely to be unemployed, not have an education, or to be isolated. No Government makes that happen, but in all the things they fail to do, they can allow it. Some Government’s, in the things they do, exacerbate it. Over the past year of benefit cuts, this Government’s ensured it.

Money is now being taken from the group that need it most. £28bn, in fact. This is what disadvantaging the disadvantaged looks like.

Anne McGuire, Shadow Minister for Disabled People, talks to me about the cycle this climate is creating: disabled people’s fear of “the cliff edge” of losing benefits, the negative media coverage that defines them as purely benefit recipients, the linking of disability as scroungers, and in turn the fear and reality “of harassment as a result” of such a focus.

“Over the past year, I’ve lost count of the number of disabled people who have told me that they feel as though they’ve gone back twenty years in terms of their quality of life,” she says.

You don’t need to have expected two weeks of sport to make things better for disabled people to feel the ache that in many ways, one year on, things are worse.

2013 has taught us that, contrary to popular belief, you can in fact put a price on dignity. It’s around how much it costs for a local authority to hire a PA to help someone to the toilet if they can’t get there themselves. Funding cuts mean these are calculations that are actually currently being made in this country.

I spoke to one disabled woman, who needs help with all aspects of daily living, who has just had her care package ‘re-assessed’ by Northampton council. She’s been told cuts mean she’ll have her support reduced by over 50 hours a week.

“I’ll be left isolated, housebound, at risk of malnutrition, and unsafe in my own home,” she tells me, under anonymity. “I’ll also be forced to wear incontinence pads at night instead of getting an on-call PA to help to go to the toilet.”

Under the proposed plans, she’s expected to manage on a care plan of three hours a day. That’s one hour to get up, half hour for lunch, half hour for dinner, and one hour for bed. She’ll get 9 hours ‘social hours’ a week, or more accurately, 9 hours to leave the house.  

Perhaps it seems quite normal for a disabled person to be shut in their home. Perhaps the action the Government has taken this year simply plays into the way enough people, and the structures they live within, think things should be. 

The big things join with the small things, after all, and the small things have always said ‘don’t ask for too much’. The step up to the restaurant, the dirty look, the public transport that it’s decided can run whilst excluding one part of the public… Or – as Tanni Grey-Thompson found on a train yet again last month – decides it can tell a certain sort of person it doesn’t need to provide a toilet. Taken apart, there is something telling about being used to watching your fluid intake when out because you know you live in a country where public places don’t have to meet your basic human needs.

“We don’t expect better service [than other people] and we all understand that it isn’t perfect,” Tanni tells me. “But we shouldn’t be treated like second class citizens.”  

“It can be the little things that wear you down,” she says. “How you get treated is so variable. It’s down to the person, not always the system (in the case of trains) and that’s what makes it so hard to sort out… you don’t always know what you’re fighting.”

If she was given the choice to change one thing between welfare cuts and the smaller things, Tanni isn’t sure what it would be. “Probably the low level discrimination,” she says. “I think this has a wider and continuing impact on the rest.”

It isn’t one thing that makes a person feel as if they’re a second class citizen in their own country. It isn’t one thing that makes them feel like they’ve gone back twenty years. The small things join with the big things, and for certain people, they’ve always made life a certain way. At this point, as that way of life for many is worsening still, two weeks last summer are starting to feel like a cruel tease. 

Frances Ryan is a journalist and political researcher. She writes regularly for the Guardian, New Statesman, and others on disability, feminism, and most areas of equality you throw at her. She has a doctorate in inequality in education. Her website is here.

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How the row over Jackie Walker triggered a full-blown war in Momentum

Jon Lansman, the organisation's founder, is coming under attack. 

The battle for control within Momentum, which has been brewing for some time, has begun in earnest.

In a sign of the growing unrest within the organisation – established as the continuation of Jeremy Corbyn’s first successful leadership bid, and instrumental in delivering in his re-election -  a critical pamphlet by the Alliance for Workers’ Liberty (AWL), a Trotskyite grouping, has made its way into the pages of the Times, with the “unelected” chiefs of Momentum slated for turning the organisation into a “bland blur”.

The issue of contention: between those who see Momentum as an organisation to engage new members of the Labour party, who have been motivated by Jeremy Corbyn but are not yet Corbynites.

One trade unionist from that tendency described what they see the problem as like this: “you have people who have joined to vote for Jeremy, they’re going to meetings, but they’re voting for the Progress candidates in selections, they’re voting for Eddie Izzard [who stood as an independent but Corbynsceptic candidate] in the NEC”.  

On the other are those who see a fightback by Labour’s right and centre as inevitable, and who are trying to actively create a party within a party for what they see as an inevitable purge. One activist of that opinion wryly described Momentum as “Noah’s Ark”.

For both sides, Momentum, now financially stable thanks to its membership, which now stands at over 20,000, is a great prize. And in the firing line for those who want to turn Momentum into a parallel line is Jon Lansman, the organisation’s founder.

Lansman, who came into politics as an aide to Tony Benn, is a figure of suspicion on parts of the broad left due to his decades-long commitment to the Labour party. His major opposition within Momentum and on its ruling executive comes from the AWL.

The removal of Jackie Walker as a vice-chair of Momentum after she said that Holocaust Memorial Day belittled victims of other genocides has boosted the AWL, although the AWL's Jill Mountford, who sits on Momentum's ruling executive, voted to remove Walker as vice-chair. (Walker remains on the NEC, as she has been elected by members). But despite that, the AWL, who have been critical of the process whereby Walker lost her post, have felt the benefit across the country.

Why? Because that battle has triggered a series of serious splits, not only in Momentum’s executive but its grassroots. A raft of local groups have thrown out the local leadership, mostly veterans of Corbyn’s campaign for the leadership, for what the friend of one defeated representative described as “people who believe the Canary [a pro-Corbyn politics website that is regularly accused of indulging and promoting conspiracy theories]”.

In a further series of reverses for the Lansmanite caucus, the North West, a Momentum stronghold since the organisation was founded just under a year ago, is slipping away from old allies of Lansman and towards the “new” left. As one insider put it, the transition is from longstanding members towards people who had been kicked out in the late 1980s and early 1990s by Neil Kinnock. The constituency party of Wallasey in particular is giving senior figures in Momentum headaches just as it is their opponents on the right of the party, with one lamenting that they have “lost control” of the group.

It now means that planned changes to Momentum’s structure, which the leadership had hoped to be rubberstamped by members, now face a fraught path to passage.

Adding to the organisation’s difficulties is the expected capture of James Schneider by the leader’s office. Schneider, who appears widely on television and radio as the public face of Momentum and is well-liked by journalists, has an offer on the table to join Jeremy Corbyn’s team at Westminster as a junior to Seumas Milne.

The move, while a coup for Corbyn, is one that Momentum – and some of Corbyn’s allies in the trade union movement – are keen to resist. Taking a job in the leader’s office would reduce still further the numbers of TV-friendly loyalists who can go on the airwaves and defend the leadership. There is frustration among the leader’s office that as well as Diane Abbott and John McDonnell, who are both considered to be both polished media performers and loyalists, TV bookers turn to Ken Livingstone, who is retired and unreliable, and Paul Mason, about whom opinions are divided within Momentum. Some regard Mason as a box office performer who needs a bigger role, others as a liability.

But all are agreed that Schneider’s expected departure will weaken the media presence of Corbyn loyalists and also damage Momentum. Schneider has spent much of his time not wrangling journalists but mediating in local branches and is regarded as instrumental in the places “where Momentum is working well” in the words of one trade unionist. (Cornwall is regarded as a particular example of what the organisation should be aiming towards)

It comes at a time when Momentum’s leadership is keen to focus both on its external campaigns but the struggle for control in the Labour party. Although Corbyn has never been stronger within the party, no Corbynite candidate has yet prevailed in a by-election, with the lack of available candidates at a council level regarded as part of the problem. Councilors face mandatory reselection as a matter of course, and the hope is that a bumper crop of pro-Corbyn local politicians will go on to form the bulk of the talent pool for vacant seats in future by-elections and in marginal seats at the general election.

But at present, a draining internal battle is sapping Momentum of much of its vitality. But Lansman retains two trump cards. The first is that as well as being the founder of the organisation, he is its de facto owner: the data from Jeremy Corbyn’s leadership campaigns, without which much of the organisation could not properly run, is owned by a limited company of which he is sole director. But “rolling it up and starting again” is very much the nuclear option, that would further delay the left’s hopes of consolidating its power base in the party.

The second trump card, however, is the tribalism of many of the key players at a local level, who will resist infiltration by groups to Labour’s left just as fiercely as many on the right. As one veteran of both Corbyn’s campaigns reflected: “If those who have spent 20 years attacking our party think they have waiting allies in the left of Labour, they are woefully mistaken”. 

Stephen Bush is special correspondent at the New Statesman. His daily briefing, Morning Call, provides a quick and essential guide to British politics.