A year after the Paralympics, are things now getting worse for disabled people?

While we talk of "legacy", it’s starting to feel like what happened exactly a year ago this month not only hasn’t elevated disabled people, but is being used to trap.

Are you still patronised? I ask Sophie Christiansen, triple Gold medallist at London’s 2012 Paralympics, as we discuss how things are for disabled people in the country a year on. “All the time,” she says. “It’s a minority but yeah, that either talking really condescendingly or patronisingly.”

The last time was a couple of weeks ago, she says, when she gave a talk and in getting out of her wheelchair to move closer to the microphone, an audience member cried out “well done!” “You’ll laugh,” she smiles, “But it was at a [disability] conference.”

The pitying enthusiasm of the ignorant hasn’t noticeably lessened in the past year. The stares don’t go. The desire to avoid, as eyes switch to a nearby body – any nearby body – deemed normal, hasn’t gone either.

I don’t suppose anyone thought it would. Humans are difficult things and difference is terrifying. It takes more than two weeks of patriotism to chip at that.

It takes more than a few sound bites of ‘inspiration’ and desire for ‘change’ too. It requires not taking multiple deep, sweeping policy measures that actively makes things worse. And in doing so securing a sense that certain people – alien, needing, taking – deserve to have things no better. Perhaps that’s the problem. Perhaps, if there are crumbs out there of something close to progress, amidst the rising poverty and separation, it all just looks like regression.

I talk to Dame Anne Begg MP, the first full-time wheelchair user in the House of Commons, about the burst of positivity that came with the Games, and she immediately points to the way disabled people were spoken about. It’s funny how things change.

“The positive thing that came out the Paralympics was the use of language and just being around disabled people,” Anne says. “But the bad thing is that afterwards came a huge amount of negative language used, particularly when it came to benefits. There was a huge contrast.”  

In the end, the Paralympics actually helped build “a false impression of disability”, Anne fears – one where if certain disabled people can do great things, any disabled person can, and judgment of why they’re not soon follows. It’s fed by a Government that has taken to blurring the lines, be it between disability and sickness, or need and laziness.

“The Government equates disability and ill health. The two words are used as if they’re interchangeable, when of course they’re not,” Anne, also Chair of the Work and Pensions Select Committee, says. “A lot of disabled people are able to work. [But then you’ve got] the ‘scrounger’ agenda. It’s created a backlash against disabled people.”

London’s Paralympics was that rare event that’s both symbolic and real, something tangible and brief that contains within it almost an emotion that lasts. It seems predictable that the political class would pull on that, when it suits. The word that triggers a memory of equality and honesty, if we were being cynical, seems the perfect vehicle to mask the spread of inequality and myths.  

Dressed up in the bow of legacy, it’s starting to feel like what happened exactly a year ago this month not only hasn’t elevated disabled people, but is being used to trap.

“Esther McVey, the Minister for Disabled People, gushes at every opportunity that we must all build on the Paralympian legacy. But what does this mean?” Linda Burnip of the campaign group Disabled People Against Cuts, says. If it was about celebrating the rights and opportunities that enabled those Paralympians to shine, that would be one thing, she tells me. “But if it’s about the new corporatism of the welfare state and disability – the removal of equality, rights and opportunities from disabled people – we need to fight it with all our strength. Based on the evidence so far, fighting is our only option.”

‘The “evidence” is everywhere, if you want to see it. Most people, with at least a passing interest, will be aware of the list by now: abolishing Disability Living Allowance, time-limiting Employment and Support Allowance, closing the Independent Living Fund at the national level and slashing social care at the local level… And the ‘bedroom tax’, of course, much like the council tax changes; one of those cuts that doesn’t have disability in the title but happens to disproportionately hit the disabled. As if being disabled and being in poverty were somehow linked.

Disabled people have always been more likely to live in poverty than non-disabled people. More likely to be unemployed, not have an education, or to be isolated. No Government makes that happen, but in all the things they fail to do, they can allow it. Some Government’s, in the things they do, exacerbate it. Over the past year of benefit cuts, this Government’s ensured it.

Money is now being taken from the group that need it most. £28bn, in fact. This is what disadvantaging the disadvantaged looks like.

Anne McGuire, Shadow Minister for Disabled People, talks to me about the cycle this climate is creating: disabled people’s fear of “the cliff edge” of losing benefits, the negative media coverage that defines them as purely benefit recipients, the linking of disability as scroungers, and in turn the fear and reality “of harassment as a result” of such a focus.

“Over the past year, I’ve lost count of the number of disabled people who have told me that they feel as though they’ve gone back twenty years in terms of their quality of life,” she says.

You don’t need to have expected two weeks of sport to make things better for disabled people to feel the ache that in many ways, one year on, things are worse.

2013 has taught us that, contrary to popular belief, you can in fact put a price on dignity. It’s around how much it costs for a local authority to hire a PA to help someone to the toilet if they can’t get there themselves. Funding cuts mean these are calculations that are actually currently being made in this country.

I spoke to one disabled woman, who needs help with all aspects of daily living, who has just had her care package ‘re-assessed’ by Northampton council. She’s been told cuts mean she’ll have her support reduced by over 50 hours a week.

“I’ll be left isolated, housebound, at risk of malnutrition, and unsafe in my own home,” she tells me, under anonymity. “I’ll also be forced to wear incontinence pads at night instead of getting an on-call PA to help to go to the toilet.”

Under the proposed plans, she’s expected to manage on a care plan of three hours a day. That’s one hour to get up, half hour for lunch, half hour for dinner, and one hour for bed. She’ll get 9 hours ‘social hours’ a week, or more accurately, 9 hours to leave the house.  

Perhaps it seems quite normal for a disabled person to be shut in their home. Perhaps the action the Government has taken this year simply plays into the way enough people, and the structures they live within, think things should be. 

The big things join with the small things, after all, and the small things have always said ‘don’t ask for too much’. The step up to the restaurant, the dirty look, the public transport that it’s decided can run whilst excluding one part of the public… Or – as Tanni Grey-Thompson found on a train yet again last month – decides it can tell a certain sort of person it doesn’t need to provide a toilet. Taken apart, there is something telling about being used to watching your fluid intake when out because you know you live in a country where public places don’t have to meet your basic human needs.

“We don’t expect better service [than other people] and we all understand that it isn’t perfect,” Tanni tells me. “But we shouldn’t be treated like second class citizens.”  

“It can be the little things that wear you down,” she says. “How you get treated is so variable. It’s down to the person, not always the system (in the case of trains) and that’s what makes it so hard to sort out… you don’t always know what you’re fighting.”

If she was given the choice to change one thing between welfare cuts and the smaller things, Tanni isn’t sure what it would be. “Probably the low level discrimination,” she says. “I think this has a wider and continuing impact on the rest.”

It isn’t one thing that makes a person feel as if they’re a second class citizen in their own country. It isn’t one thing that makes them feel like they’ve gone back twenty years. The small things join with the big things, and for certain people, they’ve always made life a certain way. At this point, as that way of life for many is worsening still, two weeks last summer are starting to feel like a cruel tease. 

Britain's Paralympic Equestrian team after winning Team Gold in 2012. Photo: Getty

Frances Ryan is a journalist and political researcher. She writes regularly for the Guardian, New Statesman, and others on disability, feminism, and most areas of equality you throw at her. She has a doctorate in inequality in education. Her website is here.

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The World Cup you’ve never heard of, where the teams have no state

At the Conifa world cup – this year hosted by the Autonomous Republic of Abkhazia – ethnic groups, diaspora communities and disputed territories will battle for footballing glory.

Football's European Championship and the Olympics are set to dominate the back pages over the next few months. How will Team GB fare in Rio? Will the zika virus stop the tournament even going ahead? Will the WAGS prove to be a distraction for the Three Lions? And can Roy Hodgson guide England to a long-awaited trophy?

But before the sprinters are in their blocks or a ball has been kicked, there's a world cup taking place.

Only this world cup is, well, a bit different. There's no Brazil, no damaged metatarsals to speak of, and no Germany to break hearts in a penalty shootout.  There’s been no sign of football’s rotten underbelly rearing its head at this world cup either. No murmurs of the ugly corruption which has plagued Fifa in recent years. Nor any suggestion that handbags have been exchanged for hosting rights.

This biennial, unsung world cup is not being overseen by Fifa however, but rather by Conifa (Confederation of Independent Football Associations), the governing body for those nations discredited by Fifa. Among its member nations are ethnic groups, diaspora communities or disputed territories with varying degrees of autonomy. Due to their contested status, many of the nations are unable to gain recognition from Fifa. As a consequence they cannot compete in tournaments sanctioned by the best-known footballing governing body, and that’s where Conifa provides a raison d’être.

“We give a voice to the unheard”, says Conifa’s General Secretary, Sascha Düerkop, whose world cup kicks off in the Autonomous Republic of Abkhazia at the end of this week.

“We are proud to give our members a forum where they can put themselves on the map.

“From that we hope to give back in the long run and invest in the football infrastructure in our member nations to help them grow.”

The two week footballing celebration starts with an opening ceremony before Kurdistan and Székely Land kick off the tournament. It follows on from 2014’s maiden competition which saw The County of Nice avenging a group stage defeat to Ellan Vannin from the Isle of Man, to take the spoils in the final via a penalty shoot-out.  There were some blowout scores of note however, with South Ossetia smashing Darfur 20-0 and Kurdistan beating the Tamils 9-0 at the event which took place in Östersund, Sweden. Neither of the finalists will be returning to the tournament – throwing down the gauntlet to another twelve teams. 

This, the second Conifa world cup, is testament to the ever-expanding global footprint of the tournament. Abkhazia will welcome sides from four continents – including Western Armenia, the Chagos Islands, United Koreans in Japan and Somaliland.

Despite the “minor” status of the countries taking part, a smattering of professional talent lends credibility to the event. Panjab can call on the experience of ex-Accrington Stanley man Rikki Bains at the heart of their defence, and the coaching savoir-faire of former Tranmere star Reuben Hazell from the dugout. Morten Gamst Pedersen, who turned out for Blackburn Rovers over 300 times and was once a Norwegian international, will lead the Sapmi people. The hosts complete the list of teams to aiming to get their hands on silverware along with Padania, Northern Cyprus, and Raetia.

A quick glance down said list, and it’s hard to ignore the fact that most of the nations competing have strong political associations – be that through war, genocide, displacement or discrimination. The Chagos Islands is one such example. An archipelago in the Indian Ocean, Chagos’ indigenous population was uprooted by the British government in the 1960s to make way for one of the United States' most strategically important military bases – Diego Garcia.

Ever since, they've been campaigning for the right to return. Their side, based in Crawley, has crowdfunded the trip to the tournament. Yet most of its members have never stepped foot on the islands they call home, and which they will now represent. Kurdistan’s efforts to establish an independent state have been well-highlighted, even more so given the last few years of conflict in the Middle East. The hosts too, broke away from Georgia in the 1990s and depend on the financial clout of Russia to prop up their government.

Despite that, Düerkop insists that the event is one which focuses on action on the pitch rather than off it. 

“Many of the nations are politically interested, but we are non-political,” he says. 

“Some of our members are less well-known in the modern world. They have been forgotten, excluded from the global community or simply are ‘unpopular’ for their political positions.

“We are humanitarians and the sides play football to show their existence – nothing more, nothing less.”

The unknown and almost novel status of the tournament flatters to deceive as Conifa’s world cup boasts a broadcast deal, two large stadiums and a plush opening ceremony. Its aim in the long run, however, is to develop into a global competition, and one which is content to sit below Fifa.

“We are happy to be the second biggest football organisation,” admits Düerkop.

“In the future we hope to have women’s and youth tournaments as well as futsal and beach soccer.”

“Our aim is to advertise the beauty and uniqueness of each nation.”

“But the most important purpose is to give those nations that are not members of the global football community a home.”

George Weah, the first African winner of Fifa World Player of the Year award remarked how “football gives a suffering people joy”.

And after speaking to Düerkop there’s certainly a feeling that for those on the game’s periphery, Conifa’s world cup has an allure which offers a shared sense of belonging.

It certainly seems light years away from the glitz and glamour of WAGs and corruption scandals. And that's because it is.

But maybe in a small way, this little-known tournament might restore some of beauty lost by the once “beautiful game”.