"Stress and autism are words you can't define in Urdu or Punjabi"

Asian communities are being disproportionately affected by new rules on disability benefits and support.

Life is a never-ending struggle for Roxanna, who looks after disabled son Ahmed. Ahmed, 26, has been at home since his college course ended last year and he is not eligible for a day care centre.

"I have been left to care for my son, no one cares about him," says Roxanna, from Birmingham. "People think Ahmed is mad and that I am cursed. I am not able to work because I can’t leave Ahmed on his own. I only get carers' allowance, Ahmed’s DLA has been cut and he is now on the low rate.

“I am struggling to make ends meet."

This is the situation faced by many families in Britain. Campaign groups say the Asian community is being affected more by the controversial welfare cuts due to the language barrier, mainstream support services not reaching out to them, services not being culturally tailored, and the stigma that remains about disability.

And it could get worse. From October, thousands of disabled people who need to be reassessed for the new Personal Independence Payments (PIP) could have their benefits slashed.

Saghir Alam is a disabilities commissioner for the Equalities and Human Rights Commission. He says that many Asian families who look after a disabled child are suffering due to a lack of awareness about the help available: “Ethnic minority communities are disproportionately more affected by these cuts because they weren’t accessing these services before and some of these services don’t exist anymore. Sometimes they are not faith wise or culturally sensitive and don’t have the resources to do outreach work. A lot of organisations have got no funding as the budget from the local authority has gone down for project funding.

“I know of a parents group for disabled children in Yorkshire which started two years ago - it took nearly two years to get people on board. After one year they lost their funding.

“We need to sit down with community organisations, carers, parents, and ask them rather than [assume] that services are good.”

Other Asian groups that have lost their funding include EKTA Project, a group for the elderly in London that was created 26 years ago.

Alam’s role involves providing advice to councils and support services on how to engage with different communities. He believes that despite the success of last year’s Paralympic Games in London, it has not had a lasting legacy of changing attitudes towards disabilities: “In the mainstream, disabled people still face barriers. If you have multiple identities like race or faith, you face multiple disadvantages.

“There are still attitudes which are Victorian in the Asian community, so a social model has never been promoted. People don’t want to admit they have children with a disability because in society there is still a negative association with disability.”

Alam adds that some families are losing their benefits after going through assessments due to a language or cultural barrier.

The Work Capability Assessments sparked uproar last year as around 40 per cent of people successfully appealed the decision to deem them fit to work. The coalition government agreed for the Atos firm to carry out the assessments to cut £600 million in overpayments to people who no longer qualify for Employment Support Allowance.

Alam explains: “People may not come to town hall or council offices so you need to use community organisations. Families are too busy caring [for disabled relatives] to do that. I know one or two people who have mental health issues, and they lost their benefits and went to appeal. Stress and autism are words you can't define in Urdu or Punjabi. A lot of terms used in assessments sometimes do not translate.”

Another campaigner critical of mainstream services is Mandy Sanghera, a human rights activist and government adviser. "Many families are continuing to care for their family members because most services do not meet their child's needs, they are not specialised," she says. "Many carers are unaware of what services are out there for their child once they leave school we need better transition into adult services. Due to the cuts, we are pushing desperate families into crisis point. “ 

One disabled person that Sanghera has supported is Jeeta, who has multiple sclerosis and is in a wheelchair. Jeeta, 30, who lives with her parents in an area with no suitable ground floor housing, says: “I want my independence and I don’t want my mum to care for me, she is over protective because of my disability. [But] I don't know where to go for help.”

The extent of the crisis is echoed by Sabina Iqbal, chair and founder of Deaf Parenting UK:There is a higher prevalence of disability within the Asian Community due to inter-relational marriage within the family. Most of those families are unaware of the impact of the welfare changes due to [the] language barrier and do not have direct access to information through the media. Reaching out to those Asian families is not easy and is often [done] by the local worker who shares information via word of mouth.”

A spokesperson for the Department for Work and Pensions said Job Centre Plus and councils arrange to meet directly with people affected by going to their homes or arranging a meeting.

On PIP, he said messages are delivered via charities, councils and other stakeholders.

The 'Hardest Hit' march on May 11, 2011 in London, where thousands of disabled people marched against government cuts to benefits, disability living allowances and local services. Image: Getty
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Jeremy Corbyn will stay on the Labour leadership ballot paper, judge rules

Labour donor Michael Foster had challenged the decision at the High Court.

The High Court has ruled that Jeremy Corbyn should be allowed to automatically run again for Labour leader after the decision of the party's National Executive Committee was challenged. 

Corbyn declared it a "waste of time" and an attempt to overturn the right of Labour members to choose their leader.

The decision ends the hope of some anti-Corbyn Labour members that he could be excluded from the contest altogether.

The legal challenge had been brought by Michael Foster, a Labour donor and former parliamentary candidate, who maintained he was simply seeking the views of experts.

But when the experts spoke, it was in Corbyn's favour. 

The ruling said: "Accordingly, the Judge accepted that the decision of the NEC was correct and that Mr Corbyn was entitled to be a candidate in the forthcoming election without the need for nominations."

This judgement was "wholly unaffected by political considerations", it added. 

Corbyn said: "I welcome the decision by the High Court to respect the democracy of the Labour Party.

"This has been a waste of time and resources when our party should be focused on holding the government to account.

"There should have been no question of the right of half a million Labour party members to choose their own leader being overturned. If anything, the aim should be to expand the number of voters in this election. I hope all candidates and supporters will reject any attempt to prolong this process, and that we can now proceed with the election in a comradely and respectful manner."

Iain McNicol, general secretary of the Labour Party, said: “We are delighted that the Court has upheld the authority and decision of the National Executive Committee of the Labour Party. 

“We will continue with the leadership election as agreed by the NEC."

If Corbyn had been excluded, he would have had to seek the nomination of 51 MPs, which would have been difficult since just 40 voted against the no confidence motion in him. He would therefore have been effectively excluded from running. 

Owen Smith, the candidate backed by rebel MPs, told the BBC earlier he believed Corbyn should stay on the ballot paper. 

He said after the judgement: “I’m pleased the court has done the right thing and ruled that Jeremy should be on the ballot. This now puts to bed any questions about the process, so we can get on with discussing the issues that really matter."

The news was greeted with celebration by Corbyn supporters.