The transition from DLA to PIP will harm disabled claimants

Causes for concern from a care worker.

I am a care worker supporting disabled people to live independently within my community. Many of my service users claim disability benefit, and I am concerned that the new assessments for Personal Independence Payment (PIP), which has replaced Disability Living Allowance (DLA), will not only cause them unnecessary stress and anxiety but threaten the freedom and standard of living they are used to having - and have a right to have.

The assessment for PIP requires claimants to attend face-to-face consultations, unless they’re housebound or unable to travel for medical reasons. Dave* has multiple sclerosis. Although he is not technically “housebound” it would be an enormous task for him to attend a consultation because he is wheelchair bound and doesn’t have easy access to disabled-friendly transport. It would be mentally overwhelming too, because beneath the bravado of a bloke who used to run a building site, Dave like many other disabled people has suffered a huge loss of confidence. The prospect would cause him unnecessary distress and it would take days to recover from the mental and physical upheaval of having been. But practical obstacles and vulnerable states of mind do not count as excuses to avoid these consultations.

The new assessments also prioritise testimonies from GPs and specialists rather than those from families, carers and social workers. Whilst a doctor’s input is invaluable in proving what disability a claimant has, they are no more qualified to comment on how that disability affects the claimant on a daily basis outside of the doctor’s surgery or hospital. 

Jane* has Parkinson’s disease and a rare condition that causes jaw spasms and excessive dribbling. She sees a specialist twice a year who is “managing” her well - she receives treatment, of varying success rates, for her medical conditions. So her doctor could feasibly suggest that Jane copes alright at home. If this testimony is the extent of Jane’s supporting evidence then her assessment will be inaccurate and overlook the practical tasks she cannot complete and the social interactions she cannot have. Jane’s doctor doesn’t know she spends her days hunched over a bin of wet tissues, often crying, with a constant stream of saliva pouring from her mouth. Nor should they be expected to, because they do not live and work alongside her. Since PIP is supposed to improve disabled people’s “ability to participate in society”, assessors should surely be concerned with living socially as opposed to surviving medically. As it stands, the new assessment and its preoccupation with medical evidence will fail people like Jane.

Claimants will be regularly reassessed for PIP once they receive it to ensure their circumstances have not changed. Bizarrely this will even apply to permanently disabled people like Tony*, a paralysed stroke victim, and Sue* who has Multiple System Atrophy (MSA). Their condition will never improve but they will nonetheless have to endure routine reassessments causing unnecessary stress and disruption – lest they forget that it is not their right to have this support; it is their short term privilege which can be taken away at any time.

Indeed it will be taken away. People who have leased ‘motorbility’ cars using their DLA risk losing them because the ‘walking distance’ that decides your eligibility has been decreased from fifty metres to twenty. Lucy* has cerebral palsy but whilst she cannot walk fifty metres, she can struggle to walk twenty. She lives in a remote village, miles from amenities and relies on her car. The infrequent and unreliable bus service clashes with her shifts as a ‘blood bikes’ co-ordinator (a voluntary courier service for the NHS) and besides, she suffers terribly with travel sickness. If her car is taken, Lucy’s independence will be taken as well.

Lucy said to me last week “we talk about vulnerable disabled people, but my disability doesn’t make me vulnerable – this government does!” As PIP sweeps across the country, I fear she is right. My service users will face a lifetime of exhausting assessments or have the disability benefit safety net pulled from underneath them altogether, simply because our government has decided to move the goal posts closer together in a bid to reducing welfare spending.

We must raise awareness about the impact these PIP assessments will have on disabled people. The MS society has campaigned successfully for PIP assessors to allow for the fluctuating nature of multiple sclerosis, something they previously failed to consider. Parkinson’s UK has campaigned to postpone reassessments for current DLA claimants until October 2015, to allow time for an independent review on how PIP works for new claimants. More of us need to follow suit, and I for one wouldn’t be doing my job properly as a care worker if I didn’t speak out against these PIP assessments, and the harm they are likely to bring my service users.

*Some names have been altered to protect the identities of affected individuals.

A response from the Minister for Disabled People, Esther McVey, to this piece is published here 

The assessment for PIP requires claimants to attend face-to-face consultations, though many are not able. Photograph: Getty Images.
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This is no time for a coup against a successful Labour leader

Don't blame Jeremy Corbyn for the Labour Party's crisis.

"The people who are sovereign in our party are the members," said John McDonnell this morning. As the coup against Jeremy Corbyn gains pace, the Shadow Chancellor has been talking a lot of sense. "It is time for people to come together to work in the interest of the country," he told Peston on Sunday, while emphasising that people will quickly lose trust in politics altogether if this internal squabbling continues. 

The Tory party is in complete disarray. Just days ago, the first Tory leader in 23 years to win a majority for his party was forced to resign from Government after just over a year in charge. We have some form of caretaker Government. Those who led the Brexit campaign now have no idea what to do. 

It is disappointing that a handful of Labour parliamentarians have decided to join in with the disintegration of British politics.

The Labour Party had the opportunity to keep its head while all about it lost theirs. It could have positioned itself as a credible alternative to a broken Government and a Tory party in chaos. Instead we have been left with a pathetic attempt to overturn the democratic will of the membership. 

But this has been coming for some time. In my opinion it has very little to do with the ramifications of the referendum result. Jeremy Corbyn was asked to do two things throughout the campaign: first, get Labour voters to side with Remain, and second, get young people to do the same.

Nearly seven in ten Labour supporters backed Remain. Young voters supported Remain by a 4:1 margin. This is about much more than an allegedly half-hearted referendum performance.

The Parliamentary Labour Party has failed to come to terms with Jeremy Corbyn’s emphatic victory. In September of last year he was elected with 59.5 per cent of the vote, some 170,000 ahead of his closest rival. It is a fact worth repeating. If another Labour leadership election were to be called I would expect Jeremy Corbyn to win by a similar margin.

In the recent local elections Jeremy managed to increase Labour’s share of the national vote on the 2015 general election. They said he would lose every by-election. He has won them emphatically. Time and time again Jeremy has exceeded expectation while also having to deal with an embittered wing within his own party.

This is no time for a leadership coup. I am dumbfounded by the attempt to remove Jeremy. The only thing that will come out of this attempted coup is another leadership election that Jeremy will win. Those opposed to him will then find themselves back at square one. Such moves only hurt Labour’s electoral chances. Labour could be offering an ambitious plan to the country concerning our current relationship with Europe, if opponents of Jeremy Corbyn hadn't decided to drop a nuke on the party.

This is a crisis Jeremy should take no responsibility for. The "bitterites" will try and they will fail. Corbyn may face a crisis of confidence. But it's the handful of rebel Labour MPs that have forced the party into a crisis of existence.

Liam Young is a commentator for the IndependentNew Statesman, Mirror and others.