Bedding In: An interview with Liz Crow

In response to the coalition's benefits overhaul, Liz Crow is Bedding In.

Bedding In, the latest performance by artist-activist Liz Crow, has been created in response to the coalition’s attack on disability benefits. Over three days, Crow, who has a disabilty herself, will perform her “bed-life”: “I wear a public self that is energetic, dynamic and happening. I am also ill and spend much of life in bed,” says Crow. “The private self is neither beautiful nor grown up, it does not win friends or accolades, and I conceal it carefully.”

For forty minutes each day, viewers will be invited to approach the bed and engage Crow in “Bedside Conversations”, discussing the piece and its context. Here, Crow talks about disability hate crime, the role of art in social issues and the Paralympics' media coverage.

You ascribe a 50 per cent rise in disability hate crime to a propagandist campaign. Can you explain what you mean by that?

Over the past couple of years, and especially in the run up to the Paralympics, I’ve watched an extraordinarily divisive reporting of the benefits reforms in the press, particularly in the tabloids, across the political spectrum. They portray disabled people as inventing or exaggerating impairment, being too lazy to work and living lives of luxury at the taxpayer’s expense. They tell a story of disabled people as fraudsters and scroungers, in complete contradiction of the DWP’s own recorded fraud rate of 0.3 per cent. Alongside this press reporting, the reporting to police of disability hate crime has risen exponentially. Talking to other disabled people I know, many of us find we have become hyper-vigilant when out in public, and vast numbers have experienced disability-targeted aggression or worse. There’s been a rise in reported disability hate crime of 50 per cent and research from Glasgow Media Centre has at least partially attributed that to the fraudster/scrounger rhetoric. It’s a dangerous reporting in a time of austerity that encourages the general population erroneously to place blame on disabled people for the country’s financial woes.

What role can art play in politics and social issues?

Art can give glimpses into other people’s lives and broaden our view of the world. It can ask questions and present viewpoints not seen elsewhere. Artists are good at communicating, at raising difficult questions, and at exploring creative alternatives. Playful or provocative, it can make us see and think differently, make an emotional connection to audiences and go on working long after the piece is officially over. It can act as a provocation to spark a deeper debate about particular issues. We can only make change for the things we know about; for me, the most exciting art brings to light lives on the margins and invites the onlooker to become a part of creating change. In showing art in a range of settings, from galleries to schools, festivals to community settings, we can reach audiences who wouldn’t usually touch art, and audiences who wouldn’t usually touch politics, and take both by surprise.

Do you think participatory art such as Bedding In is a particularly effective means of engaging the public in social issues?

One of the things that Bedding In can do, which I haven’t much seen elsewhere is that it can portray the human story set within its broader social context. So the work is not just about me; I am symbolising the thousands of people who live a bed-life, but, particularly through the Bedside Conversations, I am able to enter into a dialogue with the public in a way that allows them to ask questions, relate it to their own lives and take it out beyond the gallery space. I could write about my bed-life, but there is something about playing it out in a public space that goes deeper to the heart of what that life means against the current backdrop of benefits reform. It is an opportunity to raise more challenging questions and to set the bed-life overtly within the present difficult political climate.

What do you hope would be the outcome of your performance?

I want to make a hidden group of thousands visible, but also to demonstrate that what others see as contradiction, as fraud, is simply the complexity of real life. For those of us with complicated, fluctuating and invisible impairments, the new benefits system has proved to be incapable of supporting us appropriately. The assessment process fails to measure these kinds of impairments and so we fall through the gaps. In doing so, we become even more invisible. My hope is that Bedding In will join a much larger conversation of disabled people, supporters, the Sparticus campaign, DPAC, Black Triangle, UK Uncut and others; that by using a wide range of approaches we can be much more effective in reaching many more people. My hope is that these voices combined will inform the public enough that their outrage will force a change in benefits reform towards a system that is more humane.

What do you make of the coverage of this year's Paralympics and its portrayal of those with disabilities?

The Paralympics was a strange, wild collision course for me, where the extremes of benefits and Paralympics reporting hit just as I make my way to my own benefits tribunal. It was exhilarating to see disabled athletes so completely and naturally at home in their bodies, and I think it shifted many people’s ideas of what disabled people can be, yet the experience was also bittersweet. Just as the athletes will struggle, away from the Olympic stadium, to live up to that ‘superhuman’ ideal, in the context of benefits reforms, the idea that “with determination” any disabled person (or non-disabled person!) could be superhuman has repercussions that are deadly serious. At the root of this is that we are measuring two very different groups of disabled people; the benefits classification system is based on a mechanical view of impairment that fits most athletes but which excludes those of us with chronic and fluctuating conditions, even though we are the most likely to be out of regular employment and in need of ESA.

What do you have planned next?

I’ll be taking another version of Bedding In to Salisbury in April (just as the replacement of DLA with PIP hits), this time occupying my bed round the clock for three days and broadcast on webcam.

Bedding In takes place at the Ipswich Art School Gallery as part of the SPILL Festival of Performance until 3 November.

Liz Crow in Bedding In.
Drew Angerer/Getty Images
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Donald Trump wants to terminate the Environmental Protection Agency - can he?

"Epa, Epa, Eeeepaaaaa" – Grampa Simpson.

 

There have been countless jokes about US President Donald Trump’s aversion to academic work, with many comparing him to an infant. The Daily Show created a browser extension aptly named “Make Trump Tweets Eight Again” that converts the font of Potus’ tweets to crayon scrawlings. Indeed, it is absurd that – even without the childish font – one particular bill that was introduced within the first month of Trump taking office looked just as puerile. Proposed by Matt Gaetz, a Republican who had been in Congress for barely a month, “H.R. 861” was only one sentence long:

“The Environmental Protection Agency shall terminate on December 31, 2018”.

If this seems like a stunt, that is because Gaetz is unlikely to actually achieve his stated aim. Drafting such a short bill without any co-sponsors – and leaving it to a novice Congressman to present – is hardly the best strategy to ensure a bill will pass. 

Still, Republicans' distrust for environmental protections is well-known - long-running cartoon show The Simpsons even did a send up of the Epa where the agency had its own private army. So what else makes H.R. 861 implausible?

Well, the 10-word-long statement neglects to address the fact that many federal environmental laws assume the existence of or defer to the Epa. In the event that the Epa was abolished, all of these laws – from the 1946 Atomic Energy Act to the 2016 Frank R. Lautenberg Chemical Safety for the 21st Century Act – would need to be amended. Preferably, a way of doing this would be included in the bill itself.

Additionally, for the bill to be accepted in the Senate there would have to be eight Democratic senators who agreed with its premise. This is an awkward demand when not even all Republicans back Trump. The man Trum appointed to the helm of the Epa, Scott Pruitt, is particularly divisive because of his long opposition to the agency. Republican Senator Susan Collins of Maine said that she was hostile to the appointment of a man who was “so manifestly opposed to the mission of the agency” that he had sued the Epa 14 times. Polls from 2016 and 2017 suggests that most Americans would be also be opposed to the agency’s termination.

But if Trump is incapable of entirely eliminating the Epa, he has other ways of rendering it futile. In January, Potus banned the Epa and National Park Services from “providing updates on social media or to reporters”, and this Friday, Trump plans to “switch off” the government’s largest citizen-linked data site – the Epa’s Open Data Web Service. This is vital not just for storing and displaying information on climate change, but also as an accessible way of civilians viewing details of local environmental changes – such as chemical spills. Given the administration’s recent announcement of his intention to repeal existing safeguards, such as those to stabilise the climate and protect the environment, defunding this public data tool is possibly an attempt to decrease awareness of Trump’s forthcoming actions.

There was also a recent update to the webpage of the Epa's Office of Science and Technology, which saw all references to “science-based” work removed, in favour of an emphasis on “national economically and technologically achievable standards”. 

Trump’s reshuffle of the Epa's priorities puts the onus on economic activity at the expense of public health and environmental safety. Pruitt, who is also eager to #MakeAmericaGreatAgain, spoke in an interview of his desire to “exit” the 2015 Paris Climate Agreement. He was led to this conclusion because of his belief that the agreement means “contracting our economy to serve and really satisfy Europe, and China, and India”.

 

Rather than outright closure of the Epa, its influence and funding are being leached away. H.R. 861 might be a subtle version of one of Potus’ Twitter taunts – empty and outrageous – but it is by no means the only way to drastically alter the Epa’s landscape. With Pruitt as Epa Administrator, the organisation may become a caricature of itself – as in The Simpsons Movie. Let us hope that the #resistance movements started by “Rogue” Epa and National Parks social media accounts are able to stave off the vultures until there is “Hope” once more.

 

Anjuli R. K. Shere is a 2016/17 Wellcome Scholar and science intern at the New Statesman

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