The Reason I Jump by Naoki Higashida: Autism from the inside

Naoki Higashida has written a sparkling collection of Q&As, reflections and stories which describes like with autism from a first-hand perspective.

The Reason I Jump
Naoki Higashida
Translated by K A Yoshida and David Mitchell
Sceptre, 192pp, £12.99
 
When we think of autism, we think of solitude – of the child who prefers to play alone, away from the hurly-burly of the rest of the class, or the adult who would rather not join in with everyone else this weekend, thanks all the same. Collectively, we have been trained by our understanding – or lack thereof – to think that leaving autistic people alone is for the best, that it is what they want.
 
In The Reason I Jump, Naoki Higashida shows us how wrong we are. Shows rather than tells, that is, for although Higashida is autistic and was only 13 years old when he produced this book, his words flow smoothly, with no hectoring quality to his tone. His frequent pleas for understanding and patience as he tries to answer such questions as “Why do people with autism talk so loudly and weirdly?” and “Why are your facial expressions so limited?” never cease to humble you as you read.
 
Part question-and-answer text and part short story, The Reason I Jump has been translated into English by the twice Booker-shortlisted author David Mitchell and his wife, K A Yoshida. The couple first came across it in the original Japanese and it offered them a crucial breakthrough in understanding what their autistic son was experiencing. As Mitchell writes in his introduction: “It felt, as if for the first time, our own son was talking to us about what was happening inside his head, through Naoki’s words.” Now, by translating it, they hope to share the insights it provides more widely.
 
Fictional representations of autism-like traits, such as in Mark Haddon’s The Curious Incident of the Dog in the Night-Time and Dustin Hoffman’s Oscar-winning turn in the 1988 film Rain Man, make us think we know what to expect when we encounter the real thing. But as Mitchell explained in a recent piece for the Guardian, the avalanche of articles and books on dealing with autism that he and his wife received from well-meaning friends and family when their son received his diagnosis only emphasised our collective ignorance. Most advice bears little relation to reality. How do you explain that your son has bruises on his head because he likes to bang it on the floor, hard, up to a dozen times a day? A wise therapist advised Mitchell to put a foot between his son’s head and the floor “so the impact is softened” but it took Higashida’s writing to help the frantic parents understand why their son felt compelled to hurt himself in this way.
 
Every page dismantles another preconception about autism. For a start, Higashida writes mainly in the plural – we need your help, we need your understanding – as if he is not alone but part of a great community of silent children around the world. He explains that it’s physically painful for him to hold back his “weird voice” (that loud, thick, overworked diction that autistic people sometimes use) because it feels “as if I’m strangling my own throat”. And the concept of time makes him anxious, because although he can see the hands on the clock move, he can’t feel the passing seconds rushing past him like the landscape does when he runs.
 
At first glance, the book can be read as a manual for autism and it is certainly helpful in that regard. We assume that autism is a disease of the interior – a mysterious malfunction that happens inside the sufferer’s head. Higashida, with what I imagine to be a wry smile on his lips, uses both his answers and his stories to show us yet again how wrong we are. He explains that trying to control his body is “like remote-controlling a faulty robot” and that every aspect of autism that affects his mind has a corollary in his physical existence. If you try, as you read, to link your mind to his as he describes his thoughts, you start to get little hints of what it must be like to have no sensation of where your legs and arms are attached or to have limbs that feel as if they are “a mermaid’s rubbery tail”. It isn’t pleasant.
 
Higashida’s language is precise and has a poetic quality that elevates it far beyond a self-help book for the parents of autistic children. His fictional stories, also included in this book, vary in length from a few lines to dozens of pages and are united by their beautiful simplicity. They all share a strong single theme, namely, that even if living is different and difficult, you can still find companionship and happiness. As he proves in his answer to the question implied by the book’s title – “Why do you jump?” – Higashida is grasping at something universal about the human mind: “When I’m jumping, it’s as if my feelings are going upwards to the sky. Really, my urge to be swallowed up by the sky is enough to make my heart quiver.”
 
Once you understand how Higashida managed to write this book, you lose your heart to him. It’s a slim little volume, but in order to write a single word he had to select and point to each character on an alphabet grid drawn on paper, while someone sat beside him transcribing the words he formed. His autism is such that dictation was out of the question and computers were too distracting. Every letter was painstakingly chosen and deliberately selected. With all the effort that has gone into putting these words before our eyes, it’s impossible still to think that autistic people prefer their loneliness. Higashida has shown us that they are just waiting for us to have the patience to listen to what they want to say.
Autism has been represented in fiction, but seldom has a first-hand account emerged. Photograph: Getty Images.

Caroline Crampton is head of podcasts at the New Statesman.

This article first appeared in the 22 July 2013 issue of the New Statesman, How to make a saint

Photo: Getty
Show Hide image

People are not prepared to see innovation at any price - we need to take care of our digital health

Correcting the course of technology in Britain does not need to mean taking backwards steps and becoming an anti-innovation zone.

As individuals, we have never been better connected. As a society, we are being driven further apart.

Doteveryone’s People Power and Technology report, released this week, found that half of the 2,500 British people we surveyed said the internet had made life a lot better for people like them - but only 12 per cent saw a very positive impact on society.

These findings won’t be news to most people living in Brexit Britain - or to anyone who’s been involved in a spat on Twitter. The fact that we’re constantly connected to our smartphones has not necessarily improved our communities or our understanding of one other, and the trails of data we’re leaving behind are not turning into closer social bonds.

Many of the positives we experience are for ourselves as individuals.

Lots of consumer tech puts simple self-sufficiency first - one-click to buy, swipe right to date - giving us a feeling of cosy isolation and making one little phone an everywhere. This powerful individualism is a feature of all of the big platforms - and even social networks like Facebook and Twitter, that are meant bring us together, do so in the context of personalised recommendations and algorithmically ordered timelines.

We are all the centre of our own digital worlds. So it is no surprise that when we do look up from our phones, we feel concerned about the impact on society. Our research findings articulate the dilemma we face: do we do the thing that is easiest for us, or the one that is better for society?

For instance, 78 per cent of people see the Internet as helping us to communicate better, but 68 per cent also feel it makes us less likely to speak to each other face-to-face. 69per cent think the internet helps businesses to sell their products and services, while 53 per cent think it forces local shops to compete against larger companies online.

It’s often hard to see the causality in these trade-offs. At what point does my online shopping tip my high street into decline? When do I notice that I’ve joined another WhatsApp group but haven’t said hello to my neighbour?

When given clear choices, the public was clear in its response.  

We asked how they would feel if an online retailer offered free one-day delivery for lower income families, but this resulted in local shops closing down - 69 per cent found this unacceptable. Or if their bank invested more in combating fraud and cyber crime, but closed their local branch - 61 per cent said it was unacceptable. Or if their council made savings by putting services online and cut council tax as a result, but some people would find it hard to access these services - 56 per cent found it unacceptable.

It seems people are not prepared to see innovation at any price - and not at the expense of their local communities. The poorest find these trade offs least acceptable.

Correcting the course of technology in Britain does not need to mean taking backwards steps and becoming an anti-innovation zone.

A clearer regulatory environment would support positive, responsible change that supports our society, not just the ambition of a few corporations.

Some clarity about our relationship with web services would be a good start. 60 per cent of people Doteveryone spoke to believed there should be an independent body they can turn to when things go wrong online; 89 per cent would like terms and conditions to be clearer, and 47% feel they have no choice but to sign up to services, even when they have concerns.

Technology regulation is complicated and fragmentary. Ofcom and the under-resourced Information Commissioner’s Office, provide some answers,but they are not sufficient to regulate the myriad effects of social media, let alone the changes that new technologies like self-driving cars will bring. There needs to be a revolution in government, but at present as consumers and citizens we can’t advocate for that. We need a body that represents us, listens to our concern and gives us a voice.

And the British public also needs to feel empowered, so we can all make better choices - adults and children alike need different kinds of understanding and capability to navigate the digital world. It is not about being able to code: it is about being able to cope.

Public Health England exists to protect and improve the nation’s health and well-being, and reduce health inequalities. Perhaps we need a digital equivalent, to protect and improve our digital health and well-being, and reduce digital inequalities.

As a society, we should not have to continually respond and adapt to the demands of the big corporations: we should also make demands of them - and we need confidence, a voice, and representation to begin to do that.

Rachel Coldicutt is chief executive of Doteveryone.