Shades of Anorexia: it is a mental illness, not a statement

An eating disorder made Lucy Britton "want to disappear". Here, she responds to Rachel Cusk's article on the "anorexic statement".

This is going to be a hard post to write but I’m so upset by Rachel Cusk's article on anorexia in the New Statesman, and the way in which it conveys eating disorders.  In her article, Cusk represents those who suffer from anorexia as attention seekers: people who wish to become highly visible. She also paints anorexia as a purely female phenomenon. At one point she goes so far as to describe an anorexic person as a “68lb tyrant” who seemingly demands someone must feed her as a means of controlling her support team.

I’ve suffered from remitting and relapsing eating disorders since I was 14 years old. A close family member also suffered from a severe eating disorder and almost died as a result. I do not recognise the descriptions provided by Cusk at all.

There are many reasons why people become ill with eating disorders. Sexual assault is one such cause. Many people wish to desexualise themselves and disappear. The last time I was ill two years ago followed a rape and subsequent period of severe ill-health, possibly aggravated by complications with Pelvic Inflammatory Disease. I felt out of control and vulnerable. Not eating was a secret. I did not wish for it to make me more visible. I wanted to disappear. I was not even scared of the thought of dying, highlighting the extent of my desire to just stop existing. It is true that not eating made me feel a sense of achievement.  I had controlled my body, rather than had that control taken away from me as I had experienced. It was fuelled by self-hatred rather than self-promotion as Cusk seems to imply. Palpitations, constantly feeling cold and light-headed, and the inability to sleep were simply the physical manifestations of the pain I felt emotionally.

I was hospitalised in a psychiatric unit. My attitude towards food was not one of calorie counting. I was scared of eating. Food petrified me. It was quite literally a phobia. They wanted me to drink something called Fortisip/ Fortijuice which are incredibly sweet calorie- and nutrition-laden supplement drinks. Because my mind was aware it was the alternative to food I couldn’t face letting it pass my lips. Even passing the dining hall filled me with panic, the smell disgusted me and made me feel nauseous. They wanted me to drink the food replacement drinks in front of them in my room. The idea of them watching me made the whole situation worse.

Eventually, after weeks of wrangling with my care team, my husband convinced them to allow me to drink them in my room alone. I was supposed to drink four bottles a day minimum. At most I managed to drink half a bottle three times a day, I believe this was the equivalent of 300 calories, and I cried after each one. Once they took me to the eating hall to try an apple. I wouldn’t enter until everyone else had left. It was just me and one nurse. The smell from the previous mealtime overwhelmed me. Before the plate with the apple was put in front of me my legs were shaking in uncontrollable terror. I managed with shaking hand to cut a slither of apple. This was the most contact I had had with food in weeks. The feel of it in my mouth was grainy, like sand or powder. After just a few seconds I broke down. I couldn’t go on. Not eating made me feel like a failure. This was not a tantrum, it was panic. It was not petulant or controlling behaviour. I did not demand attention, I deplored attention. It was the manifestation of a traumatised mind.

Of course my story is only one of many. There are numerous reasons why people suffer from eating disorders, and it is by no means gender-specific. The causes and the experiences are many and should not, as Cusk has attempted, be reduced and universalised. The real life experiences of people with eating disorders far exceed Cusk’s monolithic and seemingly psychoanalytical, and overtly poetic, descriptions. Many eating disorder sufferers cannot neatly be compartmentalised as only possessing a simple diagnosis. Categorisation can be anorexia nervosa, bullimia nervosa, binge eating disorder, or EDNOS (which means eating disorder not otherwise specified, this could be because the person with the ED suffers from both anorexia and bullimia symptoms or does not fulfill the weight criteria of the anorexia nervosa category). These shades of grey seem to become very lost in Cusk’s representation.

The Minnesota Experiment under controlled conditions studied the effects of malnutrion upon a group of 36 physically and psychologically healthy young men. It was found that many of the symptoms and behaviours which are associated with anorexia and/ or bullimia, such as a preoccupation with food, collecting recipes and a fixation with the eating habits of others; hoarding (which has been seen in anorexia patients); ritualistic behaviour around food (Cusk’s “feed me” springs to mind); bingeing; self-induced vomitting; feelings of guilt and shame; anger; and self-disgust inter alia were the result of malnutrition. Cusk’s poetic descriptions of anorexia may look pretty on the page, but clearly many of the behaviours she sees as resultant from a seemingly petulant, controlling and diva-like mind are infact the psychological symptoms of starvation.

Please do not believe Cusk’s thickly worded and damning descriptions of people with eating disorders. “We” are not one-size fits all. We are not all women. We are not all attention seekers and we do not wish to lash out and harm everyone around us. There are so many nuances it is impossible for Cusk or I to come up with a universal “Anorexia Statement”. Many people with anorexia aren’t trying to say anything at all. I had no message for the world. Anorexia is a mental illness not a “statement”.

For Lucy, even trying to eat an apple had her legs shaking in uncontrollable terror. Photo: By vauvau on Flickr, via Creative Commons
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Meet Anne Marie Waters - the Ukip politician too extreme for Nigel Farage

In January 2016, Waters launched Pegida UK with former EDL frontman Steven Yaxley-Lennon (aka Tommy Robinson). 

There are few people in British political life who can be attacked from the left by Nigel Farage. Yet that is where Anne Marie Waters has found herself. And by the end of September she could well be the new leader of Ukip, a party almost synonymous with its beer-swilling, chain-smoking former leader.

Waters’s political journey is a curious one. She started out on the political left, but like Oswald Mosley before her, has since veered dramatically to the right. That, however, is where the similarities end. Waters is Irish, agnostic, a lesbian and a self-proclaimed feminist.

But it is her politics – rather than who she is – that have caused a stir among Ukip’s old guard. Former leader Paul Nuttall has said that her views make him “uncomfortable” while Farage has claimed Ukip is “finished” if, under her leadership, it becomes an anti-Islam party.

In her rhetoric, Waters echoes groups such as the English Defence League (EDL) and Britain First. She has called Islam “evil” and her leadership manifesto claims that the religion has turned Britain into a “fearful and censorious society”. Waters wants the banning of the burqa, the closure of all sharia councils and a temporary freeze on all immigration.

She started life in Dublin before moving to Germany in her teens to work as an au pair. Waters also lived in the Netherlands before returning to Britain to study journalism at Nottingham Trent University, graduating in 2003. She subsequently gained a second degree in law. It was then, she says, that she first learnt about Islam, which she claims treats women “like absolute dirt”. Now 39, Waters is a full-time campaigner who lives in Essex with her two dogs and her partner who is an accountant.

Waters’s first spell of serious activism was with the campaign group One Law for All, a secularist organisation fronted by the Iranian feminist and human rights activist Maryam Namazie. Waters resigned in November 2013 after four years with the organisation. According to Namazie, Waters left due to political disagreements over whether the group should collaborate with members of far-right groups.

In April 2014, Waters founded Sharia Watch UK and, in January 2016, she launched Pegida UK with former EDL frontman Steven Yaxley-Lennon (aka Tommy Robinson). The group was established as a British chapter of the German-based organisation and was set up to counter what it called the “Islamisation of our countries”. By the summer of 2016, it had petered out.

Waters twice stood unsuccessfully to become a Labour parliamentary candidate. Today, she says she could not back Labour due to its “betrayal of women” and “betrayal of the country” over Islam. After joining Ukip in 2014, she first ran for political office in the Lambeth council election, where she finished in ninth place. At the 2015 general election, Waters stood as the party’s candidate in Lewisham East, finishing third with 9.1 per cent of the vote. She was chosen to stand again in the 2016 London Assembly elections but was deselected after her role in Pegida UK became public. Waters was also prevented from standing in Lewisham East at the 2017 general election after Ukip’s then-leader Nuttall publicly intervened.

The current favourite of the 11 candidates standing to succeed Nuttall is deputy leader Peter Whittle, with Waters in second. Some had hoped the party’s top brass would ban her from standing but last week its national executive approved her campaign.

Due to an expected low turnout, the leadership contest is unpredictable. Last November, Nuttall was elected with just 9,622 votes. More than 1,000 new members reportedly joined Ukip in a two-week period earlier this year, prompting fears of far-right entryism.

Mike Hookem MEP has resigned as Ukip’s deputy whip over Waters’ candidacy, saying he would not “turn a blind eye” to extremism. By contrast, chief whip, MEP Stuart Agnew, is a supporter and has likened her to Joan of Arc. Waters is also working closely on her campaign with Jack Buckby, a former BNP activist and one of the few candidates to run against Labour in the by-election for Jo Cox’s former seat of Batley and Spen. Robinson is another backer.

Peculiarly for someone running to be the leader of a party, Waters does not appear to relish public attention. “I’m not a limelight person,” she recently told the Times. “I don’t like being phoned all the time.”

The journalist Jamie Bartlett, who was invited to the initial launch of Pegida UK in Luton in 2015, said of Waters: “She failed to remember the date of the demo. Her head lolled, her words were slurred, and she appeared to almost fall asleep while Tommy [Robinson] was speaking. After 10 minutes it all ground to an uneasy halt.”

In an age when authenticity is everything, it would be a mistake to underestimate yet another unconventional politician. But perhaps British Muslims shouldn’t panic about Anne Marie Waters just yet.

James Bloodworth is editor of Left Foot Forward

This article first appeared in the 17 August 2017 issue of the New Statesman, Trump goes nuclear