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A year after the Paralympics, are things now getting worse for disabled people?

While we talk of "legacy", it’s starting to feel like what happened exactly a year ago this month not only hasn’t elevated disabled people, but is being used to trap.

Are you still patronised? I ask Sophie Christiansen, triple Gold medallist at London’s 2012 Paralympics, as we discuss how things are for disabled people in the country a year on. “All the time,” she says. “It’s a minority but yeah, that either talking really condescendingly or patronisingly.”

The last time was a couple of weeks ago, she says, when she gave a talk and in getting out of her wheelchair to move closer to the microphone, an audience member cried out “well done!” “You’ll laugh,” she smiles, “But it was at a [disability] conference.”

The pitying enthusiasm of the ignorant hasn’t noticeably lessened in the past year. The stares don’t go. The desire to avoid, as eyes switch to a nearby body – any nearby body – deemed normal, hasn’t gone either.

I don’t suppose anyone thought it would. Humans are difficult things and difference is terrifying. It takes more than two weeks of patriotism to chip at that.

It takes more than a few sound bites of ‘inspiration’ and desire for ‘change’ too. It requires not taking multiple deep, sweeping policy measures that actively makes things worse. And in doing so securing a sense that certain people – alien, needing, taking – deserve to have things no better. Perhaps that’s the problem. Perhaps, if there are crumbs out there of something close to progress, amidst the rising poverty and separation, it all just looks like regression.

I talk to Dame Anne Begg MP, the first full-time wheelchair user in the House of Commons, about the burst of positivity that came with the Games, and she immediately points to the way disabled people were spoken about. It’s funny how things change.

“The positive thing that came out the Paralympics was the use of language and just being around disabled people,” Anne says. “But the bad thing is that afterwards came a huge amount of negative language used, particularly when it came to benefits. There was a huge contrast.”  

In the end, the Paralympics actually helped build “a false impression of disability”, Anne fears – one where if certain disabled people can do great things, any disabled person can, and judgment of why they’re not soon follows. It’s fed by a Government that has taken to blurring the lines, be it between disability and sickness, or need and laziness.

“The Government equates disability and ill health. The two words are used as if they’re interchangeable, when of course they’re not,” Anne, also Chair of the Work and Pensions Select Committee, says. “A lot of disabled people are able to work. [But then you’ve got] the ‘scrounger’ agenda. It’s created a backlash against disabled people.”

London’s Paralympics was that rare event that’s both symbolic and real, something tangible and brief that contains within it almost an emotion that lasts. It seems predictable that the political class would pull on that, when it suits. The word that triggers a memory of equality and honesty, if we were being cynical, seems the perfect vehicle to mask the spread of inequality and myths.  

Dressed up in the bow of legacy, it’s starting to feel like what happened exactly a year ago this month not only hasn’t elevated disabled people, but is being used to trap.

“Esther McVey, the Minister for Disabled People, gushes at every opportunity that we must all build on the Paralympian legacy. But what does this mean?” Linda Burnip of the campaign group Disabled People Against Cuts, says. If it was about celebrating the rights and opportunities that enabled those Paralympians to shine, that would be one thing, she tells me. “But if it’s about the new corporatism of the welfare state and disability – the removal of equality, rights and opportunities from disabled people – we need to fight it with all our strength. Based on the evidence so far, fighting is our only option.”

‘The “evidence” is everywhere, if you want to see it. Most people, with at least a passing interest, will be aware of the list by now: abolishing Disability Living Allowance, time-limiting Employment and Support Allowance, closing the Independent Living Fund at the national level and slashing social care at the local level… And the ‘bedroom tax’, of course, much like the council tax changes; one of those cuts that doesn’t have disability in the title but happens to disproportionately hit the disabled. As if being disabled and being in poverty were somehow linked.

Disabled people have always been more likely to live in poverty than non-disabled people. More likely to be unemployed, not have an education, or to be isolated. No Government makes that happen, but in all the things they fail to do, they can allow it. Some Government’s, in the things they do, exacerbate it. Over the past year of benefit cuts, this Government’s ensured it.

Money is now being taken from the group that need it most. £28bn, in fact. This is what disadvantaging the disadvantaged looks like.

Anne McGuire, Shadow Minister for Disabled People, talks to me about the cycle this climate is creating: disabled people’s fear of “the cliff edge” of losing benefits, the negative media coverage that defines them as purely benefit recipients, the linking of disability as scroungers, and in turn the fear and reality “of harassment as a result” of such a focus.

“Over the past year, I’ve lost count of the number of disabled people who have told me that they feel as though they’ve gone back twenty years in terms of their quality of life,” she says.

You don’t need to have expected two weeks of sport to make things better for disabled people to feel the ache that in many ways, one year on, things are worse.

2013 has taught us that, contrary to popular belief, you can in fact put a price on dignity. It’s around how much it costs for a local authority to hire a PA to help someone to the toilet if they can’t get there themselves. Funding cuts mean these are calculations that are actually currently being made in this country.

I spoke to one disabled woman, who needs help with all aspects of daily living, who has just had her care package ‘re-assessed’ by Northampton council. She’s been told cuts mean she’ll have her support reduced by over 50 hours a week.

“I’ll be left isolated, housebound, at risk of malnutrition, and unsafe in my own home,” she tells me, under anonymity. “I’ll also be forced to wear incontinence pads at night instead of getting an on-call PA to help to go to the toilet.”

Under the proposed plans, she’s expected to manage on a care plan of three hours a day. That’s one hour to get up, half hour for lunch, half hour for dinner, and one hour for bed. She’ll get 9 hours ‘social hours’ a week, or more accurately, 9 hours to leave the house.  

Perhaps it seems quite normal for a disabled person to be shut in their home. Perhaps the action the Government has taken this year simply plays into the way enough people, and the structures they live within, think things should be. 

The big things join with the small things, after all, and the small things have always said ‘don’t ask for too much’. The step up to the restaurant, the dirty look, the public transport that it’s decided can run whilst excluding one part of the public… Or – as Tanni Grey-Thompson found on a train yet again last month – decides it can tell a certain sort of person it doesn’t need to provide a toilet. Taken apart, there is something telling about being used to watching your fluid intake when out because you know you live in a country where public places don’t have to meet your basic human needs.

“We don’t expect better service [than other people] and we all understand that it isn’t perfect,” Tanni tells me. “But we shouldn’t be treated like second class citizens.”  

“It can be the little things that wear you down,” she says. “How you get treated is so variable. It’s down to the person, not always the system (in the case of trains) and that’s what makes it so hard to sort out… you don’t always know what you’re fighting.”

If she was given the choice to change one thing between welfare cuts and the smaller things, Tanni isn’t sure what it would be. “Probably the low level discrimination,” she says. “I think this has a wider and continuing impact on the rest.”

It isn’t one thing that makes a person feel as if they’re a second class citizen in their own country. It isn’t one thing that makes them feel like they’ve gone back twenty years. The small things join with the big things, and for certain people, they’ve always made life a certain way. At this point, as that way of life for many is worsening still, two weeks last summer are starting to feel like a cruel tease. 

Frances Ryan is a journalist and political researcher. She writes regularly for the Guardian, New Statesman, and others on disability, feminism, and most areas of equality you throw at her. She has a doctorate in inequality in education. Her website is here.

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The decline of the north's sporting powerhouse

Yorkshire historically acted as a counterweight to the dominance of southern elites, in sport as in politics and culture. Now, things are different.

On a drive between Sheffield and Barnsley, I spotted a striking painting of the Kes poster. Billy Casper’s two-fingered salute covered the wall of a once-popular pub that is now boarded up.

It is almost 50 years since the late Barry Hines wrote A Kestrel for a Knave, the novel that inspired Ken Loach’s 1969 film, and it seems that the defiant, us-against-the-world, stick-it-to-the-man Yorkshireness he commemorated still resonates here. Almost two-thirds of the people of south Yorkshire voted to leave the EU, flicking two fingers up at what they saw as a London-based establishment, detached from life beyond the capital.

But whatever happened to Billy the unlikely lad, and the myriad other northern characters who were once the stars of stage and screen? Like the pitheads that dominated Casper’s tightly knit neighbourhood, they have disappeared from the landscape. The rot set in during the 1980s, when industries were destroyed and communities collapsed, a point eloquently made in Melvyn Bragg’s excellent radio series The Matter of the North.

Yorkshire historically acted as a counterweight to the dominance of southern elites, in sport as in politics and culture. Yet today, we rarely get to hear the voices of Barnsley, Sheffield, Doncaster and Rotherham. And the Yorkshire sporting powerhouse is no more – at least, not as we once knew it.

This should be a matter of national concern. The White Rose county is, after all, the home of the world’s oldest registered football club – Sheffield FC, formed in 1857 – and the first English team to win three successive League titles, Huddersfield Town, in the mid-1920s. Hull City are now Yorkshire’s lone representative in the Premier League.

Howard Wilkinson, the manager of Leeds United when they were crowned champions in 1992, the season before the Premier League was founded, lamented the passing of a less money-obsessed era. “My dad worked at Orgreave,” he said, “the scene of Mrs Thatcher’s greatest hour, bless her. You paid for putting an axe through what is a very strong culture of community and joint responsibility.”

The best-known scene in Loach’s film shows a football match in which Mr Sugden, the PE teacher, played by Brian Glover, comically assumes the role of Bobby Charlton. It was played out on the muddy school fields of Barnsley’s run-down Athersley estate. On a visit to his alma mater a few years ago, David Bradley, who played the scrawny 15-year-old Billy, showed me the goalposts that he had swung from as a reluctant goalkeeper. “You can still see the dint in the crossbar,” he said. When I spoke to him recently, Bradley enthused about his lifelong support for Barnsley FC. “But I’ve not been to the ground over the last season and a half,” he said. “I can’t afford it.”

Bradley is not alone. Many long-standing fans have been priced out. Barnsley is only a Championship side, but for their home encounter with Newcastle last October, their fans had to pay £30 for a ticket.

The English game is rooted in the northern, working-class communities that have borne the brunt of austerity over the past six years. The top leagues – like the EU – are perceived to be out of touch and skewed in favour of the moneyed elites.

Bradley, an ardent Remainer, despaired after the Brexit vote. “They did not know what they were doing. But I can understand why. There’s still a lot of neglect, a lot of deprivation in parts of Barnsley. They feel left behind because they have been left behind.”

It is true that there has been a feel-good factor in Yorkshire following the Rio Olympics; if the county were a country, it would have finished 17th in the international medals table. Yet while millions have been invested in “podium-level athletes”, in the team games that are most relevant to the lives of most Yorkshire folk – football, cricket and rugby league – there is a clear division between sport’s elites and its grass roots. While lucrative TV deals have enriched ruling bodies and top clubs, there has been a large decrease in the number of adults playing any sport in the four years since London staged the Games.

According to figures from Sport England, there are now 67,000 fewer people in Yorkshire involved in sport than there were in 2012. In Doncaster, to take a typical post-industrial White Rose town, there has been a 13 per cent drop in participation – compared with a 0.4 per cent decline nationally.

Attendances at rugby league, the region’s “national sport”, are falling. But cricket, in theory, is thriving, with Yorkshire winning the County Championship in 2014 and 2015. Yet Joe Root, the batsman and poster boy for this renaissance, plays far more games for his country than for his county and was rested from Yorkshire’s 2016 title decider against Middlesex.

“Root’s almost not a Yorkshire player nowadays,” said Stuart Rayner, whose book The War of the White Roses chronicles the club’s fortunes between 1968 and 1986. As a fan back then, I frequently watched Geoffrey Boycott and other local stars at Headingley. My favourite was the England bowler Chris Old, a gritty, defiant, unsung anti-hero in the Billy Casper mould.

When Old made his debut, 13 of the 17-strong Yorkshire squad were registered as working-class professionals. Half a century later, three of the five Yorkshiremen selec­ted for the last Ashes series – Root, Jonny Bairstow and Gary Ballance – were privately educated. “The game of cricket now is played in public schools,” Old told me. “Top players are getting huge amounts of money, but the grass-roots game doesn’t seem to have benefited in any way.”

“In ten years’ time you won’t get a Joe Root,” Rayner said. “If you haven’t seen these top Yorkshire cricketers playing in your backyard and you haven’t got Sky, it will be difficult to get the whole cricket bug. So where is the next generation of Roots going to come from?” Or the next generation of Jessica Ennis-Hills? Three years ago, the Sheffield stadium where she trained and first discovered athletics was closed after cuts to local services.

This article first appeared in the 19 January 2017 issue of the New Statesman, The Trump era