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A year after the Paralympics, are things now getting worse for disabled people?

While we talk of "legacy", it’s starting to feel like what happened exactly a year ago this month not only hasn’t elevated disabled people, but is being used to trap.

Are you still patronised? I ask Sophie Christiansen, triple Gold medallist at London’s 2012 Paralympics, as we discuss how things are for disabled people in the country a year on. “All the time,” she says. “It’s a minority but yeah, that either talking really condescendingly or patronisingly.”

The last time was a couple of weeks ago, she says, when she gave a talk and in getting out of her wheelchair to move closer to the microphone, an audience member cried out “well done!” “You’ll laugh,” she smiles, “But it was at a [disability] conference.”

The pitying enthusiasm of the ignorant hasn’t noticeably lessened in the past year. The stares don’t go. The desire to avoid, as eyes switch to a nearby body – any nearby body – deemed normal, hasn’t gone either.

I don’t suppose anyone thought it would. Humans are difficult things and difference is terrifying. It takes more than two weeks of patriotism to chip at that.

It takes more than a few sound bites of ‘inspiration’ and desire for ‘change’ too. It requires not taking multiple deep, sweeping policy measures that actively makes things worse. And in doing so securing a sense that certain people – alien, needing, taking – deserve to have things no better. Perhaps that’s the problem. Perhaps, if there are crumbs out there of something close to progress, amidst the rising poverty and separation, it all just looks like regression.

I talk to Dame Anne Begg MP, the first full-time wheelchair user in the House of Commons, about the burst of positivity that came with the Games, and she immediately points to the way disabled people were spoken about. It’s funny how things change.

“The positive thing that came out the Paralympics was the use of language and just being around disabled people,” Anne says. “But the bad thing is that afterwards came a huge amount of negative language used, particularly when it came to benefits. There was a huge contrast.”  

In the end, the Paralympics actually helped build “a false impression of disability”, Anne fears – one where if certain disabled people can do great things, any disabled person can, and judgment of why they’re not soon follows. It’s fed by a Government that has taken to blurring the lines, be it between disability and sickness, or need and laziness.

“The Government equates disability and ill health. The two words are used as if they’re interchangeable, when of course they’re not,” Anne, also Chair of the Work and Pensions Select Committee, says. “A lot of disabled people are able to work. [But then you’ve got] the ‘scrounger’ agenda. It’s created a backlash against disabled people.”

London’s Paralympics was that rare event that’s both symbolic and real, something tangible and brief that contains within it almost an emotion that lasts. It seems predictable that the political class would pull on that, when it suits. The word that triggers a memory of equality and honesty, if we were being cynical, seems the perfect vehicle to mask the spread of inequality and myths.  

Dressed up in the bow of legacy, it’s starting to feel like what happened exactly a year ago this month not only hasn’t elevated disabled people, but is being used to trap.

“Esther McVey, the Minister for Disabled People, gushes at every opportunity that we must all build on the Paralympian legacy. But what does this mean?” Linda Burnip of the campaign group Disabled People Against Cuts, says. If it was about celebrating the rights and opportunities that enabled those Paralympians to shine, that would be one thing, she tells me. “But if it’s about the new corporatism of the welfare state and disability – the removal of equality, rights and opportunities from disabled people – we need to fight it with all our strength. Based on the evidence so far, fighting is our only option.”

‘The “evidence” is everywhere, if you want to see it. Most people, with at least a passing interest, will be aware of the list by now: abolishing Disability Living Allowance, time-limiting Employment and Support Allowance, closing the Independent Living Fund at the national level and slashing social care at the local level… And the ‘bedroom tax’, of course, much like the council tax changes; one of those cuts that doesn’t have disability in the title but happens to disproportionately hit the disabled. As if being disabled and being in poverty were somehow linked.

Disabled people have always been more likely to live in poverty than non-disabled people. More likely to be unemployed, not have an education, or to be isolated. No Government makes that happen, but in all the things they fail to do, they can allow it. Some Government’s, in the things they do, exacerbate it. Over the past year of benefit cuts, this Government’s ensured it.

Money is now being taken from the group that need it most. £28bn, in fact. This is what disadvantaging the disadvantaged looks like.

Anne McGuire, Shadow Minister for Disabled People, talks to me about the cycle this climate is creating: disabled people’s fear of “the cliff edge” of losing benefits, the negative media coverage that defines them as purely benefit recipients, the linking of disability as scroungers, and in turn the fear and reality “of harassment as a result” of such a focus.

“Over the past year, I’ve lost count of the number of disabled people who have told me that they feel as though they’ve gone back twenty years in terms of their quality of life,” she says.

You don’t need to have expected two weeks of sport to make things better for disabled people to feel the ache that in many ways, one year on, things are worse.

2013 has taught us that, contrary to popular belief, you can in fact put a price on dignity. It’s around how much it costs for a local authority to hire a PA to help someone to the toilet if they can’t get there themselves. Funding cuts mean these are calculations that are actually currently being made in this country.

I spoke to one disabled woman, who needs help with all aspects of daily living, who has just had her care package ‘re-assessed’ by Northampton council. She’s been told cuts mean she’ll have her support reduced by over 50 hours a week.

“I’ll be left isolated, housebound, at risk of malnutrition, and unsafe in my own home,” she tells me, under anonymity. “I’ll also be forced to wear incontinence pads at night instead of getting an on-call PA to help to go to the toilet.”

Under the proposed plans, she’s expected to manage on a care plan of three hours a day. That’s one hour to get up, half hour for lunch, half hour for dinner, and one hour for bed. She’ll get 9 hours ‘social hours’ a week, or more accurately, 9 hours to leave the house.  

Perhaps it seems quite normal for a disabled person to be shut in their home. Perhaps the action the Government has taken this year simply plays into the way enough people, and the structures they live within, think things should be. 

The big things join with the small things, after all, and the small things have always said ‘don’t ask for too much’. The step up to the restaurant, the dirty look, the public transport that it’s decided can run whilst excluding one part of the public… Or – as Tanni Grey-Thompson found on a train yet again last month – decides it can tell a certain sort of person it doesn’t need to provide a toilet. Taken apart, there is something telling about being used to watching your fluid intake when out because you know you live in a country where public places don’t have to meet your basic human needs.

“We don’t expect better service [than other people] and we all understand that it isn’t perfect,” Tanni tells me. “But we shouldn’t be treated like second class citizens.”  

“It can be the little things that wear you down,” she says. “How you get treated is so variable. It’s down to the person, not always the system (in the case of trains) and that’s what makes it so hard to sort out… you don’t always know what you’re fighting.”

If she was given the choice to change one thing between welfare cuts and the smaller things, Tanni isn’t sure what it would be. “Probably the low level discrimination,” she says. “I think this has a wider and continuing impact on the rest.”

It isn’t one thing that makes a person feel as if they’re a second class citizen in their own country. It isn’t one thing that makes them feel like they’ve gone back twenty years. The small things join with the big things, and for certain people, they’ve always made life a certain way. At this point, as that way of life for many is worsening still, two weeks last summer are starting to feel like a cruel tease. 

Frances Ryan is a journalist and political researcher. She writes regularly for the Guardian, New Statesman, and others on disability, feminism, and most areas of equality you throw at her. She has a doctorate in inequality in education. Her website is here.

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Jess Phillips's Diary: Lazy attacks on “lazy MPs”, and how to tackle the trolls

The Labour MP for Birmingham Yardley takes us through her week.

As parliament kicked us out for the conference recess season on 14 September, several tabloids run the predictable story: “MPs go back on holiday today only NINE days after returning to parliament from a six-week summer break.” I imagine the journalist who churns it out hates doing the same tired “all MPs are lazy baddies” shtick as much as we hate having to rebut the nonsense idea that we are on holiday when we are working full-time in our constituencies.

Legislation is on holiday, not legislators. I have still yet to find an MP who thinks it reasonable that parliament shuts for three weeks for conference season. Why can we not have these conferences at the weekend? Or during the summer recess? Hell, why do we have to have them so regularly at all?

Is the nation screaming out for the politically minded to spend hundreds of pounds sleeping on the floor of an overcrowded Airbnb in a seaside town after a heavy night on warm wine and small food? I’ll wager that you cannot find me a person on the Clapham omnibus – or frankly any omnibus, whatever an omnibus even is – who thinks we should have a week off making laws so that the Lib Dems can do karaoke.

Her Maj

As well as time off for conference, it seems that the Tories will be scurrying home early every Wednesday as well. They appear to be on strike from voting on any opposition day motions as their governing partners, Northern Ireland’s Democratic Unionist Party, play fast and loose with their allegiances. (The DUP backed a Labour motion against raising tuition fees, which the government says is non-binding.)

I and other Labour MPs sat in parliament and watched ministerial cars speed off on 13 September as the whips told the great and good to go home. Her Majesty’s Most Loyal Opposition is a pretty important part of our democracy. If I were Her Maj I might be more than a little peeved that Mrs May cannot be arsed to turn up to fight for what she believes in, whatever that is. Presumably whatever Boris Johnson and his gang say it is this week.

Leave the kids alone

I spent the weekend at a local Labour Party fundraiser, at my surgery, and handing out certificates to hundreds of young people graduating from the National Citizen Service. I sat in front of a lively, wildly diverse group of young people and thought we should hand over managing geopolitics to them for a while. Even the naughty kid at the back (whom I had to scold) gave me more faith than what I see on the news.

Family life

At a debate about the abuse of MPs, the traditional Tory colonel Bob Stewart told the house that his son had been targeted and isolated by his schoolteacher because his father was a Conservative MP.

Now, I’ve had my run-in ins with the colonel in the past, but I was horrified by this – one of my sons is the same age as his. As a parent and an MP I dread the idea that my choices will cause my sons’ grief. I’ve got enough guilt about leaving them half the week without their being targeted and bullied. I once found my son and his mates watching videos about me on YouTube that had been made by men’s rights activists. The vicious content was unsettling enough, but the thought of his teacher joining in the hate is harrowing (and, I’m pleased to say, completely unthinkable at his school). Our families are conscripts to this life – some are conscientious objectors.

Troll detection

So, should we ban internet trolls who abuse MPs online from voting? This is the suggestion floated by the Electoral Commission. I can see the argument for trying to make people treat the electoral system with respect. I also think we have got to have a hard line and a punishment. I’m just not sure how we will decide what is abuse. People say sexist stuff to me all the time. Would a negative comment about my appearance count, or are we talking rape and death threats? (What a time to be alive, when I can give a traffic light system to my sexist online abuse.) To some, the idea of having your vote taken away would only provoke a shrug; but to me it seems too much.

Climb every mountain

I have nearly finished More in Common by my friend Brendan Cox. It is about his late wife, my friend Jo, and is brilliant, but I dip in and out because I want it to last. Reading it makes me feel so tired: maybe because I read it in bed, but also because Jo’s energy and adventures seem exhausting. I like mountains on a screen saver, but I wouldn’t climb one, especially not with a tropical disease or a baby in my belly.

I’m also exhausted because of the ridiculous late nights we seem to be adopting in parliament. Jo’s distaste for the silly hours is covered in the book. She couldn’t understand why we couldn’t start earlier than 11.30am and finish in time for people to see their kids. As I put down the story of her life (and, my god, what a life) I’ll gladly trek for her to the seemingly impassable peak of reforming the voting hours in parliament. 

This article first appeared in the 21 September 2017 issue of the New Statesman, The revenge of the left