The would-be mum of twins carried by a surrogate has “rejected” one of the babies because it was born with a disability, the Telegraph reported today. The non-disabled boy was adopted as planned but his disabled twin sister, who has a severe muscular condition, has stayed with her birth mother after the adopting-mum refused to take her. (It’s unclear what the would-be father has done in all this. He either was never involved or the reporting has chosen to put responsibility solely on the woman.)
“She'd be a fucking dribbling cabbage! Who would want to adopt her?” the prospective mum allegedly told the surrogate; both of them British. “No one would want to adopt a disabled child'.”
Well, quite. I enjoy a bit of casual judgement as much as the next person and this woman seems a suitably terrible (wonderful) candidate. “A fucking dribbling cabbage.” Find her, bring back the stocks, and see how she likes scraps of cabbage as they’re thrown at her (probably hard) face.
Today’s is the latest in a growing line of “Won’t someone think of the disabled children?” stories – each depressing and tragic and greeted with customary indignation. The case of “Baby Gammy”, who was left with his Thai surrogate mother by an Australian couple because he had Down's Syndrome, gained international coverage. Even Richard Dawkins has got involved with his “best abort a foetus with Down's Syndrome and try again” tweets last week. Abort, don’t abort. Adopt, don’t adopt. It’s difficult to keep track of just what exactly women should be doing when they find out their child will be disabled, but the media and the public’s role is very clear: pass judgment whilst offering no constructive help whatsoever.
Women, as ever, are the ones on the receiving end of this judgement. The men – or 50 per cent of the genetic material – are presumably mute and locked in a cupboard somewhere. Women are who nature left to grow the child and whom society has chosen, long after nine months, to take the cultural brunt of them. We’re also largely the ones left to take on 24/7 caring responsibilities – an impact particularly heavy when the child has a disability. Almost three quarters of mums with disabled children are forced to give up their careers, or at best limit them, due to lack of affordable or suitable childcare for disabled children. (Families with disabled children pay eight times more towards childcare costs than parents of non-disabled children.)
What are we doing for them? Other than offering judgement or praise, I mean – which, as yet, hasn’t been proven to care for a screaming child at 3am or pay the electricity bill.
As a country, we’re doing really well at hurting them. One in seven families with disabled children are going without meals and one in six can’t afford to heat their homes. For those where parents aren’t in work because of their caring responsibilities, things are inevitably even worse. This was before the full impact of benefit cuts hit. (Guess what things are like now.)
The social security and tax changes have had more of a negative effect on families that include at least one disabled person, particularly a child (and especially for those with already low-incomes). Poor families that have a disabled child – or adult – have lost what’s estimated to be five times as much proportionally as better-off non-disabled families. Let’s say that again. Our government’s response to the difficulty of raising a disabled child, particularly with low-income, has been to make it more difficult. It’s funny how little we hear about that. It’s as if headlines about lazy adoptive mothers are easier to get our moral heads around.
Stories like “Baby Gammy” or the British surrogate are welcome distractions from the bigger, deeper problems of parents and disabled children. They let us simultaneously cast judgement on a woman’s reproductive choices whilst convincing ourselves her individual prejudice and selfishness is in such contrast to the rest of society. Failing to look after a child with a disability? What kind of monster would do that? Our government – and the cash strapped councils sitting in every part of this country.
Almost two thirds of English local authorities had reduced their expenditure on short breaks for families with a disabled child after two years of coalition government, according to disability charity Mencap (pdf). Play services to youth clubs, babysitters, overnight care and residential stays are disappearing – cast out as not a “legal necessity” and therefore just more luxuries we can do without.
Perhaps we could ask the parents currently looking after their disabled children if a bit of help is a luxury – if they have the money to drive to the next hospital appointment, the energy for getting up tonight without a break. I would but I’m busy finding old veg to throw at the latest useless adoptive mother.