The Care Bill presents a once-in-a-lifetime opportunity for disabled rights

The Care Bill returns to the House of Lords this week. The Government has put down some welcome changes. But political leaders have to be visionary, be bold and think beyond the next election. So do councils – and so, too, do organisations like Scope.

Here’s why social care is so important. Disabled people want to live independently. Sometimes they need support to do so. That could be a personal assistant to help them get up, get washed and dressed. In 2013, I think most people would agree that this support should be in place. But independent living also means disabled people having a say in where they live, who they live with and how they go about their day. This means not being forced to get up the same time every day, eat at the same time every day and go to bed at the same time every day. Again, in 2013, I think most people would back that aspiration. Unfortunately, this doesn’t reflect the reality of many disabled people’s lives.

Take Martyn Sibley, a young disabled internet entrepreneur. He runs Disability Horizons and has just trekked from John o' Groats to Lands’ End in his electric wheelchair. He also still has to argue with his social worker about getting support to go to the toilet. This is unacceptable.

During party conferences Nick Clegg talked-up capping care costs; Ed Miliband backed whole person care and Jeremy Hunt championed integration of health and social care. In the summer the Chancellor found £3.8bn in June’s spending review to start to tackle the crisis.

The Care Bill returns to the House of Lords this week. It’s a once-in-a-lifetime opportunity to reform the care system. The Government has put down some welcome changes. But political leaders have to be visionary, be bold and think beyond the next election. So do councils – and so, too, do organisations like Scope.

I’m Chair of the Care and Support Alliance, a coalition of 75 organisations working together to improve the social care system in this country, so I know how important these issues are for older people, their carers as well. At the moment, there are two fundamental problems.

First, the London School of Economics estimates that 69,000 disabled people who need support to live independently don’t get it. Cash-strapped councils have been upping the bar for eligibility, with 83% of councils now setting the threshold at a higher level than they once did. Under the Government’s plans, all councils could set eligibility at the higher level. Experts say this will leave 105,000 disabled people outside of the system altogether. The Care Bill gives political leaders the chance to be take bold steps to reform the system.

The second problem is that even if you’re lucky enough to be in the system, it can be a struggle to get support that genuinely promotes independent living. In one recent survey, 40% of disabled people said that local care doesn’t meet basic needs like getting up, getting washed and dressed and getting out of the house.

Getting social care reform right will provide the groundwork. But councils need to place independent living at the heart of commissioning. Every disabled people should have a say in what support they receive, and how, when and where they receive it. Meanwhile, organisations like ours can’t just shout from the sidelines. We have to work together to show what’s possible. This means looking to the future, piloting and testing new ways of working, and making tough decisions about the services we provide.

As an example from our own organisation, Scope runs care homes. Our staff do a great job, but many were opened in the 70s, aren’t located in the heart of the community, and are simply not set up to offer disabled people enough choice and control in the 21st century. In the last five years, Scope has changed or closed ten of these services; last year, we decided to review all of our residential services for disabled adults because of these concerns. We’re now proposing to change or close more over the next three years. This will always be done in consultation with those most affected: disabled people who use them, their families and our staff, and we’ll always do our best to support all of those involved. But if we want to give disabled people the same say over where they live and how they live as everyone else, change is unavoidable.

I believe we can build a society where disabled people can genuinely live independently, but we have to think big. That starts this week with the Care Bill.

Will the Government put their money where their mouth is? Image: Getty

Richard Hawkes is chief executive of the disability charity Scope.

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The public like radical policies, but they aren't so keen on radical politicians

Around the world, support for genuinely revolutionary ideas is strong, but in the UK at least, there's less enthusiasm for the people promising them.

You’re probably a getting a little bored of the litany of talking head statistics: trust in elected officials, parliament, the justice system and even democracy itself has been falling steadily for years and is at record lows. Maybe you’ve seen that graph that shows how people born after 1980 are significantly less likely than those born in 1960 to think that living in a democracy is ‘essential’. You’ve possibly heard of the ‘Pasokification’ of the centre-left, so-named the collapse of the once dominant Greek social democratic party Pasok, a technique being aggressively pursued by other centre-left parties in Europe to great effect.    

And so, goes the logic, there is a great appetite for something different, something new. It’s true! The space into which Trump et al barged leaves plenty of room for others: Beppe Grillo in Italy, Spanish Podemos, Bernie Sanders, Jean Luc Melanchon, and many more to come.

In my new book Radicals I followed movements and ideas that in many cases make someone like Jeremy Corbyn seem positively pedestrian: people who want to dismantle the nation state entirely, use technology to live forever, go off grid. All these ideas are finding fertile ground with the frustrated, disillusioned, and idealistic. The challenges of coming down the line – forces of climate change, technological change, fiscal crunch, mass movements of people – will demand new types of political ideas. Radical, outsider thinking is back, and this does, in theory at least, offer a chink of light for Corbyn’s Labour.

Polling last week found pretty surprising levels of support for many of his ideas. A big tax on high earners, nationalising the railways, banning zero hours contracts and upping the minimum wage are all popular. Support for renewable energy is at an all-time high. According to a recent YouGov poll, Brits actually prefer socialism to capitalism, a sentiment most strongly held among younger people.

There are others ideas too, which Corbyn is probably less likely to go for. Stopping benefits entirely for people who refuse to accept an offer of employment is hugely popular, and in one recent poll over half of respondents would be happy with a total ban on all immigration for the next two years. Around half the public now consistently want marijuana legalised, a number that will surely swell as US states with licenced pot vendors start showing off their dazzling tax returns.

The BNP effect used to refer to the problem the far-right had with selling their ideas. Some of their policies were extremely popular with the public, until associated with the BNP. It seems as though the same problem is now afflicting the Labour brand. It’s not the radical ideas – there is now a genuine appetite for those who think differently – that’s the problem, it’s the person who’s tasked with delivering them, and not enough people think Corbyn can or should. The ideal politician for the UK today is quite possibly someone who is bold enough to have genuinely radical proposals and ideas, and yet appears extremely moderate, sensible and centrist in character and temperament. Perhaps some blend of Blair and Corbyn. Sounds like an oxymoron doesn’t it? But this is politics, 2017. Anything is possible.

Jamie Bartlett is the head of the Violence and Extremism Programme and the Centre for the Analysis of Social Media at Demos.

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