The coalition's support fund won't protect the disabled from the bedroom tax

The £30m fund promised by David Cameron will cover just £2.71 of the £14-a-week loss in housing benefit facing disabled claimants.

By far the most troubling aspect of the "bedroom tax", which comes into effect on 1 April, is the impact it will have on the disabled. The policy, which will see housing benefit reduced by 14 per cent for those deemed to have one spare room and by 25 per cent for those with two or more, currently takes no account of those families for whom this additional space is not a luxury but a necessity. For instance, a disabled person who suffers from disrupted sleep may be unable to share a room with their partner, likewise a disabled child with their brothers and sisters. The same applies to those recovering from an illness or an operation.

While those disabled tenants who receive overnight care from a non-residential carer will not be charged for an extra room, those who live with their carer (such as a family member) will have their housing benefit reduced. Of the 660,000 social housing tenants that will be affected, the DWP estimates that 420,000 are disabled. From April, they will be forced to pay an average of £14 a week more in rent or an extra £728 a year. As a result, many face the unpalatable choice of either falling into arrears or downsizing to a property unsuitable for their needs.

When challenged to defend the decision not to exempt the disabled from the measure, David Cameron has insisted that the most vulnerable tenants will be protected by the £50m Discretionary Housing Payments (DHP) fund. At last week's PMQs, he said:

This government always puts disabled people first and that is why we have protected disabled benefits. Specifically on the issue that he raises, there is the £50m fund to support people affected by the under-occupancy measure.

But new research published today by the National Housing Federation shows just how inadequate this support is. First, of the £50m referred to by Cameron, £20m comes from general DHP funding, which must cover a wide range of claimants struggling to pay their rent, not just those hit by the bedroom tax. Second, were the remaining £30m to be distributed equally among every claimant of Disability Living Allowance affected (229,803 in total), they would each receive just £2.51 per week, compared to the average weekly loss in housing benefit of £14. With the fund also intended to support foster families, whose children are not counted as part of the household for benefit purposes, the disabled may not even receive this paltry amount.

In a recent letter to George Osborne calling for the disabled to be exempt from the cut, the heads of seven charities, including Carers UK, Mencap and Macmillan Cancer support, cited two typical cases (see Frances Ryan's recent NS post for others).

Jean and Carl live in a two bedroom house. Carl has suffered from serious health complications for years and is now unable to work as a result of a series of operations and treatment. Jean juggles caring for her husband with a job at a local supermarket. They are unable to share a room because Carl’s condition causes very disrupted sleep and if they share Jean cannot sleep. Her shifts at work mean she frequently has to be up at 4am and she would simply be unable to do this if she could not get a good night’s sleep. They fear they will not be able to make up the shortfall in their Housing Benefit and if forced to downsize Jean is worried about her ability to do her job if she is unable to sleep properly (names changed to preserve anonymity).
Jodie has two sons Kian, aged eight and Ashton, aged seven who has Down’s Syndrome and Autism. Ashton does not sleep. He wakes through out the night and head butts the wall. Jodie has to get up and calm him several times a night. Jodie was going to be housed in a two bed house, but the social worker and the family doctor said that they needed an extra room, because of Ashton’s care needs. Ashton at times has difficult behaviour and Kian needs his own space for his health and wellbeing and for his performance at school.
It these personal stories that Labour believes could turn public opinion against the government on welfare reform. Shadow work and pensions minister Liam Byrne will launch a new party campaign against the bedroom tax in Hull today, where 4,700 tenants will be affected by the policy but where there are just 73 one and two bedroom properties available to let. Unsurprisingly, Byrne will remind voters that five days after the bedroom tax is introduced, the government will reduce the top rate of income tax from 50p to 45p, benefiting 8,000 millionaires by an average of £107,500 a year (see the recently-launched "Tory Millionaire's Day" campaign).
Coalition ministers remain confident that the public will accept the logic of the policy. Private sector tenants do not receive a "spare room subsidy" (as Tory chairman Grant Shapps has dubbed it), so why should those in social housing? In addition, they will challenge Labour to say how it would raise the £1.05bn the policy will save over the next two years (although housing experts have said savings could be limited or even non-existent as families are forced into the private sector, where rents are higher, leading to a consequent rise in the housing benefit bill). Would it cut spending on schools and hospitals instead? But the politically toxic decision to reduce taxes for the highest earners has made every spending cut that much harder to justify.
Work and Pensions Secretary Iain Duncan Smith outside Number 10 Downing Street. Photograph: Getty Images.

George Eaton is political editor of the New Statesman.

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On World Aids Day, let’s end the stigma around HIV for good

Advances in treatment mean that being HIV positive is no longer a death sentence, but attitudes still lag behind.

Stigma is a dangerous human construct, principally based on unfounded prejudices. None more so than the stigma surrounding HIV. The condition has been a recognised health issue in the UK for more than 30 years, and the advances in treatment have been staggering. Unfortunately attitudes seem to have remained in the 1980s.

A recent Terrence Higgins Trust poll asked people who are living with HIV for words that they have heard to describe their health condition. “AIDS”, “riddled”, “dirty”, “disgusting”, “promiscuous”, “dirty”, “deserved”, “unclean”, “diseased” – were the most cited.

Imagine turning to someone, who lets say has a long term health condition like high blood pressure, and branding them “lazy”, “fat”, “deserving”. Or someone who has just been diagnosed with diabetes being dismissed as “greed”. Of course, I’m not saying that these health conditions are without their own stigma. Rather I doubt that Charlie Sheen would have been subjected to such a vitriolic witch hunt, had it transpired he had either of those.

Once the nausea of that coverage subsided, it was telling to note the absent voices from most of the media debate around HIV and stigma. The thing that struck most was the total lack of understanding of the condition, the treatment, and the lack of representation of those who are living with HIV.

There was little written about the stigma women living with HIV face. That which those within the black African community, or the trans community, or the over 50s – the first generation of people living into old age with HIV – are subjected to.

Such is the stigma and the shame of HIV in black African communities that it can divide families. HIV positive people can be asked to leave home, resulting in separation from their family and isolation from their community. We know of a woman from the black African community who felt so stigmatised for not breastfeeding her baby – due to her HIV treatment – that she stopped her drug regime. She died unnecessarily of an Aids-related illness. After her death, her medication was found in the attic.

While living with HIV can be stressful for all ages, ageing with HIV can introduce challenges to mental health and quality of life. When compared to their peers, older people living with HIV are disadvantaged in a wide range of ways – from poorer health, to social care and financial security. We’ve found that older people fear that social care services will be prejudiced about their HIV diagnosis. One man shared that he feared hugely going into a home – the attitudes towards HIV that he might find, and ignorance from the staff. This fear is rooted in many people’s historic and continued experience of HIV-related discrimination.  

Often considered to be a lower risk group than gay men, women are sometimes forgotten in HIV discourse and yet women are stigmatised as much as any other with HIV. Women living with the condition face a unique stigma. Some are mothers and have been accused of being “irresponsible” and “putting children at risk”.

For the record, taking antiretroviral medication (ART) lowers the amount of virus in your blood to “undetectable” levels. When the level of HIV in your blood is so low that it can’t be picked-up in tests it is undetectable. This means there is an extremely low risk of passing on HIV.

Because of ART, undetectable women have a very low risk of passing on HIV to their babies. New-borns are given their own short course of ART to further reduce their risk of developing HIV, and undergo a series of tests during the first 18 months of life.

Many transgender people are on a difficult gender journey, which includes lots of access to GPs for onward referrals to specialists, and still they worry about HIV stigma. Some deny their HIV status in settings where possible, as they look at it as a barrier to achieving their goal. Gender specialist clinics are embedded in mental health departments, and some positive trans people worry that the stigma of diagnosis might be seen as an indicator of promiscuity, which they feel might work against their cases.

And what of stigma in the gay community? The poll mentioned earlier found that of 410 gay men living with HIV, 77 per cent experience stigma – with more than two thirds experiencing this most from within the gay community.

Those gay men who take the plunge and live openly with their status are often heckled, and sent abuse on dating apps like Grindr, even receiving messages that they shouldn’t be using it because “they’ll infect others”. It’s all too easy in the digital age for stigma to persist, and ignorance to remain faceless.

Stigma is best countered with fact. But there’s a clear lack of education amongst many – both positive and negative. Growing up with sex and relationship education lessons that only teach the reproduction cycle is not enough. Young people should be given clear and detailed information about the risks of HIV, but also how living with HIV in the UK has changed, and it is now an entirely manageable health condition.

Officially, stigma is defined as a mark of disgrace associated with a particular circumstance, quality, or person. Let’s turn that around today, and use the red ribbon to stop stigma. Let’s use it a mark of solidarity, compassion and understanding.

Let’s start a conversation about how we speak and write about HIV. Let’s stand together, today of all days against HIV stigma. Start now – join the solidarity on social media by taking a selfie with your red ribbon and #StopStigma.