Is Labour abolishing illness?

The new rules on incapacity benefit stake everything on a major gamble: that a large proportion of c

Incapacity benefit has become one of this year's favourite scare stories. Hardly a day passes without a new headline deploring its soaring costs and the rising numbers of claimants who get "something for nothing", at the expense of decent, hardworking taxpayers. We are told that we are footing an outrageously escalating bill for 2.4 million people, a million of whom shouldn't be on the benefit at all, and each successive work and pensions minister vows to be more ruthless than the last.

The true picture is somewhat different. The unreported version, which can be culled from Department for Work and Pensions (DWP) data, is that only 1.4 of the 2.4 million actually receive any payment, the rest get national insurance credits only, and numbers have been falling since 2003. The basic benefit is worth barely £3,000 a year. After two small rises in the first year there is no further increase, other than index-linking. All those who get the benefit have to pass a rigorous "personal capability assessment" (PCA) with doctors appointed by the DWP; and they can be re-examined at any time. The audited estimate of fraud is under 1 per cent - the lowest of any part of the social security system.

Nonetheless, the 2007 Welfare Reform Act is now being implemented across the country. It replaces support, as of right, for illness/disability (one of the planks of our rapidly disappearing welfare state) with a new, conditional employment and support allowance. Claimants are held on a basic allowance until it is confirmed that their capability for work is limited. This is determined by a "work capability assessment" tougher than the old PCA. Those deemed capable of one day returning to work (and the arbiters are health professionals rather than doctors) must engage in a series of "work-focused" interviews and activities. These include, among other things, "condition management", which in practice is likely to consist of group sessions loosely based on cognitive behavioural therapy. All this brings an additional slice of benefit that can, however, be cut for those who do not engage in it without "good cause" - a potential loss of 40 per cent of income. Ultimately, any whose capability for work remains limited through failing to follow medical advice, or "any prescribed rules of behaviour", face a period of disqualification. (A further provision of the act, to be piloted in nine areas, is that people served with Asbos - antisocial behaviour orders - can face cuts in their housing benefit for refusing local authority offers "to help address any problem behaviour".)

A main selling point of the reform was the great savings it would bring. It would staunch the outflow of benefits and get many people into jobs where they would pay tax and provide for their old age. This government's cherished goal is an employment rate of 80 per cent of the working-age population - though it is difficult to find any reasoned argument in support of this since our present rate of 75 per cent is, with Canada's, the highest in the world. The government accepts that employers must be paid to take on people with an illness record and, for the time being, it has pledged not to cut the benefits of existing claimants. Any immediate savings, therefore, can only come from bumping as many as possible off the benefit, shaving future benefit levels (already well in hand), and making it harder for newcomers to get it in the first place. Delivery is being farmed out to private agencies paid by results - which means, of course, the setting of targets. The next few years will be a bad time to have a crippling accident or succumb to a serious disease, particularly a psychiatric or neurological one that does not have obvious outward symptoms.

Blaming the "cheats"

The reform of incapacity benefit has been over ten years in the making, leaving in its wake a dense trail of commissioned reports. A curious thing about this voluminous material is how little information it contains on the actual health conditions for which benefit is paid. This is no accident, for the reformers long ago made up their minds that claimant numbers are too high, therefore a large proportion - usually put between a third and a half, but lately upped to 70 per cent in some quarters - must be spurious. An appeal to history is repeated like a mantra that, back in 1979, only 700,000 claimed the old sickness/invalidity benefits. Since then, money has been poured into the NHS while health care, living standards and longevity have improved beyond all expectations. People must be healthier, which proves that huge numbers are exploiting a slack and obsolete system. Who is to blame, apart from outright cheats? It can only be the self-indulgent, who fancy themselves sicker than they really are, and complacent GPs who let them think they are too ill to work.

Crucially, the reformers bracketed illness with disability. The disability lobby had long argued that "disability" was a discriminatory label imposed by society, and it was bent on removing the barriers to work that excluded those so labelled and kept them in poverty. But the bracketing brought confusions - for those with disabilities may be extremely fit (consider the disabled athlete), whereas the able-bodied can be extremely ill. More confusion arises with conditions such as "stress", "anxiety" and "chronic fatigue" that sound trivial. As for "back pain", how unreasonable is it to take time off sick for something best dealt with by a stiff upper lip and the odd aspirin? It is easy for those in good health to pooh-pooh such things, agreeing with the government that "Work is the best therapy".

The government's declared mission is to "liberate" claimants, to bring them into its "reformed, coherent welfare state for the 21st century". It seeks to overturn a culture based on the "medical model" of illness that allows them to "drift" on to long-term benefits without realising that "symptoms, feeling unwell, sickness and incapacity are not the same" - hence the appeal of cognitive behavioural therapy, which it understands as a treatment that will talk the sick into believing they can lead normal lives.

Doctors - so often the refuge of desperate people trying to find out what is wrong with them - should as far as possible be excluded from the process. Even those working for the DWP have opinions that are "unfounded, of limited value and counter-productive", while GPs are "unaware of the importance of work, the absence of which leads to depression, poor health, higher rates of suicide and mortality, poverty, and social exclusion". (The quotations are from a 2005 study from the Unum Provident Centre for Psychosocial and Disability Research at Cardiff University, whose ideas and rhetoric infuse the reform. Unum Provident is an American firm, the largest disability insurance company in the world, which is currently in litigation in different countries for refusing to pay out on some of its policies.) A private agency has now taken over the running of its first GP surgery here, and doctors dealing with disability living allowance are advised not to invite patients to explain how their condition affects them.

Features of the reform are familiar from other policy areas. First, a demonisation of a needy or vulnerable group, followed by a rebranding: so claimants become not even "clients" but "customers" (as in the just published "Commissioning Strategy" document); incapacity benefit becomes employment and support allowance; sick notes are redrafted for doctors to certify, not what patients can't but what they can do. Next come "partnerships", on an unchallenged assumption that the public sector has failed. The new system is farmed out to for-profit or non-profit-making agencies paid by results. This entails targets, and where targets are set, sanctions follow, for any who "fail to recover".

There are features of the new programme that look intelligent and humane, doubtless owing much to the efforts of the disability lobby. They include a longer and more flexible bridging period (and a back-to-work grant) between benefits and work, and a broader view of "work- focused" activities. The crunch will come with those described as not able or prepared to engage "because [of] the nature and severity of their health condition, or more a matter of attitudes, perceptions and expectations which may or may not be accurate . . . It is a question of what the claimant cannot do vs what they will not do."

For the reform stakes everything on a gamble: that a large proportion of claimants, present and to come, are fit enough to work. There seems no way of proving or disproving this, other than trying it out, at the risk of much waste of public money, and much personal grief. Deliberate rejection of the "medical model" deprives us of all we might have learned (from the wealth of data available) of the impact of illness on our society.

I have scratched my head long and hard over this reform (among other things sending out lengthy submissions to all concerned during the long consultation phase in 2005-2006) because so much in its theory and rhetoric contradicts my own experience: of chronically and seriously ill family members and friends, of several years as a Mind volunteer, and further years of peripheral involvement in action groups for chronic fatigue conditions. All this has indelibly impressed me with the courage of many who live with horrible complaints, the sheer hard work involved in their day-to-day coping, their relentless search for any amelioration, let alone cure, often at costs hard to spare from limited resources.

I have witnessed, too, and at close quarters, the hurt and stress of living difficult lives as people have to do, in a perpetual culture of disbelief and threat, where some of the most valiant are blamed for their conditions and conflated with the alleged "can't work, won't work" unemployed. For the message of the reform that comes across, for all its fashionable rhetoric, is that a person is valued only as a productive unit. Compassionate cases aside, those too ill to work are outside society and money spent on them is wasted. Sickness, disablement and inability to work have no place in a modern society - they can't and shouldn't be afforded.

No one pretends that illness is not a blight, imposing personal and social costs going far beyond the financial; but - pace the government - no one as yet knows how to remove it from the human condition. Why waste valuable time and resources on an ill-founded reform, when they could instead be used to further understanding of the real impact of illness on our society?

Alison Ravetz is a professor emeritus of Leeds Metropolitan University who writes on housing policy and welfare reform

This article first appeared in the 05 May 2008 issue of the New Statesman, High-street robbery

Mike Lombardo via @moreMiLo
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“I was almost brainwashed by him”: How male YouTubers get away with preying on young fans

A multitude of YouTube stars have been accused of taking advantage of young fans, but little is being done to tackle the problem.

In June, a 24-year-old YouTuber named Austin Jones was charged with two counts of producing images of child abuse. Court documents allege that the internet personality – who has more than half a million subscribers to his YouTube channel – solicited explicit videos from two of his young female fans. According to the criminal complaint, Jones asked one of the teenage girls – known only as Victim B – to dance for him, and said: “Bounce again and smile at the camera while you bounce. And while you bounce, say ‘I’m only 14’ 3 times throughout the video.” Jones has been released on bail and is awaiting trial. Jones’ attorney Gerardo Solon Gutierrez points out that the singer is “innocent until proven guilty”.

A few weeks later, a YouTuber known as Durte Dom was accused of filming a 15-year-old girl from behind while she danced at a party, without her consent. “He filmed my ass dancing,” the girl wrote anonymously on Twitter. Dom responded to the allegations via the social network, writing: “the party was 18+, the girl snuck in. don't fool yourself.” He says he will now “start having people sign release forms” before he films them.

These allegations are not isolated. In 2014, a Tumblr user called Olga accused the YouTuber Tom Milsom of coercing her into sexual activities when she was 15 and he was 21. Milsom did not comment publicly on the accusations and was never charged. Only a month earlier, a YouTube musician, Mike Lombardo, was jailed for five years on child pornography charges after soliciting explicit photographs and videos from 11 of his underage fans. 

These events set off a series of other allegations. Vlogger Alex Day admitted to having “manipulative relationships with women” after 14 women and teenage girls accused him of manipulation and abuse. One anonymous 15-year-old wrote on Tumblr that Day had sex with her knowing she was underage and “didn’t listen to me when I asked to stop”. Day denied any sexual relations with underage girls, and none of his alleged victims pressed charges. Another YouTuber, Ed Blann, admitted in a now-deleted Tumblr post that he “manipulated” an of-age fan into sex even after he was “repeatedly told to stop”. Like Day, Blann never faced any charges, but, also like Day, he apologised for his actions.  

 In September 2014, a 19-year-old woman accused the YouTube prankster Sam Pepper of raping her, and another woman filed a police report accusing him of rape. Pepper denied the accusations, was never arrested and charges were never filed. He did, however, apologise for YouTube pranks that included pinching women’s behinds while wearing a fake hand.

A Tumblr post set up to track emotional and sexual abuse in the YouTube community to date features allegations against 43 YouTubers.

***

Social media revolutionised the concept of celebrity – and celebrity-fan interactions. YouTubers are both incredibly adored and incredibly accessible. Products they design sell out overnight and their live events fill arenas. At the same time, fans are often just a few clicks away from engaging in private, one-on-one conversations with their heroes.

“I feel like I was kind of blinded to the whole situation, like I was almost brainwashed by him,” says Ashley LaPrade, a 16-year-old who claims that when she was 15, Austin Jones coerced her into creating sexualised videos on the messaging app Kik. She posted screenshots of their conversations on social media after the news of Jones’s arrest broke.

“It was kind of casual at first and he asked me to model his merchandise for him... so I did. I took a couple pictures and I’m a gymnast so I was trying to like impress him and I did like splits and stuff,” she says. She alleges that Jones asked her to film herself from behind while bending down or dancing. “I didn't want to upset him and make him not like me,” she says.

LaPrade explains that as a young 15-year-old fan she “looked up” to Jones and was initially excited by his interest in her. After she began to feel uncomfortable with his requests, they stopped talking, but she continued to listen to his music and go to his concerts. She says that she only realised the severity of his actions after his arrest.

Many young fans like Ashley are initially unable to comprehend that anything wrong – legally or morally – has happened to them. Neesey Pathan is a 20-year-old student and YouTuber who claims she was sexually harassed by Sam Pepper when she was 15. In 2014, she posted a YouTube video of her allegations, showing screenshots of alleged conversations with Pepper in which he asks her to “do a naked a dance” and show him her cleavage.

“As a young naïve 15-year old girl, I just wanted to keep talking to him because I was a huge fan,” Neesey tells me. “When he started to get inappropriate with me, at the time that made me feel uncomfortable but I didn’t understand how serious that was, because of how young I was.

“I wanted him to stop being inappropriate with me but I didn't want him to stop speaking to me.”

***

Since the concept of celebrity was invented, nefarious individuals have used their fame to manipulate and take sexual advantage of young fans. In the 1970s, Lori Mattix was a “baby groupie” to musicians – alleging in a Thrillist article that she lost her virginity to David Bowie aged just 14. When the guitarist Ted Nugent couldn’t legally marry 17-year-old Pele Massa, he became her guardian instead. Anna Garcia met Prince aged 15 and began a relationship with him aged 17. “I guess it’s kind of a dream to a young girl of 17,” she said in the Nineties. “You can be influenced very easily and stuff like that because he’s 12-13 years older than me.”

It now seems as though a slew of YouTubers have taken advantage of this imbalanced fan-creator relationship, and have deliberately exploited the naivety of their young fans. Ashley and Neesey both claim they were emotionally manipulated.

“I think I put him on this pedestal, which put him in a position to very easily manipulate me and get what he wanted,” says Neesey. “I was just so excited to get to speak to someone who I had looked up to for a long time.”

Ashley claims that when she wouldn’t film increasingly explicit videos for Jones, he treated her coldly. “He went on about how he was in a bad mood now and he didn’t want to talk any more,” she says. “If I did something wrong to him, like if I didn’t blow a kiss or something, then he would make me redo [the video].”

In 2015, Jones was first accused of asking his underage fans to film themselves twerking. In a video entitled “Setting The Record Straight”, he admitted to asking for the twerking videos and said he became suicidal after this news became public. “I’m a pretty insecure person... I began researching different suicide methods. I started planning my suicide. It’s something I was very, very serious about,” he says in the video. 

“A lot of times when we were talking he was talking about how he was going to therapy so I kind of felt bad for him and that’s why I didn't really say anything [to the authorities],” says Ashley.

The American National Domestic Violence Hotline outlines on its website that threatening suicide can be a form of emotional abuse. “If your partner regularly threatens suicide, particularly whenever you’re not doing something he or she wants you to do, or when you’re trying to leave the relationship... this is a form of emotional abuse.”

According to Neesey’s screenshots, Pepper flippantly mentioned he was “suicidal” when she refused to show him her breasts. In Olga’s blogpost about Tom Milsom, she alleges: “he’d like sob and cut himself in front of me he threatened weird suicidal shit a lot”.

“Obviously, if someone is saying to you that they're suicidal, you want to help them, because obviously they don't mean it but as a young person you think they do,” explains Neesey. “And you don't want to be held responsible for them hurting themselves and you maybe care about this person because you’ve been watching them for so long. So you’re manipulated into carrying on contact with them because if you don’t, what will happen...” 

***

To date, Lombardo is the only YouTuber who has ever been jailed for sexually abusing his fans. There are a multitude of reasons for this. Some victims are too afraid to press charges, fearing backlash from a YouTuber’s fandom. Many victims are unable to see the severity of their abuse until they are older. More still are manipulated into silence. Parents can’t comprehend YouTube stardom, and fail to understand what is happening in their children’s lives. Some victims simply don’t know which authorities to turn to.

“I'm kind of steaming about this whole issue,” says Michelle LaPrade, Ashley’s mother. “I can’t even look at a picture of the guy. It makes me want to punch him.”

At the time, Ashley never told her mother about Jones’s behaviour, but Michelle overheard conversations about it between her daughter and her friends. “I feel like a bad mother. I never even really investigated it. Because I know girls and their drama and you know, [they] overreact sometimes.”

After Jones’s arrest, Michelle wanted to report his interactions with Ashley to the authorities, but she found her local police department unhelpful. “I don't know who to turn to,” she says.

Many more victims are unaware that a crime has even occurred. “When I was 15 I didn't see how problematic it was,” says Neesey. “I knew it was a bit strange, and I did feel uncomfortable, but I didn't realise that he was actually sort of committing a crime in terms of asking a minor, as an adult, to do these things...

“It wouldn't even have crossed my mind to go to the police.”

While the UK has the large-scale Operation Yewtree into sexual abuse by celebrities, there is no equivalent for YouTube. Despite the multitude of allegations spanning half a decade, there is no single helpline or dedicated investigation into YouTube abuse. When questioned on this, a Home Office spokesperson said:

“We cannot allow social media platforms to be looked upon as a safe space for predators to target our children and share indecent images. It is vital that communication service providers have easily identifiable reporting systems for people to flag inappropriate or illegal content – and that they are clear about what is and isn’t allowed on their sites.”

A YouTube spokesperson said: “We have clear policies against harassment and we enforce these policies by removing both flagged content and comments that break our rules as well as terminating the accounts of repeat offenders.”

Sam Pepper is still on YouTube, where his channel has over two million subscribers. Alex Day returned to YouTube in December 2015, and now has over 80,000 subscribers. Austin Jones’s YouTube channel remains live, though he is not allowed to use social media before his trial.

***

“I feel like it is really hard to be taken seriously,” says Ashley. On social media, people are prone to victim-blaming Ashley and other alleged victims, saying that they should have stopped replying to the YouTubers harassing them. “Yeah, we did send stuff back but it was... we were being pressured into it and we didn't want to upset him or anything like that,” Ashley says. Her mother tells me she is glad Ashley “took the high ground” in not sending overtly sexual videos to Jones.

Unsure which authorities to speak to, many victims turn to social media to discuss their abuse. Accusations play out on Tumblr, Twitter and YouTube itself. Ashley tweeted screenshots of her interactions with Jones, while Neesey created two videos about her conversations with Pepper. Although this is an effective, and unprecedented, way for victims to get their voices heard, many online are distrustful of complaints that didn’t go through the authorities. Many more leave misogynistic and hateful comments.

“People will just be absolutely horrible to you and call you demeaning things... I got called a flirt, I got told it was all my fault because I continued speaking to him...” says Neesey, of the reaction to her videos. “I think that's a lot of the reason why people sometimes don’t come forward, because they don't want to go through all that stress again. They’ve already dealt with the situation; why would they want to deal with the stress of people being horrible to them about it?”

Some commenters criticise Neesey and other victims who have made YouTube videos and claim they were doing so for attention. “No one in their right mind would do it for attention because the attention you get is negative,” Neesey says. “I honestly don’t believe that someone would sit down and accuse someone of doing something if they didn’t mean it. So I really think it should be taken seriously.”

Whether it makes sense to those outside of the community or not, many victims' first recourse is social media, not the police or authorities. The accusations about Durte Dom – the YouTuber who allegedly filmed a 15-year-old dancing – were publicised by another YouTuber, Elijah Daniel, on his Twitter page.

Damon Fizzy is a YouTuber who called out Austin Jones after the initial accusations in 2015, and continues to do so on Twitter now. Although he agreed to speak with me, he was unable to find time to do so over a series of weeks.

For many YouTubers and their victims, social media is more important that the traditional media. Perhaps this makes sense – when the Mail Online covered the arrest of Lombardo, the YouTuber who solicited child abuse images from 11 underage fans, they added inverted commas around the word “star” in their headline. If the media and the authorities can’t take YouTube seriously, how seriously will they take accusations of YouTuber abuse?

***

In the past, YouTubers have often been good at self-policing. Hank and John Green are American brothers who run the YouTube channel Vlogbrothers, which has over three million subscribers. They own a record label, DFTBA, and run the annual YouTube convention VidCon. Lombardo and Day were DFTBA artists, and were dropped from the label after the accusations emerged. The Green brothers also banned Pepper from VidCon.

After the storm of accusations in 2014, an enormous number of popular YouTubers made videos in response. Hank Green explained consent to his audience, while the comedy YouTuber TomSka created a guide to YouTube gatherings. The popular YouTube duo Jack and Dean even made a music video about consent. The community came together to exile those who weren’t being punished in other ways. The subscriber numbers on the accused’s channels dropped dramatically.

Yet within a few months, many disgraced YouTubers can return to the platform to harness a new generation of fans, many of whom might not be aware of the accusations.

“YouTube still allows them to create content and make money off it, and that to me is just communicating that the behaviour is just not that bad. It’s sort of equivalent to a slap on the wrist and it doesn't convey the extremity of the situation of what they’ve done,” says Neesey. “I think they should be completely ostracised from the community, and have their status stripped from them, and I think YouTube should support that. Because they’re criminals.”

On Twitter, YouTuber Damon Fizzy claims he received backlash from Jones’s fans when trying to speak out years ago. “It’s crazy the backlash I received versus now. I was literally treated worse than the person who uses his underage fans for sexual gain,” he wrote.

And it’s true that YouTubers’ leagues of adoring fans can make it difficult to speak out about abuse. It is hard for many adults to understand how consuming being a young fan can be, particularly when manipulation is involved. When I ask both Ashley and Neesey what they would say to young female fans who start talking to YouTubers, they both say this is fine. Neesey warns that when a youngster becomes uncomfortable, they should end communication, but both she and Ashley feel that safe, normal fan-creator interaction is fine, indeed desirable.  

Sapphire Putt is a 20-year-old who claims a YouTuber coerced her into filming videos of herself dancing when she was 16. When I ask if she thinks it would be OK for the YouTuber to return to YouTube, she says she would be “cautious” but “wouldn’t throw the possibility of maybe giving him a chance again”.

“If he actually shows that he’s learned, you know, I would give it a chance and if he would mess it up again then that’s it, you know.”

When I ask Ashley what she would say to people who remain fans of Austin Jones she says: “I’d say that I probably understand... but they also need to understand that what he’s doing isn’t right and no one should be treated the way he is treating people.”

***

The NSPCC is currently calling for an independent regulator to scrutinise internet companies and fine them if they fail to keep children safe.

“We want the government to draw up a list of minimum standards that internet companies must observe to protect children, and children should be automatically offered safer accounts that protect them from grooming and harmful content,” an NSPCC spokesperson says.

“We know from our Childline service that online sexual exploitation is increasing so it’s vital that more is done to protect young people from abusers who use social media to target and manipulate them.”

For now, Ashley is simply glad things didn’t go further. “It's scary not knowing what could've happened, knowing that I was brainwashed like to believe it was OK, and I'm just happy he's not able to message other girls at this point,” she says.

Neesey hopes that schools will get better at teaching consent. “As a young person, I knew I felt a bit uncomfortable but I just thought that I was being dramatic... so I think people need to be educated, for sure.”  She says education needs to be improved not just in schools, but in the media.

“Unfortunately, people are sort of used to it now, after quite a few YouTubers, so it’s sort of like, ‘Oh another one.' People aren’t talking about it as much – not that it’s old news, but it’s not as shocking. People aren’t giving it as much attention as it needs.”

The NSPCC advises that if a child is worried about an online situation they should talk to a trusted adult or contact Childline on 0800 1111. Parents can find out more about talking to their child about staying safe online by searching Share Aware or visiting www.nspcc.org.uk

Amelia Tait is a technology and digital culture writer at the New Statesman.

This article first appeared in the 05 May 2008 issue of the New Statesman, High-street robbery