"I could not exist, much less live a fulfilling life, without my carer"

Writing for National Carers Week, Hannah Buchanan explains why the role of carers in our society is so important, and why we should be more aware of what they do for us.

This week is National Carers Week. In my eyes, carers are a group of unsung heroes who do not get the recognition they deserve.

Of course, as human beings we all know what it means to care. We believe in things we are passionate about, we care about friends and those who mean something to us. But being a carer is something different altogether. It means taking responsibility for somebody else’s life while forgoing your own. It is not an easy job and is fraught with challenges but is one that is very rewarding not to mention necessary.

For example, I write regularly on many different subjects. But let me put a very simple question to you – how do I get to the computer to file my pieces? How do I get enough energy sustenance and nutrition to complete the task? If I fancy a night out clubbing with my friends, how do I get there and who is waiting for me when I come back?

In all three scenarios the answer would of course be with my carer’s help. I could not exist, much less live a fulfilling life, without my carer.

Having been born with cerebral palsy, the role of caregiving has always been extremely important to me. In the earlier part of my life my main caregiver was my mother, who brought me up as a single mother and undertook all the duties around caring for me. She did this with little help from the Government, and very little help from the outside world. She was one of the army of unpaid carers who devote their time and energy to their children with disabilities.

My mother nurtured me in many ways, encouraging my ability to read and write, and also musical abilities too. She wanted the best for me and fought to ensure I got it. This meant my mother made many sacrifices for me. She could not go out to work nor earn money because her life was consumed with looking after me. She knew there was nobody else to help and the buck stopped with her. Although we visited my grandparents regularly when I was younger, and I could be left with them for short periods, they were not in any position to offer long-term assistance.

When I was 18, I went away to boarding school to do my A-levels. I took them at Alton College and boarded at Lord Mayor Treloar National Specialist College, a facility specially equipped for those with disabilities. Once at university in Oxford, I was cared for firstly by in-house students on gap years, and then later on care was provided by specific agencies, enabling me to take full advantage of the rich academic and social programme Oxford had to offer. It was a beautiful city, a beautiful time and there was never a dull moment. It was the first time I felt truly alive.

Following university, I moved to a local authority facility in Hampshire where my freedom was somewhat curtailed due to staffing constraints. I existed but looking back I never really lived. This was nobody’s fault - it was just the circumstances I found myself in at the time.

But it was when I moved into my bungalow that caring really came into its own. After meeting many nice people I established a firm relationship with the carer and friend I have to this day. She encourages me to live life to the full and I couldn’t do what I do without her. She enables me to take risks - not risks that put me in mortal danger, but perhaps situations I have not faced before that I would benefit from. Can you believe that before I met her I had never experienced the London Underground?

I feel in control of my own life thanks to carers. I feel empowered and able to make choices. But at the same time,  I never take my carer for granted and miss an opportunity to appreciate them. It is true to say that disability is to some extent a social construct. Since I met my current carer I feel far less disabled than I used to. I feel stronger and more confident – ready to participate in life.

I used to struggle to come out the house. I didn’t have agoraphobia or anything like that – I was just frightened. I’d been cooped up in the disability hostel for a long time and was just out of practice with life. But my carer helped me to regain that confidence.

However, I also feel that carers are highly underestimated and underappreciated in patriarchal society. To me, the job of carer should be on par with that of doctor. Doctors save lives but carers maintain quality of life so that a hospital admission is not needed in the first place. They keep people clean, hydrated, well-fed and happy. They help them maintain their hygiene and dignity. In short, my carer enables me to be an active participant rather than a spectator in my own life. That is a great thing to help somebody do and I feel it is woefully undervalued, both financially and personally, in 2013.

We need to be kinder to carers, pay them better and value their contributions more. Without my carer’s help, I literally would not be able to get out of bed in the morning. Without her encouragement, I would never have whizzed around the Underground. I am glad she’s here.

 

Everyone needs a hand to hold. Photograph: Getty Images

Hannah Buchanan is a blogger with a specific interest in LGBT, disability, and feminist issues and the potential crossover between them. Follow her @HannahBoo3131

Photo: Getty
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In the race to be France's next president, keep an eye on Arnaud Montebourg

Today's Morning Call. 

Good morning. As far as the Brexit talks are concerned, the least important voters are here in Britain. Whether UK plc gets a decent Brexit deal depends a lot more on who occupies the big jobs across Europe, and how stable they feel in doing so.

The far-right Freedom Party in Austria may have been repudiated at the presidential level but they still retain an interest in the legislative elections (due to be held by 2018). Both Lega Nord and Five Star in Italy will hope to emerge as the governing party at the next Italian election.

Some Conservative MPs are hoping for a clean sweep for the Eurosceptic right, the better to bring the whole EU down, while others believe that the more vulnerable the EU is, the better a deal Britain will get. The reality is that a European Union fearing it is in an advanced state of decay will be less inclined, not more, to give Britain a good deal. The stronger the EU is, the better for Brexit Britain, because the less attractive the exit door looks, the less of an incentive to make an example of the UK among the EU27.

That’s one of the many forces at work in next year’s French presidential election, which yesterday saw the entry of Manuel Valls, the French Prime Minister, into the race to be the Socialist Party’s candidate.

Though his star has fallen somewhat among the general public from the days when his opposition to halal supermarkets as mayor of Evry, and his anti-Roma statements as interior minister made him one of the most popular politicians in France, a Valls candidacy, while unlikely to translate to a finish in the top two for the Socialists could peel votes away from Marine Le Pen, potentially allowing Emanuel Macron to sneak into second place.

But it’s an open question whether he will get that far. The name to remember is Arnaud Montebourg, the former minister who quit Francois Hollande’s government over its right turn in 2014. Although as  Anne-Sylvaine Chassany reports, analysts believe the Socialist party rank-and-file has moved right since Valls finished fifth out of sixth in the last primary, Montebourg’s appeal to the party’s left flank gives him a strong chance.

Does that mean it’s time to pop the champagne on the French right? Monteburg may be able to take some votes from the leftist independent, Jean-Luc Mélenchon, and might do some indirect damage to the French Thatcherite Francois Fillon. His supporters will hope that his leftist economics will peel away supporters of Le Pen, too.

One thing is certain, however: while the chances of a final run-off between Le Pen and Fillon are still high,  Hollande’s resignation means that it is no longer certain that the centre and the left will not make it to that final round.

THE SOUND OF SILENCE

The government began its case at the Supreme Court yesterday, telling justices that the creation of the European Communities Act, which incorporates the European treaties into British law automatically, was designed not to create rights but to expedite the implementation of treaties, created through prerogative power. The government is arguing that Parliament, through silence, has accepted that all areas not defined as within its scope as prerogative powers. David Allen Green gives his verdict over at the FT.

MO’MENTUM, MO’PROBLEMS

The continuing acrimony in Momentum has once again burst out into the open after a fractious meeting to set the organisation’s rules and procedures, Jim Waterson reports over at BuzzFeed.  Jon Lansman, the organisation’s founder, still owns the data and has the ability to shut down the entire group, should he chose to do so, something he is being urged to do by allies. I explain the origins of the crisis here.

STOP ME IF YOU’VE HEARD THIS ONE  BEFORE

Italy’s oldest bank, Monte Paschi, may need a state bailout after its recapitalisation plan was thrown into doubt following Matteo Renzi’s resignation. Italy’s nervous bankers will wait to see if  €1bn of funds from a Qatari investment grouping will be forthcoming now that Renzi has left the scene.

BOOM BOOM

Strong growth in the services sector puts Britain on course to be the highest growing economy in the G7. But Mark Carney has warned that the “lost decade” of wage growth and the unease from the losers from globalisation must be tackled to head off the growing tide of “isolation and detachment”.

THE REPLACEMENTS

David Lidington will stand in for Theresa May, who is abroad, this week at Prime Ministers’ Questions. Emily Thornberry will stand in for Jeremy Corbyn.

QUIT PICKING ON ME!

Boris Johnson has asked Theresa May to get her speechwriters and other ministers to stop making jokes at his expense, Sam Coates reports in the Times. The gags are hurting Britain’s diplomatic standing, the Foreign Secretary argues.

AND NOW FOR SOMETHING COMPLETELY DIFFERENT

It’s beginning to feel a bit like Christmas! And to help you on your way, here’s Anna’s top 10 recommendations for Christmassy soundtracks.

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Stephen Bush is special correspondent at the New Statesman. His daily briefing, Morning Call, provides a quick and essential guide to British politics.