"I could not exist, much less live a fulfilling life, without my carer"

Writing for National Carers Week, Hannah Buchanan explains why the role of carers in our society is so important, and why we should be more aware of what they do for us.

This week is National Carers Week. In my eyes, carers are a group of unsung heroes who do not get the recognition they deserve.

Of course, as human beings we all know what it means to care. We believe in things we are passionate about, we care about friends and those who mean something to us. But being a carer is something different altogether. It means taking responsibility for somebody else’s life while forgoing your own. It is not an easy job and is fraught with challenges but is one that is very rewarding not to mention necessary.

For example, I write regularly on many different subjects. But let me put a very simple question to you – how do I get to the computer to file my pieces? How do I get enough energy sustenance and nutrition to complete the task? If I fancy a night out clubbing with my friends, how do I get there and who is waiting for me when I come back?

In all three scenarios the answer would of course be with my carer’s help. I could not exist, much less live a fulfilling life, without my carer.

Having been born with cerebral palsy, the role of caregiving has always been extremely important to me. In the earlier part of my life my main caregiver was my mother, who brought me up as a single mother and undertook all the duties around caring for me. She did this with little help from the Government, and very little help from the outside world. She was one of the army of unpaid carers who devote their time and energy to their children with disabilities.

My mother nurtured me in many ways, encouraging my ability to read and write, and also musical abilities too. She wanted the best for me and fought to ensure I got it. This meant my mother made many sacrifices for me. She could not go out to work nor earn money because her life was consumed with looking after me. She knew there was nobody else to help and the buck stopped with her. Although we visited my grandparents regularly when I was younger, and I could be left with them for short periods, they were not in any position to offer long-term assistance.

When I was 18, I went away to boarding school to do my A-levels. I took them at Alton College and boarded at Lord Mayor Treloar National Specialist College, a facility specially equipped for those with disabilities. Once at university in Oxford, I was cared for firstly by in-house students on gap years, and then later on care was provided by specific agencies, enabling me to take full advantage of the rich academic and social programme Oxford had to offer. It was a beautiful city, a beautiful time and there was never a dull moment. It was the first time I felt truly alive.

Following university, I moved to a local authority facility in Hampshire where my freedom was somewhat curtailed due to staffing constraints. I existed but looking back I never really lived. This was nobody’s fault - it was just the circumstances I found myself in at the time.

But it was when I moved into my bungalow that caring really came into its own. After meeting many nice people I established a firm relationship with the carer and friend I have to this day. She encourages me to live life to the full and I couldn’t do what I do without her. She enables me to take risks - not risks that put me in mortal danger, but perhaps situations I have not faced before that I would benefit from. Can you believe that before I met her I had never experienced the London Underground?

I feel in control of my own life thanks to carers. I feel empowered and able to make choices. But at the same time,  I never take my carer for granted and miss an opportunity to appreciate them. It is true to say that disability is to some extent a social construct. Since I met my current carer I feel far less disabled than I used to. I feel stronger and more confident – ready to participate in life.

I used to struggle to come out the house. I didn’t have agoraphobia or anything like that – I was just frightened. I’d been cooped up in the disability hostel for a long time and was just out of practice with life. But my carer helped me to regain that confidence.

However, I also feel that carers are highly underestimated and underappreciated in patriarchal society. To me, the job of carer should be on par with that of doctor. Doctors save lives but carers maintain quality of life so that a hospital admission is not needed in the first place. They keep people clean, hydrated, well-fed and happy. They help them maintain their hygiene and dignity. In short, my carer enables me to be an active participant rather than a spectator in my own life. That is a great thing to help somebody do and I feel it is woefully undervalued, both financially and personally, in 2013.

We need to be kinder to carers, pay them better and value their contributions more. Without my carer’s help, I literally would not be able to get out of bed in the morning. Without her encouragement, I would never have whizzed around the Underground. I am glad she’s here.

 

Everyone needs a hand to hold. Photograph: Getty Images

Hannah Buchanan is a blogger with a specific interest in LGBT, disability, and feminist issues and the potential crossover between them. Follow her @HannahBoo3131

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Is defeat in Stoke the beginning of the end for Paul Nuttall?

The Ukip leader was his party's unity candidate. But after his defeat in Stoke, the old divisions are beginning to show again

In a speech to Ukip’s spring conference in Bolton on February 17, the party’s once and probably future leader Nigel Farage laid down the gauntlet for his successor, Paul Nuttall. Stoke’s by-election was “fundamental” to the future of the party – and Nuttall had to win.
 
One week on, Nuttall has failed that test miserably and thrown the fundamental questions hanging over Ukip’s future into harsh relief. 

For all his bullish talk of supplanting Labour in its industrial heartlands, the Ukip leader only managed to increase the party’s vote share by 2.2 percentage points on 2015. This paltry increase came despite Stoke’s 70 per cent Brexit majority, and a media narrative that was, until the revelations around Nuttall and Hillsborough, talking the party’s chances up.
 
So what now for Nuttall? There is, for the time being, little chance of him resigning – and, in truth, few inside Ukip expected him to win. Nuttall was relying on two well-rehearsed lines as get-out-of-jail free cards very early on in the campaign. 

The first was that the seat was a lowly 72 on Ukip’s target list. The second was that he had been leader of party whose image had been tarnished by infighting both figurative and literal for all of 12 weeks – the real work of his project had yet to begin. 

The chances of that project ever succeeding were modest at the very best. After yesterday’s defeat, it looks even more unlikely. Nuttall had originally stated his intention to run in the likely by-election in Leigh, Greater Manchester, when Andy Burnham wins the Greater Manchester metro mayoralty as is expected in May (Wigan, the borough of which Leigh is part, voted 64 per cent for Brexit).

If he goes ahead and stands – which he may well do – he will have to overturn a Labour majority of over 14,000. That, even before the unedifying row over the veracity of his Hillsborough recollections, was always going to be a big challenge. If he goes for it and loses, his leadership – predicated as it is on his supposed ability to win votes in the north - will be dead in the water. 

Nuttall is not entirely to blame, but he is a big part of Ukip’s problem. I visited Stoke the day before The Guardian published its initial report on Nuttall’s Hillsborough claims, and even then Nuttall’s campaign manager admitted that he was unlikely to convince the “hard core” of Conservative voters to back him. 

There are manifold reasons for this, but chief among them is that Nuttall, despite his newfound love of tweed, is no Nigel Farage. Not only does he lack his name recognition and box office appeal, but the sad truth is that the Tory voters Ukip need to attract are much less likely to vote for a party led by a Scouser whose platform consists of reassuring working-class voters their NHS and benefits are safe.
 
It is Farage and his allies – most notably the party’s main donor Arron Banks – who hold the most power over Nuttall’s future. Banks, who Nuttall publicly disowned as a non-member after he said he was “sick to death” of people “milking” the Hillsborough disaster, said on the eve of the Stoke poll that Ukip had to “remain radical” if it wanted to keep receiving his money. Farage himself has said the party’s campaign ought to have been “clearer” on immigration. 

Senior party figures are already briefing against Nuttall and his team in the Telegraph, whose proprietors are chummy with the beer-swilling Farage-Banks axis. They deride him for his efforts to turn Ukip into “NiceKip” or “Nukip” in order to appeal to more women voters, and for the heavy-handedness of his pitch to Labour voters (“There were times when I wondered whether I’ve got a purple rosette or a red one on”, one told the paper). 

It is Nuttall’s policy advisers - the anti-Farage awkward squad of Suzanne Evans, MEP Patrick O’Flynn (who famously branded Farage "snarling, thin-skinned and aggressive") and former leadership candidate Lisa Duffy – come in for the harshest criticism. Herein lies the leader's almost impossible task. Despite having pitched to members as a unity candidate, the two sides’ visions for Ukip are irreconcilable – one urges him to emulate Trump (who Nuttall says he would not have voted for), and the other urges a more moderate tack. 

Endorsing his leader on Question Time last night, Ukip’s sole MP Douglas Carswell blamed the legacy of the party’s Tea Party-inspired 2015 general election campaign, which saw Farage complain about foreigners with HIV using the NHS in ITV’s leaders debate, for the party’s poor performance in Stoke. Others, such as MEP Bill Etheridge, say precisely the opposite – that Nuttall must be more like Farage. 

Neither side has yet called for Nuttall’s head. He insists he is “not going anywhere”. With his febrile party no stranger to abortive coup and counter-coup, he is unlikely to be the one who has the final say.