The transition from DLA to PIP will harm disabled claimants

Causes for concern from a care worker.

I am a care worker supporting disabled people to live independently within my community. Many of my service users claim disability benefit, and I am concerned that the new assessments for Personal Independence Payment (PIP), which has replaced Disability Living Allowance (DLA), will not only cause them unnecessary stress and anxiety but threaten the freedom and standard of living they are used to having - and have a right to have.

The assessment for PIP requires claimants to attend face-to-face consultations, unless they’re housebound or unable to travel for medical reasons. Dave* has multiple sclerosis. Although he is not technically “housebound” it would be an enormous task for him to attend a consultation because he is wheelchair bound and doesn’t have easy access to disabled-friendly transport. It would be mentally overwhelming too, because beneath the bravado of a bloke who used to run a building site, Dave like many other disabled people has suffered a huge loss of confidence. The prospect would cause him unnecessary distress and it would take days to recover from the mental and physical upheaval of having been. But practical obstacles and vulnerable states of mind do not count as excuses to avoid these consultations.

The new assessments also prioritise testimonies from GPs and specialists rather than those from families, carers and social workers. Whilst a doctor’s input is invaluable in proving what disability a claimant has, they are no more qualified to comment on how that disability affects the claimant on a daily basis outside of the doctor’s surgery or hospital. 

Jane* has Parkinson’s disease and a rare condition that causes jaw spasms and excessive dribbling. She sees a specialist twice a year who is “managing” her well - she receives treatment, of varying success rates, for her medical conditions. So her doctor could feasibly suggest that Jane copes alright at home. If this testimony is the extent of Jane’s supporting evidence then her assessment will be inaccurate and overlook the practical tasks she cannot complete and the social interactions she cannot have. Jane’s doctor doesn’t know she spends her days hunched over a bin of wet tissues, often crying, with a constant stream of saliva pouring from her mouth. Nor should they be expected to, because they do not live and work alongside her. Since PIP is supposed to improve disabled people’s “ability to participate in society”, assessors should surely be concerned with living socially as opposed to surviving medically. As it stands, the new assessment and its preoccupation with medical evidence will fail people like Jane.

Claimants will be regularly reassessed for PIP once they receive it to ensure their circumstances have not changed. Bizarrely this will even apply to permanently disabled people like Tony*, a paralysed stroke victim, and Sue* who has Multiple System Atrophy (MSA). Their condition will never improve but they will nonetheless have to endure routine reassessments causing unnecessary stress and disruption – lest they forget that it is not their right to have this support; it is their short term privilege which can be taken away at any time.

Indeed it will be taken away. People who have leased ‘motorbility’ cars using their DLA risk losing them because the ‘walking distance’ that decides your eligibility has been decreased from fifty metres to twenty. Lucy* has cerebral palsy but whilst she cannot walk fifty metres, she can struggle to walk twenty. She lives in a remote village, miles from amenities and relies on her car. The infrequent and unreliable bus service clashes with her shifts as a ‘blood bikes’ co-ordinator (a voluntary courier service for the NHS) and besides, she suffers terribly with travel sickness. If her car is taken, Lucy’s independence will be taken as well.

Lucy said to me last week “we talk about vulnerable disabled people, but my disability doesn’t make me vulnerable – this government does!” As PIP sweeps across the country, I fear she is right. My service users will face a lifetime of exhausting assessments or have the disability benefit safety net pulled from underneath them altogether, simply because our government has decided to move the goal posts closer together in a bid to reducing welfare spending.

We must raise awareness about the impact these PIP assessments will have on disabled people. The MS society has campaigned successfully for PIP assessors to allow for the fluctuating nature of multiple sclerosis, something they previously failed to consider. Parkinson’s UK has campaigned to postpone reassessments for current DLA claimants until October 2015, to allow time for an independent review on how PIP works for new claimants. More of us need to follow suit, and I for one wouldn’t be doing my job properly as a care worker if I didn’t speak out against these PIP assessments, and the harm they are likely to bring my service users.

*Some names have been altered to protect the identities of affected individuals.

A response from the Minister for Disabled People, Esther McVey, to this piece is published here 

The assessment for PIP requires claimants to attend face-to-face consultations, though many are not able. Photograph: Getty Images.
Photo: ASA
Show Hide image

Harmful gender stereotypes in ads have real impact – so we're challenging them

The ASA must make sure future generations don't recoil at our commercials.

July’s been quite the month for gender in the news. From Jodie Whittaker’s casting in Doctor Who, to trains “so simple even women can drive them”, to how much the Beeb pays its female talent, gender issues have dominated. 

You might think it was an appropriate time for the Advertising Standards Authority (ASA) to launch our own contribution to the debate, Depictions, Perceptions and Harm: a report on gender stereotypes in advertising, the result of more than a year’s careful scrutiny of the evidence base.

Our report makes the case that, while most ads (and the businesses behind them) are getting it right when it comes to avoiding damaging gender stereotypes, the evidence suggests that some could do with reigning it in a little. Specifically, it argues that some ads can contribute to real world harms in the way they portray gender roles and characteristics.

We’re not talking here about ads that show a woman doing the cleaning or a man the DIY. It would be most odd if advertisers couldn’t depict a woman doing the family shop or a man mowing the lawn. Ads cannot be divorced from reality.

What we’re talking about is ads that go significantly further by, for example, suggesting through their content and context that it’s a mum’s sole duty to tidy up after her family, who’ve just trashed the house. Or that an activity or career is inappropriate for a girl because it’s the preserve of men. Or that boys are not “proper” boys if they’re not strong and stoical. Or that men are hopeless at simple parental or household tasks because they’re, well...men.

Advertising is only a small contributor to gender stereotyping, but a contributor it is. And there’s ever greater recognition of the harms that can result from gender stereotyping. Put simply, gender stereotypes can lead us to have a narrower sense of ourselves – how we can behave, who we can be, the opportunities we can take, the decisions we can make. And they can lead other people to have a narrower sense of us too. 

That can affect individuals, whatever their gender. It can affect the economy: we have a shortage of engineers in this country, in part, says the UK’s National Academy of Engineering, because many women don’t see it as a career for them. And it can affect our society as a whole.

Many businesses get this already. A few weeks ago, UN Women and Unilever announced the global launch of Unstereotype Alliance, with some of the world’s biggest companies, including Proctor & Gamble, Mars, Diageo, Facebook and Google signing up. Advertising agencies like JWT and UM have very recently published their own research, further shining the spotlight on gender stereotyping in advertising. 

At the ASA, we see our UK work as a complement to an increasingly global response to the issue. And we’re doing it with broad support from the UK advertising industry: the Committees of Advertising Practice (CAP) – the industry bodies which author the UK Advertising Codes that we administer – have been very closely involved in our work and will now flesh out the standards we need to help advertisers stay on the right side of the line.

Needless to say, our report has attracted a fair amount of comment. And commentators have made some interesting and important arguments. Take my “ads cannot be divorced from reality” point above. Clearly we – the UK advertising regulator - must take into account the way things are, but what should we do if, for example, an ad is reflecting a part of society as it is now, but that part is not fair and equal? 

The ad might simply be mirroring the way things are, but at a time when many people in our society, including through public policy and equality laws, are trying to mould it into something different. If we reign in the more extreme examples, are we being social engineers? Or are we simply taking a small step in redressing the imbalance in a society where the drip, drip, drip of gender stereotyping over many years has, itself, been social engineering. And social engineering which, ironically, has left us with too few engineers.

Read more: Why new rules on gender stereotyping in ads benefit men, too

The report gave news outlets a chance to run plenty of well-known ads from yesteryear. Fairy Liquid, Shake 'n' Vac and some real “even a woman can open it”-type horrors from decades ago. For some, that was an opportunity to make the point that ads really were sexist back then, but everything’s fine on the gender stereotyping front today. That argument shows a real lack of imagination. 

History has not stopped. If we’re looking back at ads of 50 years ago and marvelling at how we thought they were OK back then, despite knowing they were products of their time, won’t our children and grandchildren be doing exactly the same thing in 50 years’ time? What “norms” now will seem antiquated and unpleasant in the future? We think the evidence points to some portrayals of gender roles and characteristics being precisely such norms, excused by some today on the basis that that’s just the way it is.

Our report signals that change is coming. CAP will now work on the standards so we can pin down the rules and official guidance. We don’t want to catch advertisers out, so we and CAP will work hard to provide as much advice and training as we can, so they can get their ads right in the first place. And from next year, we at the ASA will make sure those standards are followed, taking care that our regulation is balanced and wholly respectful of the public’s desire to continue to see creative ads that are relevant, entertaining and informative. 

You won’t see a sea-change in the ads that appear, but we hope to smooth some of the rougher edges. This is a small but important step in making sure modern society is better represented in ads.

Guy Parker is CEO of the ASA