Anti-abortionists need to recognise the lived experiences of women and the disabled

Right-wing commentators keep arguing for a tighter abortion law in the UK, ignoring the voices of those who would have to live with the consequences.

I do find it incredible when a person who is neither disabled or a woman gives their thoughts on a woman’s decision to abort a disabled foetus. Sorry, incredibly arrogant. (I always get that mixed up.)

Enter: Tim Montgomerie of the Times. For anyone who chose to spend the aftermath of Christmas Day in the blissful ignorance of a meat-induced coma, this week Tim decided to be the latest male journalist to dedicate a column to telling female readers what they should be doing with their bodies.

With the air of a man who had forgotten what to get the pro-lifer in his life for Christmas, Tim wrote an entire article advocating the reduction of women’s bodily rights based on anecdotes and feelings, rather than any scientific evidence. He told us he was keen on a law that requires pregnant women to look at pictures of foetuses before having an abortion, suggesting it would be a way of providing “informed consent” rather than, y’know, unimaginably cruel emotional manipulation. He avoided the fact that “tightening” abortion rights doesn’t so much reduce the number of women seeking abortions but increase the number of women who die when they have one.

As someone in possession of both a womb and a disability, however, it was Tim's thoughts on aborting foetuses with abnormalities that particularly stood out for me:

Many people are simply too frightened of having to raise a disabled child. Although the UK currently recognises that a 24-week-old foetus deserves the full protection of the law, this protection is not afforded to babies that might be disabled in some inadequately defined way.

Here I was thinking that whether or not to go ahead with a pregnancy if severe abnormalities had been detected was a complex decision made between a woman and medical professionals. Luckily for the disabled community, Tim was here to throw in his advice too!

I wondered though, had Tim thought about what would happen to all these severely disabled children born to parents who didn’t think they could cope with them? Forcing women to have children against their will is clearly a great idea but, it seems to me, anyone advocating that position – particularly when it comes to something as serious as severe disability – should have at least a vague idea of the consequences. What would all this mean for these disabled children? Enter Tim Montgomerie:

Right. Okay. What? Right. Well, this was very nice. Tim had seen a disabled child out in public just a few days prior to our conversation and he/she had sang him a song. I wondered what this had to do with anything.

Enter: Louise Mensch.

Right. Okay. It’s almost as if it was being suggested that the fact that disabled people (not one, but two!) can be happy was evidence no disabled foetus should ever be aborted. It’s almost as if the people who had charged themselves with defending the disabled had no understanding, or respect, for disability whatsoever.

It’s very easy to say it would be better if disabled foetuses could be treated equally to non-disabled ones. See, I’ll do it here. It would be better if disabled foetuses could be treated equally to non-disabled ones. You’re the hero! Who could disagree with you? Other people want to kill disabled babies. You want to defend their lives. It’s less easy to think about the next bit. The bit that comes after you’ve forced a woman to bring a child into the world that will require emotional, physical, and financial resources she told you she didn’t have.  

A woman in this sort of conversation is abstract; a thing separated from the complicated, messy reality. Disability is just the same. There is no life of a million long moments. There is no poverty. There is no pain or (as Tim gave no mention of disability’s impact on viability) there are no women giving birth only to watch their babies die. There is no sleeplessness. There is no guilt. There are no feeding tubes or hospital wards. Or cut services that leave you shouting and crying at the walls on your own.

It must be nice to be able to position yourself as protector of potential disabled children without having to do anything whatsoever for disabled children. If only women had that luxury. If only disabled people did.

I have to say, at this point, I’m quite tired of these sort of arguments. It’s beginning to feel just a bit insulting. I’m tired of being told we’re only talking about “modest tightening”, as if any removal of half the population’s bodily autonomy could be modest. I’m sick of being chastised for responding with “hysterics”, as if women are either not humans with feelings or should only have ones that come with suitable decorum.

I’m sick of people who it seems have no inkling of a disabled lived experience (bar seeing a disabled child at a carol service, that is) using disability as the manipulative hook to their own agenda. I’m sick of (notably non-disabled) people reducing a complicated, painful matter to simplicity and shock tactics.

I’m particularly sick of so-called protectors of the disabled being part of the same right-wing ideology that sees the disabled people who are already living, starved and humiliated. I’m sick of their concern for abortion’s impact on “society’s wider attitudes to disability”, as if they have not stood by all year as their party has, with near relish, stroked and fed it.

The UK’s current abortion law “has produced an alliance between anti-abortion and disability rights campaigners,” Tim concluded. The phrase ‘not in my name’, comes to mind. Trying to chip away at one marginalized group’s rights is one low. Using another marginalized group to do it, is another.

A pro-choice protest in Westminster, 20 May 2008. (Photo: Getty)

Frances Ryan is a journalist and political researcher. She writes regularly for the Guardian, New Statesman, and others on disability, feminism, and most areas of equality you throw at her. She has a doctorate in inequality in education. Her website is here.

#Match4Lara
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#Match4Lara: Lara has found her match, but the search for mixed-race donors isn't over

A UK blood cancer charity has seen an "unprecedented spike" in donors from mixed race and ethnic minority backgrounds since the campaign started. 

Lara Casalotti, the 24-year-old known round the world for her family's race to find her a stem cell donor, has found her match. As long as all goes ahead as planned, she will undergo a transplant in March.

Casalotti was diagnosed with acute myeloid leukaemia in December, and doctors predicted that she would need a stem cell transplant by April. As I wrote a few weeks ago, her Thai-Italian heritage was a stumbling block, both thanks to biology (successful donors tend to fit your racial profile), and the fact that mixed-race people only make up around 3 per cent of international stem cell registries. The number of non-mixed minorities is also relatively low. 

That's why Casalotti's family launched a high profile campaign in the US, Thailand, Italy and the US to encourage more people - especially those from mixed or minority backgrounds - to register. It worked: the family estimates that upwards of 20,000 people have signed up through the campaign in less than a month.

Anthony Nolan, the blood cancer charity, also reported an "unprecedented spike" of donors from black, Asian, ethcnic minority or mixed race backgrounds. At certain points in the campaign over half of those signing up were from these groups, the highest proportion ever seen by the charity. 

Interestingly, it's not particularly likely that the campaign found Casalotti her match. Patient confidentiality regulations protect the nationality and identity of the donor, but Emily Rosselli from Anthony Nolan tells me that most patients don't find their donors through individual campaigns: 

 It’s usually unlikely that an individual finds their own match through their own campaign purely because there are tens of thousands of tissue types out there and hundreds of people around the world joining donor registers every day (which currently stand at 26 million).

Though we can't know for sure, it's more likely that Casalotti's campaign will help scores of people from these backgrounds in future, as it has (and may continue to) increased donations from much-needed groups. To that end, the Match4Lara campaign is continuing: the family has said that drives and events over the next few weeks will go ahead. 

You can sign up to the registry in your country via the Match4Lara website here.

Barbara Speed is a technology and digital culture writer at the New Statesman and a staff writer at CityMetric.