The disability benefits system takes your dignity in exchange for money

It's not pleasant to have to ask for help. The cuts to the Independent Living Fund - delivered in a court room that wasn’t accessible to wheelchairs - are a stark reminder of the reality of life as a disabled person in Britain.

I haven’t been well enough to work much recently. I feel I should say that, though it’s none of anyone’s business. It doesn’t feel good. The fatigue, the pain, whatever. Yes. But the confession of it. Stripping off your privacy in front of strangers. Admitting that you are not doing the things you’re supposed to be able to.

No one should have to do that. No one should have to invite anyone into the most personal aspects of their lives. No one should have to present their incapability and sit with the shame that comes along for the ride.

But, as a society, we force people to do that constantly – that is, after all, how a benefit system works. We take people’s dignity in exchange for money and judge them for needing it.

We could pretend we don’t - or perhaps, increasingly, admit we do and term it the "right choice for difficult times". It does sound uncomfortable when you start to acknowledge it. It begins to feel like the sort of thing that good people shouldn’t talk about. As time goes on, and progression looks more like regression in this country, good people are the ones who start talking very loud.

The disabled, the chronically sick, have always had to lay themselves bare to be deserving. That’s just how these things (apparently) work. There’s a dominant group, and the needy are judged to see if they meet the standards the former in order to get help. Lately, as the welfare system shrivels and shrinks, and our collective empathy seemingly with it, we’ve been judging people for even asking. We’ve been getting very good at that.

It isn’t pleasant to need help. Perhaps, on a pile of falsities and illusions that keep this whole thing going, that’s the central myth that needs to be destroyed. The idea that there is something easy or enjoyable in asking for someone to help you meet basic needs, and that this is such a common, logical trait to being human that swathes of people do it daily.

It is not pleasant to need someone to help you. It is not enviable to have to ask, to admit that you – person, adult – are not able to take care of yourself. That feeling will only ever increase when who you’re having to ask for help makes it clear they’ve really no desire to give it to you. Perhaps they talk badly about you; they might even have nicknames they use behind your back. They might feel so confident that others share their opinion that they say it to your face. Maybe they give you the help but do it begrudgingly, deceiving and demeaning whilst expecting you to be grateful.

And what do you do? You take it. There is no avoiding that. When meals consist of sandwiches and biscuits because you can’t cook hot meals or you’re incontinent but can’t afford the toiletries to clean yourself, there is no avoiding any of it.

That’s the moment of vulnerability; the state that well-meaning supporters often find themselves referring to. It’s a myth that it comes earlier; that a group of people, by virtue of sickness or disability, are simply ‘the most vulnerable’. As if it’s a fixed, natural position, unaffected by how others act. Vulnerability is potential; the risk that one day, on the whim of political pandering the support system crumbles, and you will be lost. Vulnerability is the wait. When you know the fabric of your life is at the mercy of others, the threat is more than enough.

In Britain, that threat has become real. The Independent Living Fund, which has been cut or abandoned to local authorities, is the latest loss to respect and dignity. This particular benefit gives, by definition, life and independence to 20,000 severely disabled people. Although it is a number on a spreadsheet to some, to others it is the personal assistant who comes to help you to the toilet in your own home. A handful of disabled people took the Government to the High Court over it but today lost their case. The news was delivered in a court room that wasn’t accessible for wheelchairs, reminding the excluded and the isolated of their place.

There will probably be talk of the consequences over the next few days. Perhaps stories of how the fund helps recipients get washed each day, or avoid sitting in adult nappies in their home, or being put in residential care. No one should have to say those things but at this point there is little choice.

The system has always demanded that you parade your pain and now the fight against it demands the same. Dignity is donated to the cause. The cause is protecting as much dignity as you can.

A mobility scooter. Photo: Getty

Frances Ryan is a journalist and political researcher. She writes regularly for the Guardian, New Statesman, and others on disability, feminism, and most areas of equality you throw at her. She has a doctorate in inequality in education. Her website is here.

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Nicola Sturgeon and the SNP’s echoes of New Labour

The fall of Blair should be a set text for anyone wishing to know what happens next to the SNP.

If there was one thing the SNP and New Labour had in common, it was the hope. Both offered themselves as a burning torch of optimism to publics that had become tired of the same old gang running things in the same old way. Both promised a fairer, more equal society and fearless embrace of the modern world with an appealing freshness and energy. The voters bought it: both won big, repeatedly.

The thing is, if you’re elected on a mandate to be different, you’d better be different. In many areas, for a long time, New Labour managed to be just that. The smiling PM with the huge majority pushed through bold policies, some of which even worked. Tony Blair’s strategy was so successful that the Conservatives and the Lib Dems reshaped themselves in his likeness.

But, as some say, it’s the hope that kills you. When the inevitable attritional realities of governing start to weigh; when you make, as you will, bad decisions; when the list of enemies grows long; when you’ve simply had your time; you’ll fall like all the rest. Only, when you’ve soared so close to the sun, you have that much further to plummet.

The fall of Blair should be a set text for anyone wishing to know what happens next to the SNP. The debate on 21 May between the Scottish party leaders was, I think, a foretaste of a sure outcome – a public that until recently was politically and emotionally invested in the Nats is growing restive. In time, this will turn to disenchantment, then anger, then revenge at the ballot box. That is the unbreakable cycle of democratic politics.

Some of us have warned since the start that the SNP had over-promised and could only under-deliver. Its raison d’être is independence; everything else is just another brick to build the path. And so its education reform cannot be either brave or unpopular, even if it needs to be so to work, because the SNP cannot afford to alienate teachers or the teaching unions, or parents.

The same goes for the NHS, and doctors and health unions and patients. All the separatists have done – all they could have done, given their nature – is deploy the rhetoric of the radical while body-swerving hard choices and conflict at any cost. And where they have found themselves taking flak, they’ve pointed south to Westminster: “It’s no’ our fault, it’s theirs.”

Yet the voters show signs of wearying. Middle Scotland is either ignored or maligned by the middle-class socialists who drive the nation’s political debate, but it is where elections are won. The SNP has secured the support of enough of these people to win every recent election in style, but somewhere along the way the party seems to have forgotten this was a mandate not for independence, but for good government. Ten years in to SNP rule, each new audit of public services seems to wail like a warning siren.

So, during the debate, it was Nicola Sturgeon, not the Conservative leader, Ruth Davidson, or Labour’s Kezia Dugdale, who found herself in the audience’s cross-hairs.

There were the teachers, who complained about the damp squib that is the Curriculum for Excellence, the SNP’s flagship education policy; who pointed out that a fifth of primary pupils are leaving without basic literacy and numeracy skills; and who warned that lowering the standard of exams in order to push up the pass rate was not a mark of success.

Then there was the nurse who said she had been forced to use food banks (the existence of which has been used repeatedly by the SNP as a stick with which to beat the Conservatives and Westminster). “I can’t manage on the salary I have [which is set by the Scottish government],” Claire Austin told the panel. “You have no idea how demoralising it is to work in the NHS.” She delivered the killer line of the evening: “Do you think your perceived obsession with independence might actually cost you . . . in this election?”

The list of reasonable criticisms of the SNP’s governance is growing. The ideological obsession with free university tuition for Scottish students is increasingly seen as a sop to the better-off. Sturgeon’s demand for a quick second independence referendum, when a worried Middle Scotland was focused on what Brexit might mean for its future, was tone deaf.

The SNP has another problem (one that New Labour, for all its flaws, didn’t face): its doctrine of infallibility. The Nationalists’ constitution explicitly prohibits SNP elected members from criticising the party, its policies or each other. Although total unity is useful when you’re on the climb, it starts to look bonkers when the cracks are showing.

The word “cult” has long dogged the SNP. The party has tried hard to normalise its electoral appeal while keeping the flame of independence burning, but this has been a difficult balancing act. The pro-independence mob is an ugly thing when unleashed (and it has suited the leadership to open the cage door at times). After the debate, Claire Austin found herself at its mercy as the Nats briefed – wrongly – that she was the wife of a Tory councillor. The SNP branch in Stirling said, Tebbitishly, that if she was having to use food banks, “Maybe she needs to tighten her belt a bit more?”

Joanna Cherry, a QC, MP and the SNP’s home affairs spokesperson, was forced to apologise for spreading “Twitter rumours” about Austin. The ravening horde has largely kept its head down since the 2014 independence referendum, but it hasn’t gone away – it is not enough for the SNP’s critics to be debated: they must be destroyed. This isn’t the behaviour of a normal political party.

I have a feeling that when the SNP does fall, it will fall quite quickly. Its belief in its infallibility, and its inability or unwillingness to do self-deprecation or apology, will increasingly exasperate voters. There is nothing to suggest the current public policy failings will be addressed, and many signs that things will get worse.

How then do you arrest your fall? The SNP offered hope and promised it was different, and the voters believed it. The sense of betrayal could make for a very hard landing indeed. 

Chris Deerin is the New Statesman's contributing editor (Scotland). 

This article first appeared in the 25 May 2017 issue of the New Statesman, Why Islamic State targets Britain

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