Paralympians speak out about disability benefit cuts

Several British medallists could lose much-needed financial support when Iain Duncan Smith's Personal Independence Payment replaces Disability Living Allowance on 8 April.

Only six months ago, in a period of gold-tinted optimism for disability, British Paralympians were heralded as heroes. From 8 April (pdf), Disability Living Allowance, or DLA – the benefit which helps many pay for care and mobility costs – is being scrapped and, along with more than two million other disabled people, many Paralympians now facing losing the support they rely on.

DLA’s replacement – Personal Independence Payment (PIP) – is designed to cut £2.24bn annually from the welfare budget by 2015-16. The number eligible for the new award will be smaller and the assessment criteria are narrower. According to the Government’s own estimate, the changes will see 500,000 people lose their benefit.

So what do our Paralympian heroes (copyright all papers) make of the changes? Sophie Christiansen who won three gold medals at the 2012 Paralympics in dressage, tells me that receiving Disability Living Allowance enabled her to compete in the Games.  

She has cerebral palsy and relies on the benefit to pay for the extra care support she needs when she goes away to competitions, as well as the wheelchair and scooter she uses to get around venues.

She can’t walk long distances or use public transport very easily on her own and DLA paid for the car she needs to drive herself to training.  

 

Sophie Christiansen. Photo: Getty

The Paralympians might have been sold as "superhumans" during the Games, but the reality is that many of them have extra financial needs because of their disabilities. Christiansen tells me it can be a struggle to meet them financially.

“The Paralympics were just the glamorous end product . . .” Christiansen says. “I get the same amount of funding as Olympians and they don't have to cover disability-related costs with that money.”

Natasha Baker, a para-equestrian who won two gold medals at the London Games, says she also owes her success to receiving Disability Living Allowance. As a child, it funded her riding lessons as a therapeutic sport. She now relies on it for transport, using the Mobility scheme within DLA to lease a car. 

She tells me she’s concerned that once PIP is introduced, she will no longer be eligible for support. Her disability – a neurological disorder that causes severe muscle weakness – leaves her needing help with care and mobility but it can vary from day to day.

“If I have the assessment on a day I’m feeling good . . .” she says. “I’m just really worried.”

To be awarded PIP, claimants will have to score a certain number of points in relation to 12 activities, such as washing and bathing or moving around. Recent concessions to guidance mean that assessors will be required by law to consider whether claimants can perform tasks repeatedly, safely and reliably but there remains concern that the criteria are too tight and the assessment style is too restrictive. For example, Natasha Baker stresses that her mobility can depend on anything from time of day to the surface or angle of what she’s walking on. 

Baker, who was awarded an MBE this year, now finds herself worrying whether the Government will stop the money she relies on. 

She tells me she’d like those in charge of the benefit changes to spend a week in a wheelchair to see how difficult it is to get around. “There are other ways of cutting and saving money in this country,” she adds. “I don’t see why they have to target people who are vulnerable.”

 

Natasha Baker. Photo: Getty

Tara Flood, a retired Paralympic gold medallist swimmer and world record holder, says the removal of DLA is “a government attack on disabled people’s lives”. She is angry that people like her are seen as “easy targets” and tells me she’s “extremely worried” about being assessed.

It’s a concern that has only been exacerbated by the knowledge that Atos, the private healthcare company behind the much-criticised Work Capability Assessment, will be carrying out the majority of PIP assessments, having been given more than £400m worth of contracts. Last summer, Flood took part in a protest against Atos’ sponsorship of the Paralympics and tells me she thinks their role in determining who will receive the new benefit is “disgusting.”

“The PIP process is fundamentally flawed. I can’t imagine anyone delivering it in a way that isn’t dehumanising,” she says. “The impact will be so shocking. Twenty per cent of disabled people who receive this support are going to lose it . . . I’m terrified.”

Like Sophie Christiansen and Natasha Baker, Tara relies on her mobility allowance to help pay for an adapted car. She now faces the fear of losing it as DLA is removed and assessments for PIP begin.

Under the new rules, claimants must be unable to walk more than 20 metres to receive the enhanced mobility component of PIP - and without this, they will not qualify for the Motability scheme. The narrower eligibility criteria mean it is feared that many people with significant mobility impairments will be denied the vehicle they currently rely on for independence. The Department of Work and Pension’s own estimate is that over the next five years some 428,000 people will lose their eligibility. Disability campaigners are currently working to mount a judicial review on what was a last minute and controversial change to the assessment criteria.

Tara Flood tells me that losing her car would damage every aspect of her life. “I would effectively be isolated in my own home,” she says. “I’d lose my job, my connection to my community, my family.”

She’s clearly angry at the benefit changes but also what she sees as the accompanying, ever prevalent, idea that disabled people are asking too much. “I want to live an ordinary life in a society that treats me as a human being,” she stresses. “That isn’t unreasonable.”

Flood tells me she thinks back on her hope that Great Britain’s Paralympics triumphs would have a positive effect on the lives of disabled people in this country. As she and others face the imminent removal of support they rely on, it seems a cruel irony.

“When I hear ministers talk about the legacy of the Paralympics, saying how good things are . . . What planet are they living on?” she says. “In fact, things have got worse.”

Sophie Christiansen after being awarded her Paralympic gold medal last year. Photograph: Getty Images

Frances Ryan is a journalist and political researcher. She writes regularly for the Guardian, New Statesman, and others on disability, feminism, and most areas of equality you throw at her. She has a doctorate in inequality in education. Her website is here.

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There are risks as well as opportunities ahead for George Osborne

The Chancellor is in a tight spot, but expect his political wiles to be on full display, says Spencer Thompson.

The most significant fiscal event of this parliament will take place in late November, when the Chancellor presents the spending review setting out his plans for funding government departments over the next four years. This week, across Whitehall and up and down the country, ministers, lobbyists, advocacy groups and town halls are busily finalising their pitches ahead of Friday’s deadline for submissions to the review

It is difficult to overstate the challenge faced by the Chancellor. Under his current spending forecast and planned protections for the NHS, schools, defence and international aid spending, other areas of government will need to be cut by 16.4 per cent in real terms between 2015/16 and 2019/20. Focusing on services spending outside of protected areas, the cumulative cut will reach 26.5 per cent. Despite this, the Chancellor nonetheless has significant room for manoeuvre.

Firstly, under plans unveiled at the budget, the government intends to expand capital investment significantly in both 2018-19 and 2019-20. Over the last parliament capital spending was cut by around a quarter, but between now and 2019-20 it will grow by almost 20 per cent. How this growth in spending should be distributed across departments and between investment projects should be at the heart of the spending review.

In a paper published on Monday, we highlighted three urgent priorities for any additional capital spending: re-balancing transport investment away from London and the greater South East towards the North of England, a £2bn per year boost in public spending on housebuilding, and £1bn of extra investment per year in energy efficiency improvements for fuel-poor households.

Secondly, despite the tough fiscal environment, the Chancellor has the scope to fund a range of areas of policy in dire need of extra resources. These include social care, where rising costs at a time of falling resources are set to generate a severe funding squeeze for local government, 16-19 education, where many 6th-form and FE colleges are at risk of great financial difficulty, and funding a guaranteed paid job for young people in long-term unemployment. Our paper suggests a range of options for how to put these and other areas of policy on a sustainable funding footing.

There is a political angle to this as well. The Conservatives are keen to be seen as a party representing all working people, as shown by the "blue-collar Conservatism" agenda. In addition, the spending review offers the Conservative party the opportunity to return to ‘Compassionate Conservatism’ as a going concern.  If they are truly serious about being seen in this light, this should be reflected in a social investment agenda pursued through the spending review that promotes employment and secures a future for public services outside the NHS and schools.

This will come at a cost, however. In our paper, we show how the Chancellor could fund our package of proposed policies without increasing the pain on other areas of government, while remaining consistent with the government’s fiscal rules that require him to reach a surplus on overall government borrowing by 2019-20. We do not agree that the Government needs to reach a surplus in that year. But given this target wont be scrapped ahead of the spending review, we suggest that he should target a slightly lower surplus in 2019/20 of £7bn, with the deficit the year before being £2bn higher. In addition, we propose several revenue-raising measures in line with recent government tax policy that together would unlock an additional £5bn of resource for government departments.

Make no mistake, this will be a tough settlement for government departments and for public services. But the Chancellor does have a range of options open as he plans the upcoming spending review. Expect his reputation as a highly political Chancellor to be on full display.

Spencer Thompson is economic analyst at IPPR