Paralympians speak out about disability benefit cuts

Several British medallists could lose much-needed financial support when Iain Duncan Smith's Personal Independence Payment replaces Disability Living Allowance on 8 April.

Only six months ago, in a period of gold-tinted optimism for disability, British Paralympians were heralded as heroes. From 8 April (pdf), Disability Living Allowance, or DLA – the benefit which helps many pay for care and mobility costs – is being scrapped and, along with more than two million other disabled people, many Paralympians now facing losing the support they rely on.

DLA’s replacement – Personal Independence Payment (PIP) – is designed to cut £2.24bn annually from the welfare budget by 2015-16. The number eligible for the new award will be smaller and the assessment criteria are narrower. According to the Government’s own estimate, the changes will see 500,000 people lose their benefit.

So what do our Paralympian heroes (copyright all papers) make of the changes? Sophie Christiansen who won three gold medals at the 2012 Paralympics in dressage, tells me that receiving Disability Living Allowance enabled her to compete in the Games.  

She has cerebral palsy and relies on the benefit to pay for the extra care support she needs when she goes away to competitions, as well as the wheelchair and scooter she uses to get around venues.

She can’t walk long distances or use public transport very easily on her own and DLA paid for the car she needs to drive herself to training.  

 

Sophie Christiansen. Photo: Getty

The Paralympians might have been sold as "superhumans" during the Games, but the reality is that many of them have extra financial needs because of their disabilities. Christiansen tells me it can be a struggle to meet them financially.

“The Paralympics were just the glamorous end product . . .” Christiansen says. “I get the same amount of funding as Olympians and they don't have to cover disability-related costs with that money.”

Natasha Baker, a para-equestrian who won two gold medals at the London Games, says she also owes her success to receiving Disability Living Allowance. As a child, it funded her riding lessons as a therapeutic sport. She now relies on it for transport, using the Mobility scheme within DLA to lease a car. 

She tells me she’s concerned that once PIP is introduced, she will no longer be eligible for support. Her disability – a neurological disorder that causes severe muscle weakness – leaves her needing help with care and mobility but it can vary from day to day.

“If I have the assessment on a day I’m feeling good . . .” she says. “I’m just really worried.”

To be awarded PIP, claimants will have to score a certain number of points in relation to 12 activities, such as washing and bathing or moving around. Recent concessions to guidance mean that assessors will be required by law to consider whether claimants can perform tasks repeatedly, safely and reliably but there remains concern that the criteria are too tight and the assessment style is too restrictive. For example, Natasha Baker stresses that her mobility can depend on anything from time of day to the surface or angle of what she’s walking on. 

Baker, who was awarded an MBE this year, now finds herself worrying whether the Government will stop the money she relies on. 

She tells me she’d like those in charge of the benefit changes to spend a week in a wheelchair to see how difficult it is to get around. “There are other ways of cutting and saving money in this country,” she adds. “I don’t see why they have to target people who are vulnerable.”

 

Natasha Baker. Photo: Getty

Tara Flood, a retired Paralympic gold medallist swimmer and world record holder, says the removal of DLA is “a government attack on disabled people’s lives”. She is angry that people like her are seen as “easy targets” and tells me she’s “extremely worried” about being assessed.

It’s a concern that has only been exacerbated by the knowledge that Atos, the private healthcare company behind the much-criticised Work Capability Assessment, will be carrying out the majority of PIP assessments, having been given more than £400m worth of contracts. Last summer, Flood took part in a protest against Atos’ sponsorship of the Paralympics and tells me she thinks their role in determining who will receive the new benefit is “disgusting.”

“The PIP process is fundamentally flawed. I can’t imagine anyone delivering it in a way that isn’t dehumanising,” she says. “The impact will be so shocking. Twenty per cent of disabled people who receive this support are going to lose it . . . I’m terrified.”

Like Sophie Christiansen and Natasha Baker, Tara relies on her mobility allowance to help pay for an adapted car. She now faces the fear of losing it as DLA is removed and assessments for PIP begin.

Under the new rules, claimants must be unable to walk more than 20 metres to receive the enhanced mobility component of PIP - and without this, they will not qualify for the Motability scheme. The narrower eligibility criteria mean it is feared that many people with significant mobility impairments will be denied the vehicle they currently rely on for independence. The Department of Work and Pension’s own estimate is that over the next five years some 428,000 people will lose their eligibility. Disability campaigners are currently working to mount a judicial review on what was a last minute and controversial change to the assessment criteria.

Tara Flood tells me that losing her car would damage every aspect of her life. “I would effectively be isolated in my own home,” she says. “I’d lose my job, my connection to my community, my family.”

She’s clearly angry at the benefit changes but also what she sees as the accompanying, ever prevalent, idea that disabled people are asking too much. “I want to live an ordinary life in a society that treats me as a human being,” she stresses. “That isn’t unreasonable.”

Flood tells me she thinks back on her hope that Great Britain’s Paralympics triumphs would have a positive effect on the lives of disabled people in this country. As she and others face the imminent removal of support they rely on, it seems a cruel irony.

“When I hear ministers talk about the legacy of the Paralympics, saying how good things are . . . What planet are they living on?” she says. “In fact, things have got worse.”

Sophie Christiansen after being awarded her Paralympic gold medal last year. Photograph: Getty Images

Frances Ryan is a journalist and political researcher. She writes regularly for the Guardian, New Statesman, and others on disability, feminism, and most areas of equality you throw at her. She has a doctorate in inequality in education. Her website is here.

Photo: Getty
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The campaign to keep Britain in Europe must be based on hope, not fear

Together we can show the world a generous, outward-facing Britain we can all be proud of.

Today the Liberal Democrats launched our national campaign to keep Britain in Europe. With the polls showing the outcome of this referendum is on a knife-edge, our party is determined to play a decisive role in this once in a generation fight. This will not be an easy campaign. But it is one we will relish as the UK's most outward-looking and internationalist party. Together in Europe the UK has delivered peace, created the world’s largest free trade area and given the British people the opportunity to live, work and travel freely across the continent. Now is the time to build on these achievements, not throw them all away.

Already we are hearing fear-mongering from both sides in this heated debate. On the one hand, Ukip and the feuding Leave campaigns have shamelessly seized on the events in Cologne at New Year to claim that British women will be at risk if the UK stays in Europe. On the other, David Cameron claims that the refugees he derides as a "bunch of migrants" in Calais will all descend on the other side of the Channel the minute Britain leaves the EU. The British public deserve better than this. Rather than constant mud-slinging and politicising of the world's biggest humanitarian crisis since the Second World War, we need a frank and honest debate about what is really at stake. Most importantly this should be a positive campaign, one that is fought on hope and not on fear. As we have a seen in Scotland, a referendum won through scare tactics alone risks winning the battle but losing the war.

The voice of business and civil society, from scientists and the police to environmental charities, have a crucial role to play in explaining how being in the EU benefits the British economy and enhances people's everyday lives. All those who believe in Britain's EU membership must not be afraid to speak out and make the positive case why being in Europe makes us more prosperous, stable and secure. Because at its heart this debate is not just about facts and figures, it is about what kind of country we want to be.

The Leave campaigns cannot agree what they believe in. Some want the UK to be an offshore, deregulated tax haven, others advocate a protectionist, mean-hearted country that shuts it doors to the world. As with so many populist movements, from Putin to Trump, they are defined not by what they are for but what they are against. Their failure to come up with a credible vision for our country's future is not patriotic, it is irresponsible.

This leaves the field open to put forward a united vision of Britain's place in Europe and the world. Liberal Democrats are clear what we believe in: an open, inclusive and tolerant nation that stands tall in the world and doesn't hide from it. We are not uncritical of the EU's institutions. Indeed as Liberals, we fiercely believe that power must be devolved to the lowest possible level, empowering communities and individuals wherever possible to make decisions for themselves. But we recognise that staying in Europe is the best way to find the solutions to the problems that don't stop at borders, rather than leaving them to our children and grandchildren. We believe Britain must put itself at the heart of our continent's future and shape a more effective and more accountable Europe, focused on responding to major global challenges we face.

Together in Europe we can build a strong and prosperous future, from pioneering research into life-saving new medicines to tackling climate change and fighting international crime. Together we can provide hope for the desperate and spread the peace we now take for granted to the rest of the world. And together we can show the world a generous, outward-facing Britain we can all be proud of. So if you agree then join the Liberal Democrat campaign today, to remain in together, and to stand up for the type of Britain you think we should be.