The Reason I Jump by Naoki Higashida: Autism from the inside

Naoki Higashida has written a sparkling collection of Q&As, reflections and stories which describes like with autism from a first-hand perspective.

The Reason I Jump
Naoki Higashida
Translated by K A Yoshida and David Mitchell
Sceptre, 192pp, £12.99
 
When we think of autism, we think of solitude – of the child who prefers to play alone, away from the hurly-burly of the rest of the class, or the adult who would rather not join in with everyone else this weekend, thanks all the same. Collectively, we have been trained by our understanding – or lack thereof – to think that leaving autistic people alone is for the best, that it is what they want.
 
In The Reason I Jump, Naoki Higashida shows us how wrong we are. Shows rather than tells, that is, for although Higashida is autistic and was only 13 years old when he produced this book, his words flow smoothly, with no hectoring quality to his tone. His frequent pleas for understanding and patience as he tries to answer such questions as “Why do people with autism talk so loudly and weirdly?” and “Why are your facial expressions so limited?” never cease to humble you as you read.
 
Part question-and-answer text and part short story, The Reason I Jump has been translated into English by the twice Booker-shortlisted author David Mitchell and his wife, K A Yoshida. The couple first came across it in the original Japanese and it offered them a crucial breakthrough in understanding what their autistic son was experiencing. As Mitchell writes in his introduction: “It felt, as if for the first time, our own son was talking to us about what was happening inside his head, through Naoki’s words.” Now, by translating it, they hope to share the insights it provides more widely.
 
Fictional representations of autism-like traits, such as in Mark Haddon’s The Curious Incident of the Dog in the Night-Time and Dustin Hoffman’s Oscar-winning turn in the 1988 film Rain Man, make us think we know what to expect when we encounter the real thing. But as Mitchell explained in a recent piece for the Guardian, the avalanche of articles and books on dealing with autism that he and his wife received from well-meaning friends and family when their son received his diagnosis only emphasised our collective ignorance. Most advice bears little relation to reality. How do you explain that your son has bruises on his head because he likes to bang it on the floor, hard, up to a dozen times a day? A wise therapist advised Mitchell to put a foot between his son’s head and the floor “so the impact is softened” but it took Higashida’s writing to help the frantic parents understand why their son felt compelled to hurt himself in this way.
 
Every page dismantles another preconception about autism. For a start, Higashida writes mainly in the plural – we need your help, we need your understanding – as if he is not alone but part of a great community of silent children around the world. He explains that it’s physically painful for him to hold back his “weird voice” (that loud, thick, overworked diction that autistic people sometimes use) because it feels “as if I’m strangling my own throat”. And the concept of time makes him anxious, because although he can see the hands on the clock move, he can’t feel the passing seconds rushing past him like the landscape does when he runs.
 
At first glance, the book can be read as a manual for autism and it is certainly helpful in that regard. We assume that autism is a disease of the interior – a mysterious malfunction that happens inside the sufferer’s head. Higashida, with what I imagine to be a wry smile on his lips, uses both his answers and his stories to show us yet again how wrong we are. He explains that trying to control his body is “like remote-controlling a faulty robot” and that every aspect of autism that affects his mind has a corollary in his physical existence. If you try, as you read, to link your mind to his as he describes his thoughts, you start to get little hints of what it must be like to have no sensation of where your legs and arms are attached or to have limbs that feel as if they are “a mermaid’s rubbery tail”. It isn’t pleasant.
 
Higashida’s language is precise and has a poetic quality that elevates it far beyond a self-help book for the parents of autistic children. His fictional stories, also included in this book, vary in length from a few lines to dozens of pages and are united by their beautiful simplicity. They all share a strong single theme, namely, that even if living is different and difficult, you can still find companionship and happiness. As he proves in his answer to the question implied by the book’s title – “Why do you jump?” – Higashida is grasping at something universal about the human mind: “When I’m jumping, it’s as if my feelings are going upwards to the sky. Really, my urge to be swallowed up by the sky is enough to make my heart quiver.”
 
Once you understand how Higashida managed to write this book, you lose your heart to him. It’s a slim little volume, but in order to write a single word he had to select and point to each character on an alphabet grid drawn on paper, while someone sat beside him transcribing the words he formed. His autism is such that dictation was out of the question and computers were too distracting. Every letter was painstakingly chosen and deliberately selected. With all the effort that has gone into putting these words before our eyes, it’s impossible still to think that autistic people prefer their loneliness. Higashida has shown us that they are just waiting for us to have the patience to listen to what they want to say.
Autism has been represented in fiction, but seldom has a first-hand account emerged. Photograph: Getty Images.

Caroline Crampton is assistant editor of the New Statesman.

This article first appeared in the 22 July 2013 issue of the New Statesman, How to make a saint

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Five things we've learned from Labour conference

The party won't split, Corbynite divisions are growing and MPs have accepted Brexit. 

Labour won't split anytime soon

For months, in anticipation of Jeremy Corbyn’s re-election, the media had speculated about the possibility of a Labour split. But the party’s conference confirmed that MPs have no intention of pursuing this course (as I had long written). They are tribally loyal to Labour and fear that a split would prove electorally ruinous under first-past-the-post. Many still expect Theresa May to hold an early general election and are focused on retaining their seats.

Rather than splitting, Corbyn’s opponents will increase their level of internal organisation in a manner reminiscent of the left’s Socialist Campaign Group. The “shadow shadow cabinet” will assert itself through backbench policy committees and, potentially, a new body (such as the proposed “2020 group”). Their aim is to promote an alternative direction for Labour and to produce the ideas and organisation that future success would depend on.

MPs do not dismiss the possibility of a split if their “hand is forced” through a wave of deselections or if the left achieves permanent control of the party. But they expect Labour to fight the next election as a united force.

Neither the Corbynites nor the rebels have ultimate control 

Corbyn’s second landslide victory confirmed the left’s dominance among the membership. He increased his winning margin and triumphed in every section. But beyond this, the left’s position is far more tenuous.

The addition of Scottish and Welsh representatives to the National Executive Committee handed Corbyn’s opponents control of Labour’s ruling body. Any hope of radically reshaping the party’s rule book has ended.

For weeks, Corbyn’s allies have spoken of their desire to remove general secretary Iain McNicol and deputy leader Tom Watson. But the former is now safe in his position, while the latter has been strengthened by his rapturously received speech.

Were Corbyn to eventually resign or be defeated, another left candidate (such as John McDonnell) would struggle to make the ballot. Nominations from 15 per cent of MPs are required but just six per cent are committed Corbynites (though selection contests and seat losses could aid their cause). It’s for this reason that allies of the leader are pushing for the threshold to be reduced to five per cent. Unless they succeed, the hard-left’s dominance is from assured. Were an alternative candidate, such as Clive Lewis or Angela Rayner, to succeed it would only be by offering themselves as a softer alternative.

Corbynite divisions are intensifying 

The divide between Corbyn’s supporters and opponents has recently monopolised attention. But the conference showed why divisions among the former should be interrogated.

Shadow defence secretary Clive Lewis, an early Corbyn backer, was enraged when his speech was amended to exclude a line announcing that Labour’s pro-Trident stance would not be reversed. Though Lewis opposes renewal, he regards unilateralism as an obstacle to unifying the party around a left economic programme. The longer Corbyn remains leader, the greater the tension between pragmatism and radicalism will become. Lewis may have alienated CND but he has improved his standing among MPs, some of whom hail him as a bridge between the hard and soft left.

Elsewhere, the briefing against McDonnell by Corbyn allies, who suggested he was an obstacle to recruiting frontbenchers, showed how tensions between their respective teams will continue.

Labour has accepted Brexit

Ninety four per cent of Labour MPs backed the Remain campaign during the EU referendum. But by a similar margin, they have accepted the Leave vote. Jeremy Corbyn and John McDonnell, both long-standing eurosceptics, confirmed that they would not seek to prevent Brexit.

Owen Smith called for a referendum on the eventual deal during his leadership campaign. But with some exceptions, such as Angela Eagle, most of his backers have rejected the idea. Though 48 per cent of the electorate voted Remain, MPs emphasise that only 35 per cent of constituencies did. Some still fear an SNP-style surge for Ukip if Labour seeks to overturn the outcome.

The debate has moved to Britain’s future relationship with Europe, most notably the degree of free movement. For Labour, like Theresa May, Brexit means Brexit.

Corbyn will not condemn deselections 

The Labour leader could have won credit from MPs by unambiguously condemning deselection attempts. But repeatedly invited to do so, he refused. Corbyn instead defended local parties’ rights and stated that the “vast majority” of MPs had nothing to fear (a line hardly reassuring to those who do). Angela Eagle, Stella Creasy and Peter Kyle are among the rebels targeted by activists.

Corbyn can reasonably point out that the rules remain the same as under previous leaders. MPs who lose trigger ballots of their local branches face a full and open selection. But Labour’s intensified divisions mean deselection has become a far greater threat. MPs fear that Corbyn relishes the opportunity to remake the parliamentary party in his own images.  And some of the leader’s allies hope to ease the process by reviving mandatory reselection. Unless Corbyn changes his line, the issue will spark continual conflict. 

George Eaton is political editor of the New Statesman.