The Reason I Jump by Naoki Higashida: Autism from the inside

Naoki Higashida has written a sparkling collection of Q&As, reflections and stories which describes like with autism from a first-hand perspective.

The Reason I Jump
Naoki Higashida
Translated by K A Yoshida and David Mitchell
Sceptre, 192pp, £12.99
 
When we think of autism, we think of solitude – of the child who prefers to play alone, away from the hurly-burly of the rest of the class, or the adult who would rather not join in with everyone else this weekend, thanks all the same. Collectively, we have been trained by our understanding – or lack thereof – to think that leaving autistic people alone is for the best, that it is what they want.
 
In The Reason I Jump, Naoki Higashida shows us how wrong we are. Shows rather than tells, that is, for although Higashida is autistic and was only 13 years old when he produced this book, his words flow smoothly, with no hectoring quality to his tone. His frequent pleas for understanding and patience as he tries to answer such questions as “Why do people with autism talk so loudly and weirdly?” and “Why are your facial expressions so limited?” never cease to humble you as you read.
 
Part question-and-answer text and part short story, The Reason I Jump has been translated into English by the twice Booker-shortlisted author David Mitchell and his wife, K A Yoshida. The couple first came across it in the original Japanese and it offered them a crucial breakthrough in understanding what their autistic son was experiencing. As Mitchell writes in his introduction: “It felt, as if for the first time, our own son was talking to us about what was happening inside his head, through Naoki’s words.” Now, by translating it, they hope to share the insights it provides more widely.
 
Fictional representations of autism-like traits, such as in Mark Haddon’s The Curious Incident of the Dog in the Night-Time and Dustin Hoffman’s Oscar-winning turn in the 1988 film Rain Man, make us think we know what to expect when we encounter the real thing. But as Mitchell explained in a recent piece for the Guardian, the avalanche of articles and books on dealing with autism that he and his wife received from well-meaning friends and family when their son received his diagnosis only emphasised our collective ignorance. Most advice bears little relation to reality. How do you explain that your son has bruises on his head because he likes to bang it on the floor, hard, up to a dozen times a day? A wise therapist advised Mitchell to put a foot between his son’s head and the floor “so the impact is softened” but it took Higashida’s writing to help the frantic parents understand why their son felt compelled to hurt himself in this way.
 
Every page dismantles another preconception about autism. For a start, Higashida writes mainly in the plural – we need your help, we need your understanding – as if he is not alone but part of a great community of silent children around the world. He explains that it’s physically painful for him to hold back his “weird voice” (that loud, thick, overworked diction that autistic people sometimes use) because it feels “as if I’m strangling my own throat”. And the concept of time makes him anxious, because although he can see the hands on the clock move, he can’t feel the passing seconds rushing past him like the landscape does when he runs.
 
At first glance, the book can be read as a manual for autism and it is certainly helpful in that regard. We assume that autism is a disease of the interior – a mysterious malfunction that happens inside the sufferer’s head. Higashida, with what I imagine to be a wry smile on his lips, uses both his answers and his stories to show us yet again how wrong we are. He explains that trying to control his body is “like remote-controlling a faulty robot” and that every aspect of autism that affects his mind has a corollary in his physical existence. If you try, as you read, to link your mind to his as he describes his thoughts, you start to get little hints of what it must be like to have no sensation of where your legs and arms are attached or to have limbs that feel as if they are “a mermaid’s rubbery tail”. It isn’t pleasant.
 
Higashida’s language is precise and has a poetic quality that elevates it far beyond a self-help book for the parents of autistic children. His fictional stories, also included in this book, vary in length from a few lines to dozens of pages and are united by their beautiful simplicity. They all share a strong single theme, namely, that even if living is different and difficult, you can still find companionship and happiness. As he proves in his answer to the question implied by the book’s title – “Why do you jump?” – Higashida is grasping at something universal about the human mind: “When I’m jumping, it’s as if my feelings are going upwards to the sky. Really, my urge to be swallowed up by the sky is enough to make my heart quiver.”
 
Once you understand how Higashida managed to write this book, you lose your heart to him. It’s a slim little volume, but in order to write a single word he had to select and point to each character on an alphabet grid drawn on paper, while someone sat beside him transcribing the words he formed. His autism is such that dictation was out of the question and computers were too distracting. Every letter was painstakingly chosen and deliberately selected. With all the effort that has gone into putting these words before our eyes, it’s impossible still to think that autistic people prefer their loneliness. Higashida has shown us that they are just waiting for us to have the patience to listen to what they want to say.
Autism has been represented in fiction, but seldom has a first-hand account emerged. Photograph: Getty Images.

Caroline Crampton is assistant editor of the New Statesman. She writes a weekly podcast column.

This article first appeared in the 22 July 2013 issue of the New Statesman, How to make a saint

Photo: Getty
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PMQs review: Jeremy Corbyn prompts Tory outrage as he blames Grenfell Tower fire on austerity

To Conservative cries of "shame on you!", the Labour leader warned that "we all pay a price in public safety" for spending cuts.

A fortnight after the Grenfell Tower fire erupted, the tragedy continues to cast a shadow over British politics. Rather than probing Theresa May on the DUP deal, Jeremy Corbyn asked a series of forensic questions on the incident, in which at least 79 people are confirmed to have died.

In the first PMQs of the new parliament, May revealed that the number of buildings that had failed fire safety tests had risen to 120 (a 100 per cent failure rate) and that the cladding used on Grenfell Tower was "non-compliant" with building regulations (Corbyn had asked whether it was "legal").

After several factual questions, the Labour leader rose to his political argument. To cries of "shame on you!" from Tory MPs, he warned that local authority cuts of 40 per cent meant "we all pay a price in public safety". Corbyn added: “What the tragedy of Grenfell Tower has exposed is the disastrous effects of austerity. The disregard for working-class communities, the terrible consequences of deregulation and cutting corners." Corbyn noted that 11,000 firefighters had been cut and that the public sector pay cap (which Labour has tabled a Queen's Speech amendment against) was hindering recruitment. "This disaster must be a wake-up call," he concluded.

But May, who fared better than many expected, had a ready retort. "The cladding of tower blocks did not start under this government, it did not start under the previous coalition governments, the cladding of tower blocks began under the Blair government," she said. “In 2005 it was a Labour government that introduced the regulatory reform fire safety order which changed the requirements to inspect a building on fire safety from the local fire authority to a 'responsible person'." In this regard, however, Corbyn's lack of frontbench experience is a virtue – no action by the last Labour government can be pinned on him. 

Whether or not the Conservatives accept the link between Grenfell and austerity, their reluctance to defend continued cuts shows an awareness of how politically vulnerable they have become (No10 has announced that the public sector pay cap is under review).

Though Tory MP Philip Davies accused May of having an "aversion" to policies "that might be popular with the public" (he demanded the abolition of the 0.7 per cent foreign aid target), there was little dissent from the backbenches – reflecting the new consensus that the Prime Minister is safe (in the absence of an attractive alternative).

And May, whose jokes sometimes fall painfully flat, was able to accuse Corbyn of saying "one thing to the many and another thing to the few" in reference to his alleged Trident comments to Glastonbury festival founder Michael Eavis. But the Labour leader, no longer looking fearfully over his shoulder, displayed his increased authority today. Though the Conservatives may jeer him, the lingering fear in Tory minds is that they and the country are on divergent paths. 

George Eaton is political editor of the New Statesman.

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