The Reason I Jump by Naoki Higashida: Autism from the inside

Naoki Higashida has written a sparkling collection of Q&As, reflections and stories which describes like with autism from a first-hand perspective.

The Reason I Jump
Naoki Higashida
Translated by K A Yoshida and David Mitchell
Sceptre, 192pp, £12.99
 
When we think of autism, we think of solitude – of the child who prefers to play alone, away from the hurly-burly of the rest of the class, or the adult who would rather not join in with everyone else this weekend, thanks all the same. Collectively, we have been trained by our understanding – or lack thereof – to think that leaving autistic people alone is for the best, that it is what they want.
 
In The Reason I Jump, Naoki Higashida shows us how wrong we are. Shows rather than tells, that is, for although Higashida is autistic and was only 13 years old when he produced this book, his words flow smoothly, with no hectoring quality to his tone. His frequent pleas for understanding and patience as he tries to answer such questions as “Why do people with autism talk so loudly and weirdly?” and “Why are your facial expressions so limited?” never cease to humble you as you read.
 
Part question-and-answer text and part short story, The Reason I Jump has been translated into English by the twice Booker-shortlisted author David Mitchell and his wife, K A Yoshida. The couple first came across it in the original Japanese and it offered them a crucial breakthrough in understanding what their autistic son was experiencing. As Mitchell writes in his introduction: “It felt, as if for the first time, our own son was talking to us about what was happening inside his head, through Naoki’s words.” Now, by translating it, they hope to share the insights it provides more widely.
 
Fictional representations of autism-like traits, such as in Mark Haddon’s The Curious Incident of the Dog in the Night-Time and Dustin Hoffman’s Oscar-winning turn in the 1988 film Rain Man, make us think we know what to expect when we encounter the real thing. But as Mitchell explained in a recent piece for the Guardian, the avalanche of articles and books on dealing with autism that he and his wife received from well-meaning friends and family when their son received his diagnosis only emphasised our collective ignorance. Most advice bears little relation to reality. How do you explain that your son has bruises on his head because he likes to bang it on the floor, hard, up to a dozen times a day? A wise therapist advised Mitchell to put a foot between his son’s head and the floor “so the impact is softened” but it took Higashida’s writing to help the frantic parents understand why their son felt compelled to hurt himself in this way.
 
Every page dismantles another preconception about autism. For a start, Higashida writes mainly in the plural – we need your help, we need your understanding – as if he is not alone but part of a great community of silent children around the world. He explains that it’s physically painful for him to hold back his “weird voice” (that loud, thick, overworked diction that autistic people sometimes use) because it feels “as if I’m strangling my own throat”. And the concept of time makes him anxious, because although he can see the hands on the clock move, he can’t feel the passing seconds rushing past him like the landscape does when he runs.
 
At first glance, the book can be read as a manual for autism and it is certainly helpful in that regard. We assume that autism is a disease of the interior – a mysterious malfunction that happens inside the sufferer’s head. Higashida, with what I imagine to be a wry smile on his lips, uses both his answers and his stories to show us yet again how wrong we are. He explains that trying to control his body is “like remote-controlling a faulty robot” and that every aspect of autism that affects his mind has a corollary in his physical existence. If you try, as you read, to link your mind to his as he describes his thoughts, you start to get little hints of what it must be like to have no sensation of where your legs and arms are attached or to have limbs that feel as if they are “a mermaid’s rubbery tail”. It isn’t pleasant.
 
Higashida’s language is precise and has a poetic quality that elevates it far beyond a self-help book for the parents of autistic children. His fictional stories, also included in this book, vary in length from a few lines to dozens of pages and are united by their beautiful simplicity. They all share a strong single theme, namely, that even if living is different and difficult, you can still find companionship and happiness. As he proves in his answer to the question implied by the book’s title – “Why do you jump?” – Higashida is grasping at something universal about the human mind: “When I’m jumping, it’s as if my feelings are going upwards to the sky. Really, my urge to be swallowed up by the sky is enough to make my heart quiver.”
 
Once you understand how Higashida managed to write this book, you lose your heart to him. It’s a slim little volume, but in order to write a single word he had to select and point to each character on an alphabet grid drawn on paper, while someone sat beside him transcribing the words he formed. His autism is such that dictation was out of the question and computers were too distracting. Every letter was painstakingly chosen and deliberately selected. With all the effort that has gone into putting these words before our eyes, it’s impossible still to think that autistic people prefer their loneliness. Higashida has shown us that they are just waiting for us to have the patience to listen to what they want to say.
Autism has been represented in fiction, but seldom has a first-hand account emerged. Photograph: Getty Images.

Caroline Crampton is assistant editor of the New Statesman. She writes a weekly podcast column.

This article first appeared in the 22 July 2013 issue of the New Statesman, How to make a saint

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Arsène Wenger: how can an intelligent manager preside over such a hollowed-out team?

The Arsenal manager faces a frustrating legacy.

Sport is obviously not all about winning, but it is about justified hope. That ­distinction has provided, until recently, a serious defence of Arsène Wenger’s Act II – the losing part. Arsenal haven’t won anything big for 13 years. But they have been close enough (and this is a personal view) to sustain the experience of investing emotionally in the story. Hope turning to disappointment is fine. It’s when the hope goes, that’s the problem.

Defeat takes many forms. In both 2010 and 2011, Arsenal lost over two legs to Barcelona in the Champions League. Yet these were rich and rewarding sporting experiences. In the two London fixtures of those ties, Arsenal drew 2-2 and won 2-1 against the most dazzling team in the world. Those nights reinvigorated my pride in sport. The Emirates Stadium had the best show in town. Defeat, when it arrived in Barcelona, was softened by gratitude. We’d been entertained, more than entertained.

Arsenal’s 5-1 surrender to Bayern Munich on 15 February was very different. In this capitulation by instalments, the fascination was macabre rather than dramatic. Having long given up on discerning signs of life, we began the post-mortem mid-match. As we pored over the entrails, the curiosity lay in the extent of the malady that had brought down the body. The same question, over and over: how could such an intelligent, deep-thinking manager preside over a hollowed-out team? How could failings so obvious to outsiders, the absence of steel and resilience, evade the judgement of the boss?

There is a saying in rugby union that forwards (the hard men) determine who wins, and the backs (the glamour boys) decide by how much. Here is a footballing equivalent: midfielders define matches, attacking players adorn them and defenders get the blame. Yet Arsenal’s players as good as vacated the midfield. It is hard to judge how well Bayern’s playmakers performed because they were operating in a vacuum; it looked like a morale-boosting training-ground drill, free from the annoying presence of opponents.

I have always been suspicious of the ­default English critique which posits that mentally fragile teams can be turned around by licensed on-field violence – a good kicking, basically. Sporting “character” takes many forms; physical assertiveness is only one dimension.

Still, it remains baffling, Wenger’s blind spot. He indulges artistry, especially the mercurial Mesut Özil, beyond the point where it serves the player. Yet he won’t protect the magicians by surrounding them with effective but down-to-earth talents. It has become a diet of collapsing soufflés.

What held back Wenger from buying the linchpin midfielder he has lacked for many years? Money is only part of the explanation. All added up, Arsenal do spend: their collective wage bill is the fourth-highest in the League. But Wenger has always been reluctant to lavish cash on a single star player, let alone a steely one. Rather two nice players than one great one.

The power of habit has become debilitating. Like a wealthy but conservative shopper who keeps going back to the same clothes shop, Wenger habituates the same strata of the transfer market. When he can’t get what he needs, he’s happy to come back home with something he’s already got, ­usually an elegant midfielder, tidy passer, gets bounced in big games, prone to going missing. Another button-down blue shirt for a drawer that is well stuffed.

It is almost universally accepted that, as a business, Arsenal are England’s leading club. Where their rivals rely on bailouts from oligarchs or highly leveraged debt, Arsenal took tough choices early and now appear financially secure – helped by their manager’s ability to engineer qualification for the Champions League every season while avoiding excessive transfer costs. Does that count for anything?

After the financial crisis, I had a revealing conversation with the owner of a private bank that had sailed through the turmoil. Being cautious and Swiss, he explained, he had always kept more capital reserves than the norm. As a result, the bank had made less money in boom years. “If I’d been a normal chief executive, I’d have been fired by the board,” he said. Instead, when the economic winds turned, he was much better placed than more bullish rivals. As a competitive strategy, his winning hand was only laid bare by the arrival of harder times.

In football, however, the crash never came. We all wrote that football’s insane spending couldn’t go on but the pace has only quickened. Even the Premier League’s bosses confessed to being surprised by the last extravagant round of television deals – the cash that eventually flows into the hands of managers and then the pockets of players and their agents.

By refusing to splash out on the players he needed, whatever the cost, Wenger was hedged for a downturn that never arrived.

What an irony it would be if football’s bust comes after he has departed. Imagine the scenario. The oligarchs move on, finding fresh ways of achieving fame, respectability and the protection achieved by entering the English establishment. The clubs loaded with debt are forced to cut their spending. Arsenal, benefiting from their solid business model, sail into an outright lead, mopping up star talent and trophies all round.

It’s often said that Wenger – early to invest in data analytics and worldwide scouts; a pioneer of player fitness and lifestyle – was overtaken by imitators. There is a second dimension to the question of time and circumstance. He helped to create and build Arsenal’s off-field robustness, even though football’s crazy economics haven’t yet proved its underlying value.

If the wind turns, Arsène Wenger may face a frustrating legacy: yesterday’s man and yet twice ahead of his time. 

Ed Smith is a journalist and author, most recently of Luck. He is a former professional cricketer and played for both Middlesex and England.

This article first appeared in the 24 February 2017 issue of the New Statesman, The world after Brexit