How many more disabled people will die frightened that their benefits will be taken away?

Karen Sherlock faced endless pressure, the judgement of society, the fear of destitution, the exhaustion of constant assessments and endless forms - all as she battled to survive.

I’m a disability campaigner. I’m not sure I ever set out to be – indeed that anyone does – but that is what I became.

You may have read some of the reasons here. Perhaps you’ve skimmed a few articles on ESA - the Employment & Support Allowance - tutted a shocked tut at cancer patients on chemotherapy sent to the job centre to find work. Perhaps you’ve sat open mouthed at the idea of one of the richest nations on earth arguing over just how terminally ill you need to be to get the gracious sum of £96 per week to survive with at least some dignity.

Maybe you heard that this government believes that for almost all conditions, one year is now considered enough to find work. You may have heard Chris Grayling, the Work and Pensions minister, tell you that it doesn’t matter whether people are better, or if they have found work, we simply can’t afford them any more. Their benefits will be stopped if they have a partner who earns just £7,500 a year or more.

You may have heard of this blind, deaf, tube-fed, non verbal, disabled man deemed fit for work by the DWP, or Jan Morgan, unable to look after herself after a severe stroke yet also told she must seek work. You may have heard of very many others. You may even have found these stories hard to believe. I’m not sure that I would blame you. For if we believe these stories, where do they leave us? Where do they leave claims that we are “protecting the most vulnerable”?

But today, I want to tell you about Karen Sherlock, because she was my friend.

Karen was extremely unwell. Here, in Karen’s own words are her medical conditions:

DIABETIC AUTONOMIC NEUROPATHY (GASTRIC, CAUSING UNPREDICTABLE AND SEVERE DIARRHOEA)

GASTROPAERESIS (CAUSING UNPREDICTABLE AND SEVERE BOUTS OF VOMITING)

DIABETIC RETINOPATHY, PARTIALLY SIGHTED (LOSS OF PERIPHERAL VISION IN BOTH EYES AND SOME CENTRAL VISION IN LEFT EYE)

HEART CONDITION, CHRONIC KIDNEY DISEASE, VITAMIN B12 DEFICIENCY, ANAEMIA, HIGH BLOOD PRESSURE, HIGH CHOLESTEROL, UNDERACTIVE THYROID, CHRONIC TIREDNESS DUE TO COMBINATION OF MULTIPLE MEDICAL CONDITIONS, ASTHMA

I urge you all to read this post, written by Karen just two months ago. It details a process many of us who are sick or disabled know all too well. Apply for ESA, get “assessed” by Atos, the private company charged with making these life or death decisions, get turned down for ESA, found “fit for work” or put in the wrong group, appeal decision, win tribunal, get a new letter demanding you attend another assessment, repeat the entire process until you despair, ground down by the misery.

My ESA is being stopped……………

Now, I have turned over in my mind how they can do this to me. 

Where it is going to leave us money-wise and what we can do about it? The answer is;  I don’t know. 

I am not entitled to a penny more due to having a husband that works too many hours and brings in too much money. I am worried and frightened, I do not see how they can just snatch this away from me. I am chronically ill and I am never going to get better, not even with the transplant will I feel better, all my conditions cannot be magically cured.

Karen faced all of this as she battled just to survive. Endless pressure, the judgement of society, the fear of destitution, the exhaustion of constant assessments and endless forms. She was one of those who’s ESA was time-limited - and what’s more, it was limited retrospectively, leaving her with just a few months to appeal for long term support.

What I want to tell you today is that she was frightened. Terrified in fact. She was terrified of the DWP, almost paralysed by a fear that if she spoke out, they would treat her even more harshly. But she spoke out regardless.

She was scared for her future, scared for her family. She had no idea how they would survive when she lost the little support they relied on. Her husband works, cares for a sick wife and they had “done the right thing”. Do you hear me Ian Duncan Smith? David Cameron? Nick Clegg? Ed Miliband? Her family had done the “right thing”, at least in your narrow world of workers and shirkers.

Despite her own terror, she tried to tell her country, her peers, her friends - even journalists - what was happening to her and thousands like her, but shocked tuts didn’t save her. Open mouths and disgust didn’t save Karen; they didn’t save my friend. Perhaps no one could have, but those who hold and abuse power could have eased her fear or reassured her that they would act.

Karen died on June 8 from a suspected heart attack. I’ll leave you with her own words, from the end of her final post on April 29:

“We need to be passionate about standing up for our rights, and if we can make enough noise, and get enough people to listen then we can overturn the inhumane changes this parasitic government have made.  If nothing else, we do still have hope and our rights on our side.”

Will we listen? Will Karen’s story be the one to convince us that enough is enough? Or will we turn a blind eye, continue to look away?

I hope not. There are dangerous historical precedents.

Sue Marsh is a writer and disability campaigner. She blogs at DiaryOfABenefitScrounger.blogspot.co.uk

Karen Sherlock's Twitter page.
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Millennial Man: How Emmanuel Macron is charming France's globalised youth

At the French presidential candidate's London rally, supporters cheered for a reformist. 

If it weren’t for the flags – the blue, white and red of France, but also the European Union’s starred circle – the audience’s colourful signs and loud cheers could have been confused with those of a rock star’s concert. There even were VIP bracelets and queues outside Westminster Central Hall, of fans who waited hours but didn’t make it in. This wasn't a Beyonce concert, but a rally for France’s shiny political maverick, the centrist presidential candidate Emmanuel Macron. He arrived on stage under a thunder of applause, which lasted the full minute he took to salute the first rank.

Since he resigned from his position as François Hollande’s economy minister last August, the 39-year-old relative political newbie – he used to be a banker and only joined the French government in 2014 – has created his own movement, En Marche, and has been sailing in the polls. In this he has been helped by the fall from grace of Conservative candidate François Fillon. Macron, who can count on the support of several Socialists, the centrist François Bayrou and the unofficial backing of the Elysee palace, is seen as the favourite to face hard-right Marine Le Pen in the election’s run-off in May.

A screen displayed photos of supporters from around the world (Singapore, Morocco, United States, “We’re everywhere”) as well as the hashtags and Snapchat account for the event. Rihanna’s “Diamonds” played as a team of young “helpers”, en anglais dans le texte, were guiding the 3,000 French expatriates to their seats. “We’re about 90 helpers tonight,” said Pierre-Elie De Rohan, 23. A History student at University College London, he joined the youth branch of En Marche via a school group.

The movement has been very active among students: “We’re in all London universities, King’s, Imperial, UCL”, he said. “It’s exciting”, echoed fellow helped Arcady Dmitrieff, 18, from UCL too. “We feel like we’re taking part in something bigger than us.”

Hopeful millennials are flowing to En Marche en masse. Macron is young, attractive, and though, like most French politicians, he is a graduate of the elite École Nationale d'Administration school, voters still see in him a breath of fresh air. “He’s neither left-wing nor right-wing," praised helper 18-year-old Victoria Tran. Her friend Adele Francey, 18, agreed. “He transcends the political divides that have confined us for the past thirty years," she said. “And he looks sincere," added Lena Katz, 18. “He really believes he can make a change.” The Macron brand, a mix of smart marketing, cult figure (the first letters of En Marche are Macron’s initials) and genuine enthusiasm previously unseen on the French campaign trail, has given him momentum in a political system highly based on the leader’s personality.

For Katz, Tran and many of their friends, France’s 2017 presidential race is their first election. “I want to be invested and to vote for someone I like," Tran said. “More than the others, Macron represents our generation.” Their close elders are hoping for a political renaissance, too – perhaps the one that was supposed to come with François Hollande in 2012. “I really believe he can make it," said Aurelie Diedhou, 29, a wholesale manager who has lived in London for two years. “On many topics, he’s more advanced than his rivals, a bit like Barack Obama in 2008. In France, when a politician has the pretention not to be corrupt, or to have held a job before entering politics, they’re accused of marketing themselves. But it’s just true.”

Macron occupied the stage for a good hour and a half – during which his supporters never failed to cheer, even for boring declarations such as “I want more management autonomy”. He passionately defended the European Union, and pleaded for its reform: “I am European, and I want to change Europe with you.”

Such words were welcomed by French expatriates, many of whom have feared that their life in the UK may be turned upside down by the consequences of the Brexit vote. “Britain has made a choice, which I think is a bad choice, because the middle classes have lacked perspectives, and have had doubts," Macron said. He promised to stand for the rights of the French people who “have made their life choice to settle in Britain”.

As far as Macron's UK co-ordinator, Ygal El-Harra, 40, was concerned, that the candidate would make a trip across the Channel was self evident: “We’ve got people in Bristol, Cambridge, Edinburgh, in Cornwall. And they’re not just bankers and traders: some work in delivery, restaurants, many are students... They perfectly represent French society, and we want to keep in touch with them.”

In 2012, London’s French community opted for Nicolas Sarkozy over Hollande, but the vote was very close (48 per cent to 52 per cent). Just as within France, where he appeals to both left and right-wingers, Macron’s internationally-minded liberalism, coupled with his fluent, fairly well-accented English, could win big among the expat. And they matter - there are about 100,000 votes to grab. “For us who are in London, it’s important to have an open-minded, international candidate," the teenager Tran said.

Rosa Mancer, a 45-year-old strategist who has lived in London for 20 years, agreed. “I loved what he said about Europe. We must reform it from the inside," she said. But she admitted her support for Macron was “a choice by elimination”, due to the threat of the far-right Front National and the corruption case surrounding Fillon. “He’s got no scandal behind him," she said. Unlike their younger peers, voters with more experience in French politics tended to choose the dynamic Macron because he was the least compromised of the lot. “It’s certainly not Marine Le Pen, nor Benoît Hamon, the sectarist Fillon or the Stalinist Jean-Luc Mélenchon, who will rebuild our fossilised France”, said Roland Stern, a Frenchman in his sixties. “In 1974, Giscard D’Estaing didn’t have a party, either. But once he had won, the others followed him.”

British politicians had come to see the French phenomenon, too. Labour’s Denis MacShane and former Deputy Prime Minister Nick Clegg sat among the VIPs. For the latter, the enthusiasm around a promising and brilliant politician rang a bell. Looking back on the 2010 general election, the former Liberal Democrat leader reflected: “Although my platform was very different at the time, the basis was that the status quo was letting people down and that we needed something different.” Clegg’s advice to Macron? “Make sure you seek to set and manage people’s expectations.”

As Clegg knows too well, there is a danger in bringing everyone together, and that is keeping everyone together without disappointing them all. If his name comes first on the evening of May 7, Macron’s real challenge will begin: forming a government with his supports for a broad political spectrum, and dropping vague pledges and marketing slogans to map out a clear way ahead.

In Westminster, hundreds of supporters were literally behind him, seated in tiers on stage. A massive screen showed a live close-up of Macron's youthful face. Something in his picture-perfect smile seemed to wonder what would happen if the crowd stopped cheering.