How many more disabled people will die frightened that their benefits will be taken away?

Karen Sherlock faced endless pressure, the judgement of society, the fear of destitution, the exhaustion of constant assessments and endless forms - all as she battled to survive.

I’m a disability campaigner. I’m not sure I ever set out to be – indeed that anyone does – but that is what I became.

You may have read some of the reasons here. Perhaps you’ve skimmed a few articles on ESA - the Employment & Support Allowance - tutted a shocked tut at cancer patients on chemotherapy sent to the job centre to find work. Perhaps you’ve sat open mouthed at the idea of one of the richest nations on earth arguing over just how terminally ill you need to be to get the gracious sum of £96 per week to survive with at least some dignity.

Maybe you heard that this government believes that for almost all conditions, one year is now considered enough to find work. You may have heard Chris Grayling, the Work and Pensions minister, tell you that it doesn’t matter whether people are better, or if they have found work, we simply can’t afford them any more. Their benefits will be stopped if they have a partner who earns just £7,500 a year or more.

You may have heard of this blind, deaf, tube-fed, non verbal, disabled man deemed fit for work by the DWP, or Jan Morgan, unable to look after herself after a severe stroke yet also told she must seek work. You may have heard of very many others. You may even have found these stories hard to believe. I’m not sure that I would blame you. For if we believe these stories, where do they leave us? Where do they leave claims that we are “protecting the most vulnerable”?

But today, I want to tell you about Karen Sherlock, because she was my friend.

Karen was extremely unwell. Here, in Karen’s own words are her medical conditions:

DIABETIC AUTONOMIC NEUROPATHY (GASTRIC, CAUSING UNPREDICTABLE AND SEVERE DIARRHOEA)

GASTROPAERESIS (CAUSING UNPREDICTABLE AND SEVERE BOUTS OF VOMITING)

DIABETIC RETINOPATHY, PARTIALLY SIGHTED (LOSS OF PERIPHERAL VISION IN BOTH EYES AND SOME CENTRAL VISION IN LEFT EYE)

HEART CONDITION, CHRONIC KIDNEY DISEASE, VITAMIN B12 DEFICIENCY, ANAEMIA, HIGH BLOOD PRESSURE, HIGH CHOLESTEROL, UNDERACTIVE THYROID, CHRONIC TIREDNESS DUE TO COMBINATION OF MULTIPLE MEDICAL CONDITIONS, ASTHMA

I urge you all to read this post, written by Karen just two months ago. It details a process many of us who are sick or disabled know all too well. Apply for ESA, get “assessed” by Atos, the private company charged with making these life or death decisions, get turned down for ESA, found “fit for work” or put in the wrong group, appeal decision, win tribunal, get a new letter demanding you attend another assessment, repeat the entire process until you despair, ground down by the misery.

My ESA is being stopped……………

Now, I have turned over in my mind how they can do this to me. 

Where it is going to leave us money-wise and what we can do about it? The answer is;  I don’t know. 

I am not entitled to a penny more due to having a husband that works too many hours and brings in too much money. I am worried and frightened, I do not see how they can just snatch this away from me. I am chronically ill and I am never going to get better, not even with the transplant will I feel better, all my conditions cannot be magically cured.

Karen faced all of this as she battled just to survive. Endless pressure, the judgement of society, the fear of destitution, the exhaustion of constant assessments and endless forms. She was one of those who’s ESA was time-limited - and what’s more, it was limited retrospectively, leaving her with just a few months to appeal for long term support.

What I want to tell you today is that she was frightened. Terrified in fact. She was terrified of the DWP, almost paralysed by a fear that if she spoke out, they would treat her even more harshly. But she spoke out regardless.

She was scared for her future, scared for her family. She had no idea how they would survive when she lost the little support they relied on. Her husband works, cares for a sick wife and they had “done the right thing”. Do you hear me Ian Duncan Smith? David Cameron? Nick Clegg? Ed Miliband? Her family had done the “right thing”, at least in your narrow world of workers and shirkers.

Despite her own terror, she tried to tell her country, her peers, her friends - even journalists - what was happening to her and thousands like her, but shocked tuts didn’t save her. Open mouths and disgust didn’t save Karen; they didn’t save my friend. Perhaps no one could have, but those who hold and abuse power could have eased her fear or reassured her that they would act.

Karen died on June 8 from a suspected heart attack. I’ll leave you with her own words, from the end of her final post on April 29:

“We need to be passionate about standing up for our rights, and if we can make enough noise, and get enough people to listen then we can overturn the inhumane changes this parasitic government have made.  If nothing else, we do still have hope and our rights on our side.”

Will we listen? Will Karen’s story be the one to convince us that enough is enough? Or will we turn a blind eye, continue to look away?

I hope not. There are dangerous historical precedents.

Sue Marsh is a writer and disability campaigner. She blogs at DiaryOfABenefitScrounger.blogspot.co.uk

Karen Sherlock's Twitter page.
Getty
Show Hide image

The problem with grammar schools – and the answer to Labour's troubles

This week's news, from Erdogan the despot, to memories of Disraeli, and coffee and class.

Whom should we be cheering in Turkey? Coups are by their nature ­anti-democratic, whatever the rhetoric of their instigators, but Recep Tayyip Erdogan, the Islamist president, is about as much of a democrat as Vladimir Putin. Once he regained power, he dismissed several thousand judges, putting some under arrest. A large number of journalists were already in prison.

As recently as 1990, nearly half of Turkey’s employed population worked on the land and, even now, the proportion is more than a quarter. Erdogan has ruthlessly exploited the pious, socially conservative instincts of his people, who are rarely more than a generation away from the peasantry (and therefore politically “backward” in the Marxian sense), to win elections and push through economic liberalisation and privatisation. His foreign affairs ministry claims that the aim is to confine the state’s role to health, basic education, social security and defence. That is good enough for most Western governments. Provided he also co-operates in limiting the flow of Middle Eastern migrants into Europe, Erdogan can be as Islamist and authoritarian as he likes.

 

Quick fix for Labour

I have an answer to Labour’s problems. Its MPs should elect their own leader while Jeremy Corbyn continues as party leader. The former, recognised by the Speaker as the leader of the parliamentary opposition, would get the usual state aid for opposition parties. Corbyn would control Labour Party funds and assets.

He and his hardcore supporters should welcome this arrangement. Their aim, they say, is to build a new social movement. Relinquishing the burden of parliamentary leadership would leave them free to get on with this project, whatever it means. Corbyn could go back to what he enjoys most: voting against the Labour front bench. He would no longer have to dress up, bow to the Queen or sing the national anthem. This, I grant you, would not be a satisfactory solution for the long term. But the long term is more or less extinct in British politics. If Labour had peace for a few months, it might be enough. The situation would be resolved either by Corbyn falling under a bus (preferably not one driven by a Labour MP) or the Tory government collapsing in the face of a mass people’s uprising demanding Corbyn’s installation as supreme ruler. Don’t tell me that neither is likely to happen.

 

Divide and rule

The choice of Birmingham as the location to launch Theresa May’s leadership campaign, combined with proposals such as worker representation on company boards, has drawn comparisons between the new Prime Minister and Joseph Chamberlain.

Chamberlain, who as mayor of Birmingham in the mid-1870s tore down slums, brought gas and water supplies under public control and opened libraries, swimming pools and schools, was a screw manufacturer. There was an Edwardian joke – or, if there wasn’t, there ought to have been – that he screwed both major parties. He became a Liberal cabinet minister who split the party over Irish home rule, putting it out of power for most of the next 20 years. He and his followers then allied themselves with the Tories, known at the time as the Unionists. He duly split the Unionists over tariff reform, excluding them from office for a decade after the Liberals won the 1906 election.

Chamberlain was a populist who brilliantly combined patriotic imperialism with domestic radicalism, proposing smallholdings of “three acres and a cow” for every worker. One can see the appeal to some Brexiteers but he was also divisive and volatile, making him an odd role model for a supposedly unifying leader.

 

Mind your grammar

Justine Greening, the new Education Secretary, is the first to be wholly educated at a mainstream state secondary comprehensive. Pro-comprehensive groups were almost lyrical in praise of her appointment. Yet, unlike her predecessor-but-one, Michael Gove, she declines to rule out the ­return of grammar schools.

To understand how iniquitous grammar schools were, you need to have attended one, as I did. Primary-school friendships were ruptured, usually along lines of social class. The grammars were rigidly stratified. I was in the A stream and do not recall any classmates from semi-skilled or unskilled working-class homes. They were in the C stream and left school as early as possible with a few O-levels. No minister who wants a “one-nation Britain” should contemplate bringing back grammar schools.

 

Living history

Simon Heffer’s recent account in the NS of how his father fought in the Battle of the Somme led one letter writer to ask if anyone alive today could have a grandparent born in the 18th century. Another NS reader replied with an example: John Tyler, a US president of the 1840s, born in Virginia in 1790, had two grandsons who are still alive. Here is another possibility. “As Disraeli said to my husband . . .” If you hear a 94-year-old say that, don’t dismiss her as demented. Disraeli died in 1881. A 71-year-old who married a 24-year-old in 1946 (not impossible; the actors Cary Grant and Anthony Quinn both married women 47 years younger) could have spoken to Disraeli as a boy.

The past is not as far away as we think, though many politicians and journalists behave as though anything before 1980 happened on another planet.

 

Milk money

The class system is alive and well in parts of England. On a family weekend walk, we came across a small village with two adjacent pubs – one clearly for the toffs, the other more plebeian. This was most evident when ordering coffee. The downmarket pub told us that it served only UHT milk with its hot drinks. The other was ostentatiously horrified at the suggestion that it might serve any such thing. 

Peter Wilby was editor of the Independent on Sunday from 1995 to 1996 and of the New Statesman from 1998 to 2005. He writes the weekly First Thoughts column for the NS.

This article first appeared in the 21 July 2016 issue of the New Statesman, The English Revolt