How many more disabled people will die frightened that their benefits will be taken away?

Karen Sherlock faced endless pressure, the judgement of society, the fear of destitution, the exhaustion of constant assessments and endless forms - all as she battled to survive.

I’m a disability campaigner. I’m not sure I ever set out to be – indeed that anyone does – but that is what I became.

You may have read some of the reasons here. Perhaps you’ve skimmed a few articles on ESA - the Employment & Support Allowance - tutted a shocked tut at cancer patients on chemotherapy sent to the job centre to find work. Perhaps you’ve sat open mouthed at the idea of one of the richest nations on earth arguing over just how terminally ill you need to be to get the gracious sum of £96 per week to survive with at least some dignity.

Maybe you heard that this government believes that for almost all conditions, one year is now considered enough to find work. You may have heard Chris Grayling, the Work and Pensions minister, tell you that it doesn’t matter whether people are better, or if they have found work, we simply can’t afford them any more. Their benefits will be stopped if they have a partner who earns just £7,500 a year or more.

You may have heard of this blind, deaf, tube-fed, non verbal, disabled man deemed fit for work by the DWP, or Jan Morgan, unable to look after herself after a severe stroke yet also told she must seek work. You may have heard of very many others. You may even have found these stories hard to believe. I’m not sure that I would blame you. For if we believe these stories, where do they leave us? Where do they leave claims that we are “protecting the most vulnerable”?

But today, I want to tell you about Karen Sherlock, because she was my friend.

Karen was extremely unwell. Here, in Karen’s own words are her medical conditions:





I urge you all to read this post, written by Karen just two months ago. It details a process many of us who are sick or disabled know all too well. Apply for ESA, get “assessed” by Atos, the private company charged with making these life or death decisions, get turned down for ESA, found “fit for work” or put in the wrong group, appeal decision, win tribunal, get a new letter demanding you attend another assessment, repeat the entire process until you despair, ground down by the misery.

My ESA is being stopped……………

Now, I have turned over in my mind how they can do this to me. 

Where it is going to leave us money-wise and what we can do about it? The answer is;  I don’t know. 

I am not entitled to a penny more due to having a husband that works too many hours and brings in too much money. I am worried and frightened, I do not see how they can just snatch this away from me. I am chronically ill and I am never going to get better, not even with the transplant will I feel better, all my conditions cannot be magically cured.

Karen faced all of this as she battled just to survive. Endless pressure, the judgement of society, the fear of destitution, the exhaustion of constant assessments and endless forms. She was one of those who’s ESA was time-limited - and what’s more, it was limited retrospectively, leaving her with just a few months to appeal for long term support.

What I want to tell you today is that she was frightened. Terrified in fact. She was terrified of the DWP, almost paralysed by a fear that if she spoke out, they would treat her even more harshly. But she spoke out regardless.

She was scared for her future, scared for her family. She had no idea how they would survive when she lost the little support they relied on. Her husband works, cares for a sick wife and they had “done the right thing”. Do you hear me Ian Duncan Smith? David Cameron? Nick Clegg? Ed Miliband? Her family had done the “right thing”, at least in your narrow world of workers and shirkers.

Despite her own terror, she tried to tell her country, her peers, her friends - even journalists - what was happening to her and thousands like her, but shocked tuts didn’t save her. Open mouths and disgust didn’t save Karen; they didn’t save my friend. Perhaps no one could have, but those who hold and abuse power could have eased her fear or reassured her that they would act.

Karen died on June 8 from a suspected heart attack. I’ll leave you with her own words, from the end of her final post on April 29:

“We need to be passionate about standing up for our rights, and if we can make enough noise, and get enough people to listen then we can overturn the inhumane changes this parasitic government have made.  If nothing else, we do still have hope and our rights on our side.”

Will we listen? Will Karen’s story be the one to convince us that enough is enough? Or will we turn a blind eye, continue to look away?

I hope not. There are dangerous historical precedents.

Sue Marsh is a writer and disability campaigner. She blogs at

Karen Sherlock's Twitter page.
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In Russia, Stalin is back

New statues and memorabilia are appearing, as Russians overlook the terror to hark back to a perceived era of order and national safety.

It was during the Victory Day march to commemorate those who fought in the World War Two, the Great Patriotic War (as it is known in Russia) that I saw the face of Stalin. A young woman carried a crimson flag with the image of the Leader which appeared amidst the black and white photographs of grandparents remembered on the seventieth anniversary of the victory over the Nazi Germany. Just a few months later I was back in Moscow to face the fact that the fleeting image of Stalin, like a seed dropped into rich soil, has sprouted everywhere. At the busy Moscow Domodedovo airport you can now buy souvenir mugs and badges featuring a man with a moustache, coiffed hair and unsmiling eyes; men wearing Stalin T-shirts walk the streets of Moscow and just in time for the festive season 2016 calendars with the twelve photos of the ”Red Tsar” are spread across the counters of the book shops. Most shockingly, new statues of Stalin have appeared in Lipetsk, Penza and Shelanger, a village in a Russian republic Mari El. The monuments were commissioned and erected by the Russia’s Communist Party. Its leader, Gennadiy Zyuganov, promised new statues to be built in Irkutsk in Siberia and in Donetsk in Eastern Ukraine. Charles de Gaulle, the former French president was right: “Stalin didn't walk away into the past, he dissolved into the future.”

According to a January 2015 survey by an independent, non-profit organisation, founded by a Russian sociologist Yuri Levada, 52 per cent of Russians think that Stalin played a “definitely positive” or ”mostly positive” role in Russia’s history. Stalin’s positive image today is cultivated mostly through his association with the Great Patriotic War. Throughout 2015 the Russian media have been obsessively commemorating the 70th anniversary of the victory over the Nazis, with Stalin, the generalissimo, at its helm. Political psychologist Elena Shestopal, quoted by the Levada Centre, explains that the positive opinion of Stalin is a reflection of the society’s demand for order and national safety. In her view, Russians associate Stalin with the role of the father: strict, demanding and powerful.

Stalin’s resurrection is astounding not least because his role in history and his “personality cult” have been consistently condemned in Russia since 1956. Three years after Stalin’s death, the then General Secretary Khrushchev denounced it at the Communist Party conference. Stalin’s body was removed from the Red Square mausoleum; the monuments commemorating him were taken down and destroyed. During glasnost, the openness period initiated by Gorbachev, some state archives revealing the extent of Stalin’s purges and mass repressions were made public. My own grandfather, Aleksandr Bakunin, who devoted his entire life to the history of the Russia’s Communist Party and its accomplishments, set to work in his seventies to research the newly available materials and write a trilogy about the history of Soviet totalitarianism. In popular literature, Aleksandr Solzhenitsyn made stunning revelations about mass repressions and his personal experiences as a prisoner in a labour camp in his novel The Gulag Archipelago, first openly published in a Russian literary magazine in 1989. In Gorbachev’s days Nikolai Svanidze, a popular Russian TV host, historian and journalist – related to Stalin through his first wife, Ekaterina (Cato) Svanidze – declared that Stalin and Hitler were cut from the same cloth on national television. I do not believe that such a statement would be made by the Russian media today. 

An example of a “Red Tsar” calendar

With knowledge about collectivisation and famine of the 1930s, mass arrests and forced labour, the culture of terror and the totalitarian governance, it is difficult to understand the current sentiment in Russia which makes it acceptable to print Stalin’s image onto T-shirts and mugs. Russians, who approve of Stalin, credit him with turning around the backward agrarian economy with its mostly rural population into an economic and scientific powerhouse, responsible for sending the first man into space. It was allegedly Churchill who said that “Stalin inherited Russia with a wooden plough and left it in possession of atomic weapons”. These sympathisers hail rapid industrialisation and economic progress, forgetting its costs. Mayakovskiy put it well in his poem about the construction of Kuznetsk: “The lips are turning blue from the cold, but the lips recite in unison: ‘In four years this will be a garden city!’”

Stalinists are especially vocal in giving their hero credit for winning the war. By the end of 1930s, the Soviet Union had become the largest economy in Europe and in the 1940s it was the defence industry that carried the Soviet campaign against Hitler. Stalin united people and inspired them to fight the enemy both on the front line and in the factories, according to those who believe in Stalin as “the Leader”. “The European nations are being ungrateful”, they say. “Stalin saved them from the Nazis.” It is inconvenient to remember that it was Stalin who had signed a non-aggression pact with Hitler in August 1939 and had been falsely assured that Germany would not invade the Soviet Union. Stalin disregarded several reports from his own intelligence agents and defected German spies about the advancing of Hitler’s army in 1941. Millions of lives were lost as a result in the first months of the war. As for the gratitude, the Baltic and the eastern European nations are quite right to dispute the post-war reorganisation of Europe, implemented after the Yalta conference, when Stalin, Roosevelt and Churchill agreed to divide their spheres of influence.

After the war, the USSR became the second most powerful nation in the world and a force to be reckoned with in geopolitics, economics and technology. Previously illiterate peasants, Soviet citizens enrolled in universities, became engineers and doctors, went to the theatre and cinema, read and became part of the Soviet miracle. There is a great deal of nostalgia among the older generation in Russia, who mourn the ”golden decades” of the Soviet Union and wish for Russia’s international status to climb again. “We lived better with Stalin than with anyone else who came to power after him. He looked after us. Today only oligarchs live well,” said a Russian woman in her late seventies. One Russian blogger writes that mass repressions were necessary to align the Soviet consciousness to the new ideology, to replace individualism with collective responsibility. He believes that the terror was necessary to maintain order. There is also rising support among the younger generation who see parallels between Putin and Stalin, the two rulers who favour autocracy and ubiquitous state control.

Already in his seventies, my grandfather wrote two books about the genesis and the evolution of the totalitarianism in the Soviet Union. His third book was meant to be about the fall of Stalinism. Despite several heart attacks and a stroke, he continued working. He died from the fatal heart attack, his book unfinished. Perhaps, it was meant to be. Section 86 of the German Criminal Code makes it illegal to display Nazi images and to hail Hitler in Germany. In Russia, Stalin has never been similarly condemned. The Russian government ostensibly does not object to the new statues of Stalin being erected just 60 years after they had been taken down. The nation that has forgotten its own history is terrifying.