Why the arts matter

Politicians are right to make this an election issue.

You'd expect the tabloids to belittle the government's commitment to the arts, but from the Guardian it just sounds weird. In a blog headlined "Don't vote for 'arts policy'", Jonathan Jones argues: "At these kinds of times, when the nation's future is held in the electoral balance, you realise exactly how silly and trivial the media fiction of 'the arts' actually is." He concludes his piece with the dismissive assertion that: "There are bigger things at stake than a new paint job for the National Theatre lobby."

Do the arts really amount to "the cultural comforts of the middle classes", as Jones says? Is the issue so trivial? I don't think so, and neither do the politicians.

In 2001, the then culture secretary Chris Smith wrote (PDF) that "our creative industries . . . are a real success story, and a key element in today's knowledge economy". These sectors, of course, are sustained by the "lifeblood" of what Smith called "original creativity", which in turn depends upon a healthy attitude to the arts in Westminster to fund institutions, programmes and so forth.

The costs are small, especially when set against their rewards -- the UK's major museums and galleries produce annual profits of £1.5bn; music brings in £5bn a year and theatre £2.6bn. According to Charlotte Higgins in the Guardian, when Liverpool was the European capital of culture in 2008, "£800m was generated for the local economy and 27 per cent more visitors were attracted than in previous years".

This is why the first British Inspiration Awards, scheduled to take place on 23 April in London, has the vocal endorsement of all three major political parties. "I am enormously proud of the talented people in this country who, through their creative and entrepreneurial gifts, illuminate their lives and enrich ours," said Gordon Brown, while David Cameron offered: "We should be proud of that heritage. I welcome the opportunity this event brings to celebrate our many creative successes."

In purely fiscal terms, the arts sector is a major employer and earner for the UK. It's more important than ever to insist upon its upkeep.

Yo Zushi is a contributing writer for the New Statesman. His latest album, It Never Entered My Mind, is out now on Eidola Records and is on Spotify here.

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We argue over Charlie Gard, but forget those spending whole lives caring for a disabled child

The everyday misery of care work is hidden behind abstract arguments over life and death.

“Sometimes,” says the mother, “I wish we’d let him go. Or that he’d just been allowed to slip away.” The father agrees, sometimes. So too does the child, who is not a child any more.

On good days, nobody thinks this way, but not all days are good. There have been bright spots during the course of the past four decades, occasional moments of real hope, but now everyone is tired, everyone is old and the mundane work of loving takes a ferocious toll.

When we talk about caring for sick children, we usually mean minors. It’s easiest that way. That for some parents, the exhaustion and intensity of those first days with a newborn never, ever ends – that you can be in your fifties, sixties, seventies, caring for a child in their twenties, thirties, forties – is not something the rest of us want to think about.

It’s hard to romanticise devotion strung out over that many hopeless, sleepless nights. Better to imagine the tragic mother holding on to the infant who still fits in her loving arms, not the son who’s now twice her size, himself edging towards middle-age and the cliff edge that comes when mummy’s no longer around.

Writing on the tragic case of Charlie Gard, the Guardian’s Giles Fraser claims that he would “rain fire on the whole world to hold my child for a day longer”. The Gard case, he argues, has “set the cool rational compassion of judicial judgement and clinical expertise against the passion of parental love”: “Which is why those who have never smelled the specific perfume of Charlie’s neck, those who have never held him tight or wept and prayed over his welfare, are deemed better placed to determine how he is to live and die.”

This may be true. It may also be true that right now, countless parents who have smelled their own child’s specific perfume, held them tightly, wept for them, loved them beyond all measure, are wishing only for that child’s suffering to end. What of their love? What of their reluctance to set the world aflame for one day more? And what of their need for a life of their own, away from the fantasies of those who’ll passionately defend a parent’s right to keep their child alive but won’t be there at 5am, night after night, cleaning out feeding tubes and mopping up shit?

Parental – in particular, maternal – devotion is seen as an endlessly renewable resource. A real parent never gets tired of loving. A real parent never wonders whether actually, all things considered, it might have caused less suffering for a child never to have been born at all. Such thoughts are impermissible, not least because they’re dangerous. Everyone’s life matters. Nonetheless, there are parents who have these thoughts, not because they don’t love their children, but because they do.

Reporting on the Gard case reminds me of the sanitised image we have of what constitutes the life of a parent of a sick child. It’s impossible not to feel enormous compassion for Charlie’s parents. As the mother of a toddler, I know that in a similar situation I’d have been torn apart. It’s not difficult to look at photos of Charlie and imagine one’s own child in his place. All babies are small and helpless; all babies cry out to be held.

But attitudes change as children get older. In the case of my own family, I noticed a real dropping away of support for my parents and disabled brother as the latter moved into adulthood. There were people who briefly picked him up as a kind of project and then, upon realising that there would be no schmaltzy ending to the story, dropped him again. Love and compassion don’t conquer all, patience runs out and dignity is clearly best respected from a distance.

All too often, the everyday misery of care work is hidden behind abstract arguments over who gets the right to decide whether an individual lives or dies. I don’t know any parents who truly want that right. Not only would it be morally untenable, it’s also a misrepresentation of what their struggles really are and mean.

What many parents who remain lifelong carers need is adequate respite support, a space in which to talk honestly, and the recognition that actually, sometimes loving is a grim and hopeless pursuit. Those who romanticise parental love – who, like Fraser, wallow in heroic portrayals of “battling, devoted parents” – do nothing to alleviate the suffering of those whose love mingles with resentment, exhaustion and sheer loneliness.

There are parents out there who, just occasionally, would be willing to set the world on fire to have a day’s respite from loving. But regardless of whether your child lives or dies, love never ends. 

Glosswitch is a feminist mother of three who works in publishing.