Nelson Mandela’s last days, paying for boar stew in Corsica, and the Tories of Generation Y

Peter Wilby's "First Thoughts" column.

One can see why MPs think they ought to have the pay rise – from £66,396 to more than £70,000 –proposed by the Independent Parliamentary Standards Authority. The new wage would still leave them well behind many doctors, lawyers, bankers, consultants and other London-based professionals with whom MPs most often mix.

Yet that is precisely why they shouldn’t get an increase. Far too many enter the Commons from metropolitan, middle-class backgrounds and have little feel for how most of the country lives even when they represent provincial constituencies.

Failure to increase MPs’ wages would deter “able” professional folk from seeking election, we are told. Let’s hope it does. We may then have more MPs from humble, non-metropolitan backgrounds. Able or not, they could hardly do a worse job of running the country.

New kids on the right

Why is the so-called Generation Y, born after 1980 and therefore aged under 34, so Tory? According to Ipsos MORI, over 20 per cent of this group supports the Conservatives, double the proportion in 2005. Members of Generation Y also take much harsher attitudes towards benefits and are far less proud of the welfare state than their parents and particularly their grandparents.

The most obvious reason for Generation Y’s Toryism is that it has little memory of the effects of Thatcherism. On the night of the 1991 census, 2,703 people in England and Wales were counted as sleeping rough. The figure was almost certainly an underestimate; a year earlier, the Old Etonian minister George Young (who is now the Chief Whip in the coalition government) had observed, “The homeless are what you step over when you come out of the opera.”

In the 2001 census, the figure was down to 938. Any big-city-dweller knows that the sleeping bags have started to reappear on our streets – according to some estimates, they have doubled in five years –and they will grow in number more noticeably, along with media stories of hungry children, as the benefit cuts bite. Young people’s opinions are volatile and I suspect they may yet swing violently against David Cameron and his government.

Wedded to the cause

On the subject of the Prime Minister, I am baffled by his eagerness to reward marriage with tax breaks. Presumably the idea is to encourage behaviour that is statistically associated with higher educational achievement, better health and lower levels of delinquency among children. Similar associations could probably be demonstrated for all sorts of other behaviours: sitting at tables for proper meals, serving greens, visiting National Trust properties, turning off the television, learning the violin.

Why doesn’t the government simply bug our homes to check we are all conducting ourselves as ministers would wish? Recent disclosures about GCHQ suggest it is more than equal to the task.

The art of a good death

By the time you read this, Nelson Mandela, who was described as being in a “critical but stable condition”, may at last, sadly, have succumbed to the inevitable. In the meantime, I don’t envy his large extended family making decisions about how long to keep him alive. Not only are they divided among themselves, as families often are, they must also contend with a divided nation that clings to Mandela as an icon of the national liberation struggle and unity.

Though obituary writers may praise a courageous fight to the end, nobody really wants to die in hospital, connected to tubes and machines. At nearly 95, Mandela can make at best only a temporary recovery, giving him minimal quality of life. If he is unable to express an opinion about his treatment (as I assume he isn’t), his family will be asked to make one on his behalf.

Prospective parents have no shortage of advice about childbirth, as Sophie Elmhirst wrote in this magazine last week. Yet I know of no equivalents of parenting classes for those struggling to cope with elderly relatives at the end of life.

When my 84-year-old mother neared her end 18 years ago, the hospital asked if, in the event of her heart stopping, I wished them to attempt to revive her. I had no idea what to say. Only later, when a team of black-clad paramedics burst in as she passed peacefully away, did I realise that the answer should have been “no”.

In addition to good food . . .

On a recent holiday in Corsica, I reflected, not for the first time, on the peculiarities of French restaurants. Most of the food was excellent – I particularly recommend the local wild boar stew, provided you make sure they haven’t substituted pork – and it usually arrived in reasonable time. The difficulty was with the bill. At one restaurant, we received, before we had been given our bill, someone else’s change, amounting to about €40. Next, we received someone else’s bill, which was roughly twice the size of ours. Then we got our own bill but minus the wine we had drunk. We pointed this out (generously, I thought) and the correct bill finally arrived, 30 minutes after we had first asked for it.

The staff then seemed bemused that we objected to waiting more than 15 minutes for our change.

Peter Wilby was the editor of the New Statesman from 1998 to 2005

A red geranium pictured against the Three Sisters rock formation in the mountains of Corsica. Photograph: Getty Images

Peter Wilby was editor of the Independent on Sunday from 1995 to 1996 and of the New Statesman from 1998 to 2005. He writes the weekly First Thoughts column for the NS.

This article first appeared in the 08 July 2013 issue of the New Statesman, The world takes sides

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On World Aids Day, let’s end the stigma around HIV for good

Advances in treatment mean that being HIV positive is no longer a death sentence, but attitudes still lag behind.

Stigma is a dangerous human construct, principally based on unfounded prejudices. None more so than the stigma surrounding HIV. The condition has been a recognised health issue in the UK for more than 30 years, and the advances in treatment have been staggering. Unfortunately attitudes seem to have remained in the 1980s.

A recent Terrence Higgins Trust poll asked people who are living with HIV for words that they have heard to describe their health condition. “AIDS”, “riddled”, “dirty”, “disgusting”, “promiscuous”, “dirty”, “deserved”, “unclean”, “diseased” – were the most cited.

Imagine turning to someone, who lets say has a long term health condition like high blood pressure, and branding them “lazy”, “fat”, “deserving”. Or someone who has just been diagnosed with diabetes being dismissed as “greed”. Of course, I’m not saying that these health conditions are without their own stigma. Rather I doubt that Charlie Sheen would have been subjected to such a vitriolic witch hunt, had it transpired he had either of those.

Once the nausea of that coverage subsided, it was telling to note the absent voices from most of the media debate around HIV and stigma. The thing that struck most was the total lack of understanding of the condition, the treatment, and the lack of representation of those who are living with HIV.

There was little written about the stigma women living with HIV face. That which those within the black African community, or the trans community, or the over 50s – the first generation of people living into old age with HIV – are subjected to.

Such is the stigma and the shame of HIV in black African communities that it can divide families. HIV positive people can be asked to leave home, resulting in separation from their family and isolation from their community. We know of a woman from the black African community who felt so stigmatised for not breastfeeding her baby – due to her HIV treatment – that she stopped her drug regime. She died unnecessarily of an Aids-related illness. After her death, her medication was found in the attic.

While living with HIV can be stressful for all ages, ageing with HIV can introduce challenges to mental health and quality of life. When compared to their peers, older people living with HIV are disadvantaged in a wide range of ways – from poorer health, to social care and financial security. We’ve found that older people fear that social care services will be prejudiced about their HIV diagnosis. One man shared that he feared hugely going into a home – the attitudes towards HIV that he might find, and ignorance from the staff. This fear is rooted in many people’s historic and continued experience of HIV-related discrimination.  

Often considered to be a lower risk group than gay men, women are sometimes forgotten in HIV discourse and yet women are stigmatised as much as any other with HIV. Women living with the condition face a unique stigma. Some are mothers and have been accused of being “irresponsible” and “putting children at risk”.

For the record, taking antiretroviral medication (ART) lowers the amount of virus in your blood to “undetectable” levels. When the level of HIV in your blood is so low that it can’t be picked-up in tests it is undetectable. This means there is an extremely low risk of passing on HIV.

Because of ART, undetectable women have a very low risk of passing on HIV to their babies. New-borns are given their own short course of ART to further reduce their risk of developing HIV, and undergo a series of tests during the first 18 months of life.

Many transgender people are on a difficult gender journey, which includes lots of access to GPs for onward referrals to specialists, and still they worry about HIV stigma. Some deny their HIV status in settings where possible, as they look at it as a barrier to achieving their goal. Gender specialist clinics are embedded in mental health departments, and some positive trans people worry that the stigma of diagnosis might be seen as an indicator of promiscuity, which they feel might work against their cases.

And what of stigma in the gay community? The poll mentioned earlier found that of 410 gay men living with HIV, 77 per cent experience stigma – with more than two thirds experiencing this most from within the gay community.

Those gay men who take the plunge and live openly with their status are often heckled, and sent abuse on dating apps like Grindr, even receiving messages that they shouldn’t be using it because “they’ll infect others”. It’s all too easy in the digital age for stigma to persist, and ignorance to remain faceless.

Stigma is best countered with fact. But there’s a clear lack of education amongst many – both positive and negative. Growing up with sex and relationship education lessons that only teach the reproduction cycle is not enough. Young people should be given clear and detailed information about the risks of HIV, but also how living with HIV in the UK has changed, and it is now an entirely manageable health condition.

Officially, stigma is defined as a mark of disgrace associated with a particular circumstance, quality, or person. Let’s turn that around today, and use the red ribbon to stop stigma. Let’s use it a mark of solidarity, compassion and understanding.

Let’s start a conversation about how we speak and write about HIV. Let’s stand together, today of all days against HIV stigma. Start now – join the solidarity on social media by taking a selfie with your red ribbon and #StopStigma.